Centres of Excellence for the care of people with progressive ataxias.
This article provides a description of the progressive ataxias and how such a diagnosis impacts on a person's life. The nurse's role in helping these patients, who can face numerous difficulties in everyday life, is highlighted. Moreover, the authors discuss the development of Ataxia Specialist Centres of Excellence for the diagnosis and management of people with ataxia, and the benefits believe these centres will bring to the care of these patients.
Greenfield
Julie
J
Ataxia UK, and National Hospital for Neurology and Neurosurgery, London.
Treacy
Colm
C
Giunti
Paola
P
D000068:Accreditation / Q000458:organization & administration; D000223:Adaptation, Psychological; D001259:Ataxia / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D015984:Causality; D017281:Cost of Illness; D018450:Disease Progression; D006301:Health Services Needs and Demand; D006801:Humans; D009720:Nurse Clinicians / Q000458:organization & administration; D024802:Nurse's Role; D010348:Patient Care Team / Q000458:organization & administration*; D011787:Quality of Health Care / Q000458:organization & administration; D011788:Quality of Life; D012944:Social Support; D013132:Spinocerebellar Degenerations / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D006113:United Kingdom