title: Adult congenital heart disease: the patient's perspective.
abstract: This article presents the adult congenital heart disease (ACHD) patient "voice" by high-lighting issues and challenges commonly identified in peer support forums but rarely addressed in the existing literature. Representative patient quotations are provided, and relevant research on patient education and psychosocial function is referenced. Issues discussed include the provision of overly pessimistic and overly optimistic prognoses, common patient misperceptions and knowledge gaps, frustrations and dangerous encounters in the medical system, and living with invisible disabilities. Patient self-perception of congenital heart disease, the gifts of congenital heart disease, and the role of patient associations are also discussed. For each issue identified, implications for the ACHD health professional are outlined and recommendations for best practices are made.
authors.affiliation: Adult Congenital Heart Association, 6757 Greene Street, Philadelphia, PA 19119, USA. amyv@achaheart.org
authors.forename: Amy
authors.initials: A
authors.lastname: Verstappen
authors.forename: Disty
authors.initials: D
authors.lastname: Pearson
authors.forename: Adrienne H
authors.initials: AH
authors.lastname: Kovacs
mesh_terms: D000328:Adult; D006330:Heart Defects, Congenital / Q000145:classification / Q000523:psychology / Q000601:surgery / Q000628:therapy; D006801:Humans; D010346:Patient Care Management; D010353:Patient Education as Topic; D011788:Quality of Life; D012657:Self-Help Groups