An exploration of the legal and socio-ethical implications of predictive genetic testing of children.
This article explores the current position in relation to predictive genetic testing of children, highlighting some of the legal and socio-ethical issues and complexities that such testing presents. It evaluates the existing regulatory framework for predictive genetic testing of children in Australia, including the possible role of the Family Court in protecting children from inappropriate testing, and suggests that introducing a more interventionist approach would create its own difficulties. The article also considers a particular issue arising in the context of predictive genetic testing of children which the ALRC/AHEC inquiry canvassed concerning disclosure obligations to insurers. The article argues that creating an exception to established principles of disclosure would mitigate the impact of predictive genetic testing of children and would be consistent with international instruments which seek to protect against unfair genetic discrimination.
Otlowski
Margaret
M
University of Tasmania, Australia.
D001315:Australia; D002648:Child; D030881:Disclosure / Q000331:legislation & jurisprudence; D005820:Genetic Testing / Q000941:ethics / Q000331:legislation & jurisprudence*; D006282:Health Personnel / Q000331:legislation & jurisprudence; D006801:Humans; D007341:Insurance / Q000331:legislation & jurisprudence; D015273:Insurance Selection Bias; D033242:Minors / Q000331:legislation & jurisprudence; D033282:Parental Consent / Q000331:legislation & jurisprudence