title: Family response to end-of-life education: differences by ethnicity and stage of caregiving.
abstract: The authors developed and tested 5 educational booklets to improve end-of-life knowledge, attitudes, intention, and practices in a multiethnic sample of family caregivers of well, homebound, and institutionalized elders. Of 570 participants, 424 (74%) read at least 1 booklet and completed pretests and posttests. At 3-month follow-up, small improvements were seen in completion of advance directives, and significant increases were seen in proportions of caregivers with funeral or burial plans and willingness to consider hospice. The booklets had wide appeal, but end-of-life measures varied by care-giver stage and ethnicity, suggesting that these factors need to be considered in developing education interventions for family caregivers.
authors.affiliation: Center on Aging, Office of Public Health Studies, University of Hawaii, Honolulu, USA. kbraun@hawaii.edu
authors.forename: Kathryn L
authors.initials: KL
authors.lastname: Braun
authors.forename: Harumi
authors.initials: H
authors.lastname: Karel
authors.forename: Ana
authors.initials: A
authors.lastname: Zir
mesh_terms: D000328:Adult; D016223:Advance Directives / Q000208:ethnology; D000368:Aged; D001293:Attitude to Death / Q000208:ethnology*; D001294:Attitude to Health; D017028:Caregivers / Q000193:education* / Q000523:psychology; D003466:Cultural Characteristics; D018864:Cultural Diversity; D005195:Family Relations / Q000208:ethnology*; D005260:Female; D006254:Hawaii; D007722:Health Knowledge, Attitudes, Practice; D006701:Home Nursing / Q000379:methods; D017051:Hospice Care / Q000379:methods*; D006801:Humans; D008297:Male; D008875:Middle Aged; D010166:Palliative Care / Q000379:methods*; D010174:Pamphlets