title: Development and evaluation of a self-administered version of the ALSFRS-R.
abstract: We evaluated the reliability and sensitivity to change over time of a newly developed self-administered version of the ALS functional rating scale-revised (ALSFRS-R) in 60 consecutive patients from an ALS clinic. The self-administered ALSFRS-R showed excellent reliability (intraclass correlation = 0.93, 95% CI: 088 to 0.96) and similar sensitivity to change over time vs the standard evaluator-administered ALSFRS-R.
authors.affiliation: Eleanor and Lou Gehrig MDA/ALS Research Center, Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY 10032. jm598@columbia.edu
authors.forename: J
authors.initials: J
authors.lastname: Montes
authors.forename: G
authors.initials: G
authors.lastname: Levy
authors.forename: S
authors.initials: S
authors.lastname: Albert
authors.forename: P
authors.initials: P
authors.lastname: Kaufmann
authors.forename: R
authors.initials: R
authors.lastname: Buchsbaum
authors.forename: P H
authors.initials: PH
authors.lastname: Gordon
authors.forename: H
authors.initials: H
authors.lastname: Mitsumoto
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000690:Amyotrophic Lateral Sclerosis / Q000145:classification* / Q000175:diagnosis*; D005260:Female; D006305:Health Status Indicators; D006801:Humans; D008297:Male; D008875:Middle Aged; D009483:Neuropsychological Tests; D011897:Random Allocation; D015203:Reproducibility of Results; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires