title: Assessment of health-related quality of life in children with functional defecation disorders.
abstract: OBJECTIVE
  To evaluate the health-related quality of life in children with functional defecation disorders.
  
  
  METHODS
  One hundred children seen consecutively were enrolled and subdivided into three subsets according to the Roma II classification criteria: functional constipation (n = 57), functional fecal retention (n = 29) and nonretentive functional soiling (n = 14). The generic instrument Child Health Questionnaire - Parent Form 50 (CHQ-PF50), was used to measure quality of life and to assess the impact of these disorders from the point of view of parents. The instrument measures physical and psychosocial wellbeing in 15 health domains, each of which is graded on a scale from 0 to 100, with higher values indicating better health and greater wellbeing. Ten of these are then used to obtain two aggregated and summary scores: the physical and psychosocial scores.
  
  
  RESULTS
  No statistically significant differences were detected between subsets in terms of demographic or anthropometric characteristics. In 14 domains, children with defecation disorders scored lower than healthy children. When subsets were compared, statistically significant differences were detected between children with nonretentive functional soiling (lower scores) and those with functional constipation. Physical and psychosocial scores for the entire sample were lower than those for the group of healthy children used as controls.
  
  
  CONCLUSIONS
  The CHQ-PF50 was considered adequate for demonstrating compromised quality of life in children with functional defecation disorders, as has been reported for other diseases, being a useful tool for making treatment decisions and for patient follow-up.
authors.affiliation: Departamento de Pediatria, Faculdade de Medicina de Botucatu, Universidade Estadual Paulista (UNESP), Botucatu, SP, Brazil.
authors.forename: Francisca T V
authors.initials: FT
authors.lastname: Faleiros
authors.forename: Nilton C
authors.initials: NC
authors.lastname: Machado
mesh_terms: D002648:Child; D002669:Child Welfare / Q000523:psychology*; D002675:Child, Preschool; D002908:Chronic Disease; D003248:Constipation / Q000473:pathology / Q000523:psychology*; D005242:Fecal Incontinence / Q000473:pathology / Q000523:psychology*; D006801:Humans; D010290:Parents / Q000523:psychology; D011788:Quality of Life; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires / Q000592:standards*; D016896:Treatment Outcome