Defining the spectrum of genome policy.
Many achievements in the genome sciences have been facilitated by policies that have prioritized genome research, secured funding and raised public and health-professional awareness. Such policies should address ethical, legal and social concerns, and are as important to the scientific and commercial development of the field as the science itself. On occasion, policy issues take precedence over science, particularly when impasses are encountered or when public health or money is at stake. Here we discuss the spectrum of current issues and debates in genome policy, and how to actively engage all affected stakeholders to promote effective policy making.
Haga
Susanne B
SB
Institute for Genome Sciences & Policy, Duke University, 101 Science Drive, Box 3382, Durham, North Carolina 27708, USA. susanne.haga@duke.edu
Willard
Huntington F
HF
D026683:Advisory Committees; D003362:Cost-Benefit Analysis; D005378:Financial Support; D015894:Genome, Human; D006291:Health Policy; D016045:Human Genome Project; D006801:Humans; D011050:Policy Making; D011634:Public Health