title: Socialization of children and adolescents with cystic fibrosis: Support for nursing care.
abstract: The aim of this paper is to identify the routine (school, work, free time activities and relationships with friends and family) of children and adolescents with Cystic Fibrosis (CF) through their experiences and identify situations that can affect these routines. The objects of analysis of this research are children and adolescents with CF who attend a teaching hospital in a city of the State of São Paulo--Brazil. It is a qualitative research, with data collection based on open interviews and patient charts. The data brought the following themes: misleading knowledge about the disease, concern with self-image, search for self-care and hope of improvement in the future. The results evidence the repercussion of CF in those patients' socialization process, evidencing the importance of health professionals knowing about these demands and incorporating them into the care plan, with a view to effective interventions to promote infant-juvenile growth and development.
authors.affiliation: WHO Collaborating Centre for Nursing Research Development, University of São Paulo at Ribeirão Preto College of Nursing. tatapizzi@hotmail.com
authors.forename: Tainá Maués Pelúcio
authors.initials: TM
authors.lastname: Pizzignacco
authors.forename: Regina Aparecida Garcia
authors.initials: RA
authors.lastname: de Lima
mesh_terms: D000293:Adolescent; D001828:Body Image; D001938:Brazil; D002648:Child; D003550:Cystic Fibrosis / Q000451:nursing* / Q000523:psychology; D003625:Data Collection; D005260:Female; D006784:Hospitals, Teaching; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008499:Medical Records; D010371:Pediatric Nursing; D012648:Self Care; D012649:Self Concept; D012951:Socialization