Methods for measuring personal costs associated with vision impairment.
OBJECTIVE
To describe and evaluate the procedures used to collect personal costs associated with vision impairment using diaries.


METHODS
Participants with impaired vision (VA < 6/12 or > or = 6/12 with restricted visual fields) were recruited. Twelve-monthly diaries, provided in large print and electronic format (with audio and Braille instruction manuals and personal assistance), were used to record vision-related expenditures grouped under four categories. Two questionnaires were used to collect additional information and to test the validity of the self-reported costs.


RESULTS
Of 227 people who consented to participate, 66% (n = 150; 91 females; mean age = 64.8 years) completed > or = 3 monthly diaries. Of the 150 eligible participants, 68% completed the diaries over 12 months, indicating a relatively high completion rate. The median total cost was AUD 2,417 dollars per annum and median values for the four expenditure categories ranged between AUD 206 dollars and AUD 872 dollars per annum. The data were consistent across different months with no significant difference found between any monthly comparison (t-test; p > Bonferroni-adjusted value). Data at 1, 3, and 6 months, extrapolated to annual figures, showed no significant difference from annual total costs, indicating consistency in the data collection periods. A significant association was found between diary data and similar entries in the follow-up questionnaire, confirming the validity of the recorded expenditures (Spearman; p < 0.01). Participants commented that the diary method was useful to obtain personal costs.


CONCLUSIONS
A high response rate was achieved by using diaries and additional assistance methods. The diary provided an accurate and reliable strategy to determine the major personal costs associated with vision impairment.
Chou
Shiao-Lan
SL
Department of Ophthalmology, Centre for Eye Research Australia, University of Melbourne & Vision CRC-Sydney, Australia.
Lamoureux
Ecosse
E
Keeffe
Jill
J
D000368:Aged; D000369:Aged, 80 and over; D001766:Blindness / Q000191:economics*; D017281:Cost of Illness; D003365:Costs and Cost Analysis / Q000379:methods; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008875:Middle Aged; D010865:Pilot Projects; D011795:Surveys and Questionnaires; D019987:Persons with Visual Disabilities