title: Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives.
abstract: OBJECTIVE
  To provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children.
  
  
  METHODS
  In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children's communication, strategies they used to help promote their children's communication, communication-related frustrations, their expectations for their children, and the roles that they perceive for themselves.
  
  
  RESULTS
  Over half the children were nonverbal and learning to communicate with augmentative and alternative communication. Mothers reported using strategies that were developmentally appropriate and recommended by early childhood experts, such as reading and talking to their children. Many mothers identified challenges faced in helping their child to communicate, and some cited difficulty obtaining speech-language services as a challenge. Mothers identified their roles as caregiver, teacher, therapist, and advocate.
  
  
  CONCLUSIONS
  The perspectives offered by mothers are valuable because they indicate how children with FXS communicate in natural contexts. Information about mothers' expectations and roles may help clinicians to be sensitive to variables that will affect working with young children and their families.
authors.affiliation: University of Kansas, Lawrence, KS 66045, USA. nbrady@ku.edu
authors.forename: Nancy
authors.initials: N
authors.lastname: Brady
authors.forename: Debra
authors.initials: D
authors.lastname: Skinner
authors.forename: Joanne
authors.initials: J
authors.lastname: Roberts
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Hennon
mesh_terms: D000328:Adult; D002675:Child, Preschool; D003147:Communication Disorders / Q000209:etiology* / Q000523:psychology; D005260:Female; D005600:Fragile X Syndrome / Q000150:complications / Q000523:psychology*; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D008297:Male; D009035:Mothers / Q000523:psychology*; D010287:Parent-Child Relations; D016487:Parenting / Q000523:psychology*; D012380:Role