title: Perceived involvement in condition management among inner-city youth with asthma and their primary caregivers.
abstract: This study examined patterns of agreement versus disagreement in family perceptions of caregiver and youth involvement in asthma management tasks and associations of these patterns with youth asthma outcomes. Fifty-six caregiver-child dyads completed questionnaires of family involvement in asthma management and asthma health outcomes (i.e., symptom days, health care utilization, and medication adherence). Discrepancies were documented for perceptions of both caregiver and youth involvement. Caregiver overestimation of youth involvement in asthma management was associated with greater asthma severity and more asthma symptoms. Discrepancies in family perceptions of involvement pose salient challenges for effective clinical management and require clinical attention.
authors.affiliation: Department of Pediatrics, Case Western Reserve University School of Medicine, Cleveland, Ohio, USA. rgreenle@mcw.edu
authors.forename: Rachel Neff
authors.initials: RN
authors.lastname: Greenley
authors.forename: Katherine Leigh
authors.initials: KL
authors.lastname: Josie
authors.forename: Dennis
authors.initials: D
authors.lastname: Drotar
mesh_terms: D000293:Adolescent; D001249:Asthma / Q000523:psychology / Q000628:therapy*; D017028:Caregivers / Q000523:psychology*; D005190:Family; D015438:Health Behavior; D006801:Humans; D010465:Perception; D000297:Psychology, Adolescent; D012648:Self Care; D014505:Urban Population