title: Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup.
abstract: For critically ill patients and their loved ones, high-quality health care includes the provision of excellent palliative care. To achieve this goal, the healthcare system needs to identify, measure, and report specific targets for quality palliative care for critically ill or injured patients. Our objective was to use a consensus process to develop a preliminary set of quality measures to assess palliative care in the critically ill. We built on earlier and ongoing efforts of the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup to propose specific measures of the structure and process of palliative care. We used an informal iterative consensus process to identify and refine a set of candidate quality measures. These candidate measures were developed by reviewing previous literature reviews, supplementing the evidence base with recently published systematic reviews and consensus statements, identifying existing indicators and measures, and adapting indicators from related fields for our objective. Among our primary sources, we identified existing measures from the Voluntary Hospital Association's Transformation of the ICU program and a government-sponsored systematic review performed by RAND Health to identify palliative care quality measures for cancer care. Our consensus group proposes 18 quality measures to assess the quality of palliative care for the critically ill and injured. A total of 14 of the proposed measures assess processes of care at the patient level, and four measures explore structural aspects of critical care delivery. Future research is needed to assess the relationship of these measures to desired health outcomes. Subsequent measure sets should also attempt to include outcome measures, such as patient or surrogate satisfaction, as the field develops the means to rigorously measure such outcomes. The proposed measures are intended to stimulate further discussion, testing, and refinement for quality of care measurement and enhancement.
authors.affiliation: Center for Health Research, Kaiser Permanente Northwest, Portland, Oregon, USA.
authors.forename: Richard A
authors.initials: RA
authors.lastname: Mularski
authors.forename: J Randall
authors.initials: JR
authors.lastname: Curtis
authors.forename: J Andrew
authors.initials: JA
authors.lastname: Billings
authors.forename: Robert
authors.initials: R
authors.lastname: Burt
authors.forename: Ira
authors.initials: I
authors.lastname: Byock
authors.forename: Cathy
authors.initials: C
authors.lastname: Fuhrman
authors.forename: Anne C
authors.initials: AC
authors.lastname: Mosenthal
authors.forename: Justine
authors.initials: J
authors.lastname: Medina
authors.forename: Daniel E
authors.initials: DE
authors.lastname: Ray
authors.forename: Gordon D
authors.initials: GD
authors.lastname: Rubenfeld
authors.forename: Lawrence J
authors.initials: LJ
authors.lastname: Schneiderman
authors.forename: Patsy D
authors.initials: PD
authors.lastname: Treece
authors.forename: Robert D
authors.initials: RD
authors.lastname: Truog
authors.forename: Mitchell M
authors.initials: MM
authors.lastname: Levy
mesh_terms: D003266:Continuity of Patient Care; D003422:Critical Care / Q000458:organization & administration*; D005190:Family; D006801:Humans; D008020:Life Support Care / Q000458:organization & administration; D010166:Palliative Care / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration; D019984:Quality Indicators, Health Care / Q000458:organization & administration*; D011787:Quality of Health Care / Q000458:organization & administration; D012128:Respiratory Distress Syndrome / Q000175:diagnosis / Q000628:therapy; D028761:Withholding Treatment