title: Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease.
abstract: This article focuses first on the process of transition and transfer of care of young adults with complex congenital heart disease. It defines the transition process and briefly discusses its history. It reviews the important aspects of transition, outlines the key elements of a successful transition program, and provides a curriculum appropriate for the young adult with congenital heart disease. Finally, it identifies the barriers to transfer of care, discusses the importance of a policy on timing, outlines the components of adult provider services that may be needed, and reviews the steps to an orderly transfer process.
authors.affiliation: Boston Adult Congenital Heart Program, Children's Hospital Boston, Brigham and Women's Hospital, and Harvard Medical School, 300 Longwood Avenue, Boston, MA 02115, USA. alison.knauth@cardio.chboston.org
authors.forename: Alison
authors.initials: A
authors.lastname: Knauth
authors.forename: Amy
authors.initials: A
authors.lastname: Verstappen
authors.forename: John
authors.initials: J
authors.lastname: Reiss
authors.forename: Gary D
authors.initials: GD
authors.lastname: Webb
mesh_terms: D000293:Adolescent; D000328:Adult; D002309:Cardiology; D003266:Continuity of Patient Care; D006330:Heart Defects, Congenital / Q000628:therapy*; D006801:Humans; D010353:Patient Education as Topic; D010360:Patient Transfer; D010372:Pediatrics; D012657:Self-Help Groups