title: Rett syndrome. Guidelines for individual intervention.
abstract: Rett syndrome (RS) is a neurological disorder affecting mainly females. RS is considered the second most frequent cause for severe and complex neurological dysfunction in females after Down syndrome. Patients with RS are characterized by an array of neurological and orthopedic difficulties that mandate an intensive therapeutic intervention program for the duration of the individual's life. Many aspects of the client's well-being and functional status depend on the therapeutic intervention she receives and on her compliance to it. This article will briefly review common intervention approaches for individuals with RS and their present day's application. Due to the notion that individual intervention is the foundation on which progress and development of the functional gains rests, the present article will place basic guidelines for individual intervention with clients with RS. The article is mainly based on the clinical experience of the author and others working with individuals with RS.
authors.affiliation: Israeli Rett Syndrome Association, National Evaluation Team, National Rett Syndrome Clinic, Chaim Sheba Medical Center, Ramat-Gan, Israel. ml_pt_rs@netvision.net.il
authors.forename: Meir
authors.initials: M
authors.lastname: Lotan
mesh_terms: D000529:Complementary Therapies; D005260:Female; D006801:Humans; D007557:Israel; D010348:Patient Care Team; D026741:Physical Therapy Modalities; D017410:Practice Guidelines as Topic; D011788:Quality of Life; D015518:Rett Syndrome / Q000503:physiopathology / Q000523:psychology / Q000534:rehabilitation*; D012720:Severity of Illness Index