title: Children who lost a parent as a result of the terrorist attacks of September 11, 2001: registry construction and population description.
abstract: Children who experience traumatic bereavement in the context of catastrophic disasters are at increased risk for developing post-disaster problems. Despite massive loss of life on September 11th, 2001, no public data were collected on those children who lost a parent in the multiple terrorist attacks. Such a registry would be an important public health tool to help mitigate the consequences of traumatic bereavement and to guide health surveillance efforts. As information about affected individuals was fragmented and difficult to congregate, we constructed our registry by conducting systematic public record searches and data exchanges with key stakeholders to identify, locate, and characterize all the 9/11 bereaved children. We identified 1,363 victims who were parents of minor children, and 2,752 bereaved children below age 18. In addition to reporting important identifying data on these children, this study also demonstrates the feasibility and the potential usefulness of such a registry to support post-disaster service provision and advocacy efforts. The construction of registries of severely affected people post-disaster should become government policy to obviate the need to use ad hoc methods to construct lists of high-risk individuals.
authors.affiliation: Department of Psychiatry, Mount Sinai School of Medicine, Box 1230, One Gustave Levy Place, New York City, NY 10029, USA. claude.chemtob@mssm.edu
authors.forename: Claude M
authors.initials: CM
authors.lastname: Chemtob
authors.forename: David L
authors.initials: DL
authors.lastname: Conroy
authors.forename: Carl J
authors.initials: CJ
authors.lastname: Hochauser
authors.forename: Danielle
authors.initials: D
authors.lastname: Laraque
authors.forename: Josette
authors.initials: J
authors.lastname: Banks
authors.forename: James
authors.initials: J
authors.lastname: Schmeidler
authors.forename: Maan
authors.initials: M
authors.lastname: Dela Cruz
authors.forename: William C
authors.initials: WC
authors.lastname: Nelsen
authors.forename: Philip J
authors.initials: PJ
authors.lastname: Landrigan
mesh_terms: D001601:Bereavement; D002648:Child; D006801:Humans; D010290:Parents; D011634:Public Health; D012042:Registries; D047851:September 11 Terrorist Attacks / Q000706:statistics & numerical data*; D014481:United States