title: Juggling and struggling: a preliminary work-life study of mothers with adolescents who have developmental disabilities.
abstract: A focus group study was conducted to develop an understanding of the experiences of mothers who are trying to balance employment with caring for an adolescent with developmental disabilities. Mothers reported facing considerable difficulties balancing work and caregiving responsibilities because support services rapidly declined when their child reached adolescence. Service cuts were related to the fact that adolescents are expected to be able to care for themselves, despite the fact that for many adolescents with disabilities, this is not possible. The mothers also reported that the preponderance of the responsibility for arranging care for their children was theirs and was not shouldered by their partners. Policy implications are discussed.
authors.affiliation: School of Social Work, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA. parish@email.unc.edu
authors.forename: Susan L
authors.initials: SL
authors.lastname: Parish
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D002648:Child; D017281:Cost of Illness; D002658:Developmental Disabilities; D004651:Employment / Q000706:statistics & numerical data*; D005192:Family Health; D005260:Female; D006801:Humans; D008875:Middle Aged; D009035:Mothers / Q000523:psychology* / Q000706:statistics & numerical data*; D016487:Parenting; D011795:Surveys and Questionnaires