The post-Human Genome Project mindset: race, reliability, and health care.
The following essay reports on the first session of a 2-day workshop on genetic diversity and science communication, organized by the Institute of Genetics. I argue that the four talks in this session reflected two different facets of a 'post-Human Genome Project (HGP)' view of human genetics. The first is characterized by an increasing interest in genetic differences. Two speakers - Troy Duster and Jasber Singh - expressed skepticism about one aspect of this trend: an emphasis on race in medicine and genetics. The other two speakers - Kenneth Weiss and Gustavo Turecki - spoke to a second facet of the post-HGP view: a recognition of the difficulty in translating genetic discovery into medical or public health applications. Though both sets of talks were highly critical of current trends in genetic research, they pulled in opposite directions: one warned about the role of genetics in stabilizing racial categories, while the other lamented the failure of any genetic claims or categories to stabilize at all. I argue that the use of racial categories in medicine seems likely to encounter scientific, medical, and social challenges.
Kimmelman
J
J
Department of Social Studies of Medicine, Clinical Trials Research Group, Biomedical Ethics Unit, Faculty of Medicine, McGill University, Montreal, Quebec, Canada. jonathan.kimmelman@mcgill.ca
D003142:Communication; D003695:Delivery of Health Care; D014644:Genetic Variation; D005826:Genetics, Medical; D016045:Human Genome Project; D006801:Humans; D044469:Racial Groups / Q000235:genetics