title: Spinal muscular atrophy with respiratory disease (SMARD): an ethical dilemma.
authors.forename: Andrew
authors.initials: A
authors.lastname: Bush
mesh_terms: D006801:Humans; D007223:Infant; D011788:Quality of Life; D012121:Respiration, Artificial / Q000941:ethics*; D012133:Respiratory Paralysis / Q000628:therapy*; D014897:Spinal Muscular Atrophies of Childhood / Q000628:therapy*; D014139:Tracheostomy / Q000941:ethics*; D028761:Withholding Treatment / Q000941:ethics