title: International Spinal Cord Injury Data Sets.
abstract: METHODS
  Discussion and development of final consensus.
  
  
  OBJECTIVE
  Present the background, purpose, and process for the International Spinal Cord Injury (SCI) Data Sets development.
  
  
  METHODS
  International.
  
  
  METHODS
  An international meeting on SCI data collection and analysis occurred at a workshop on May 2, 2002, before the combined meeting of the American Spinal Injury Association (ASIA) and the International Spinal Cord Society (ISCoS) in Vancouver, British Columbia, Canada. At this meeting, a process was developed for selection of data elements to be included in International SCI Data Sets.
  
  
  RESULTS
  An overall structure and terminology has been developed following the format of the International Classification of Functioning, Disability and Health (ICF). This includes definitions of the Core Data Set, as well as Modules with Basic Questions or Data Sets and Expanded Data Sets. The Core Data Set has been developed and will be presented separately. Working groups for additional modules are being established as well as general guidelines for the development of the modules.
  
  
  CONCLUSIONS
  The presented format should help in developing data sets and modules within various topics related to SCI.
authors.affiliation: Clinic for Spinal Cord Injuries, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
authors.forename: F
authors.initials: F
authors.lastname: Biering-Sørensen
authors.forename: S
authors.initials: S
authors.lastname: Charlifue
authors.forename: M
authors.initials: M
authors.lastname: DeVivo
authors.forename: V
authors.initials: V
authors.lastname: Noonan
authors.forename: M
authors.initials: M
authors.lastname: Post
authors.forename: T
authors.initials: T
authors.lastname: Stripling
authors.forename: P
authors.initials: P
authors.lastname: Wing
mesh_terms: D003628:Database Management Systems; D016208:Databases, Factual; D015340:Epidemiologic Research Design; D006304:Health Status; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D038622:Internationality; D011159:Population Surveillance / Q000379:methods*; D013119:Spinal Cord Injuries / Q000453:epidemiology*