title: Information and service needs of persons with Alzheimer's disease and their family caregivers living in rural communities.
abstract: This study aimed to identify the information and service needs of persons with Alzheimer's disease (AD) and their family caregivers living in rural communities and to assess differences and similarities in each partner's perspective. In an outpatient clinic setting, a self-report survey was completed by 100 caregivers, while a similar survey was used to interview 100 persons with mild to moderate AD. The survey assessed respondents' interest in information or services related to 22 topics about AD and various aspects of coping with the disease. Although more caregivers than persons with AD reported interest in each topic, 8 of the top 10 topics endorsed by each group of respondents were the same. However, analysis of responses by dyads revealed substantial disagreement in terms of each partner's interest in information and services. Patient and family education, as well as referrals for services, must take into account each partner's unique perspective and needs.
authors.affiliation: Mather LifeWays Institute on Aging, Evanston, IL 60201, USA. pedelman@matherlifeways.com
authors.forename: Perry
authors.initials: P
authors.lastname: Edelman
authors.forename: Daniel
authors.initials: D
authors.lastname: Kuhn
authors.forename: Bradley R
authors.initials: BR
authors.lastname: Fulton
authors.forename: Gregory A
authors.initials: GA
authors.lastname: Kyrouac
mesh_terms: D000223:Adaptation, Psychological; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D003430:Cross-Sectional Studies; D005260:Female; D006266:Health Education; D006301:Health Services Needs and Demand; D006801:Humans; D007087:Illinois; D008297:Male; D008875:Middle Aged; D019035:Rural Health Services; D012424:Rural Population; D011795:Surveys and Questionnaires