title: Patients and families go on with life when a terminal illness enforces hospitalization: an interpretive phenomenological study.
abstract: This interpretive phenomenological study explored patients' with a terminal illness and their family members' experiences of hospital end-of-life care. Findings show that patients and families led unique lives, and even when a terminal illness intruded and enforced a hospital stay, they held on to familiar practices. Patients and family members felt best cared for when healthcare providers supported them in their endeavors to go on with their usual life as much as possible. To achieve this, professionals are challenged to recognize patients and family members as persons and to integrate the latter's lived experiences in their care interventions.
authors.affiliation: Institute of Nursing Science, University Basel, Switzerland. elisabeth.spichiger@unibas.ch
authors.forename: Elisabeth
authors.initials: E
authors.lastname: Spichiger
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D005192:Family Health; D005260:Female; D006760:Hospitalization; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D011379:Prognosis; D013727:Terminal Care