title: Partnerships in specialty care: exploring rural haemophilia provider resource needs.
abstract: OBJECTIVE
  The purpose of this study was to determine whether rural providers have adequate preparation for safe and effective haemophilia care.
  
  
  METHODS
  This qualitative study proceeded in two phases: focus group (phase I) and telephone (phase II) interviews.
  
  
  METHODS
  Five Canadian rural hospitals served by one urban haemophilia treatment centre and providing service to at least one haemophilia family.
  
  
  METHODS
  Phase I: focus groups of rural health professionals (site 1: n = 5; site 2: n = 6), including nursing, medicine and lab technology. Phase II: telephone interviews with nine participants from nursing, medicine, lab technology, social work and physiotherapy across three sites.
  
  
  METHODS
  Qualitative content analysis yielded categorical themes for specialty care resource requirements in a rural context.
  
  
  RESULTS
  Resource needs reflected five main categories: communication network, subjective knowledge, team roles, objective knowledge and partnerships (C-STOP).
  
  
  CONCLUSIONS
  The five C-STOP categories require resources and alignment of urban specialist, rural provider and family expertise. Specialty clinic efforts promoting self-care are incomplete without matched resources for rural providers.
authors.affiliation: Faculty of Nursing, University of Calgary, Calgary, Alberta, Canada. apritchard@mtroyal.ca
authors.forename: Andrea M
authors.initials: AM
authors.lastname: Pritchard
authors.forename: Marlene
authors.initials: M
authors.lastname: Reimer
authors.forename: Kari
authors.initials: K
authors.lastname: Simonson
authors.forename: Kathleen
authors.initials: K
authors.lastname: Oberle
mesh_terms: D002170:Canada; D019058:Community Networks / Q000458:organization & administration*; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006467:Hemophilia A / Q000517:prevention & control / Q000628:therapy*; D006780:Hospitals, Rural / Q000458:organization & administration; D006801:Humans; D033183:Interdisciplinary Communication; D020380:Needs Assessment / Q000458:organization & administration; D011320:Primary Health Care / Q000458:organization & administration*; D019035:Rural Health Services / Q000458:organization & administration*; D011795:Surveys and Questionnaires