Betterland: an interactive cd-rom guide for children with cystic fibrosis.
Effective management of cystic fibrosis (CF) depends on adherence to a daily multi-component regimen. Segregation policies have been reported to lead to a dramatic fall in the incidence of cross infection rates in specialist CF centres. Previously, peers provided a valuable source of information and support; segregation means that there is virtually no contact with other people with CF. In this context the Betterland CD-ROM was developed with the aim of improving knowledge and understanding and helping children and young people cope with time-consuming CF treatments (inhalation therapies and physiotherapy) and painful procedures by using filmed-model approaches. Betterland is an interactive computer game, designed in the style of a theme park. Patient and carer feedback has been positive and the CD-ROM has been incorporated into a nurse-led Moving to High School (MotHS) programme, as well as the patient education work of the CF multidisciplinary team, particularly clinical nurse specialists.
Duff
Alistair
A
Regional Paediatric Cystic Fibrosis Unit, St James's University Hospital, Leeds, UK.
Ball
Rosemary
R
Wolfe
Susan
S
Blyth
Helen
H
Brownlee
Keith
K
D000223:Adaptation, Psychological; D000367:Age Factors; D001294:Attitude to Health; D016251:CD-ROM / Q000592:standards*; D002648:Child; D053198:Child Nutrition Sciences / Q000193:education; D002675:Child, Preschool; D003194:Computer-Assisted Instruction / Q000379:methods* / Q000592:standards; D003550:Cystic Fibrosis / Q000150:complications / Q000517:prevention & control* / Q000523:psychology; D006801:Humans; D017053:Infection Control; D015402:Nursing Education Research; D015403:Nursing Evaluation Research; D010146:Pain / Q000209:etiology / Q000517:prevention & control; D010353:Patient Education as Topic / Q000379:methods* / Q000592:standards; D002666:Psychology, Child; D011795:Surveys and Questionnaires; D018910:Video Games / Q000523:psychology* / Q000592:standards