title: Public willingness to participate in and public opinions about genetic variation research: a review of the literature.
abstract: Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addressing concerns that may exist in different communities is vital to the scientific and ethical advancement of genetic variation research. We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership.
authors.affiliation: School of Public Health, University of North Carolina, Chapel Hill, NC 27599-7240, USA.
authors.forename: Rene
authors.initials: R
authors.lastname: Sterling
authors.forename: Gail E
authors.initials: GE
authors.lastname: Henderson
authors.forename: Giselle
authors.initials: G
authors.lastname: Corbie-Smith
mesh_terms: D001294:Attitude to Health; D004467:Economics; D036262:Empirical Research; D005006:Ethnicity / Q000235:genetics* / Q000523:psychology; D036281:Genetic Research; D014644:Genetic Variation; D005828:Genetics, Population; D006801:Humans; D007258:Informed Consent / Q000706:statistics & numerical data*; D011057:Politics; D011639:Public Opinion; D044469:Racial Groups / Q000235:genetics* / Q000523:psychology; D012933:Social Identification; D014481:United States