title: Provision of breast cancer risk information to women at the lower end of the familial risk spectrum.
abstract: BACKGROUND
  Breast cancer family clinics provide risk information as one of their key functions. Many referrals to these clinics are 'low-risk' women.
  
  
  OBJECTIVE
  It was the aim of this study to report on the generic risk status letters and printed materials (in the form of leaflets) provided to this category of counselees by UK cancer genetics centres.
  
  
  METHODS
  A postal survey was conducted requesting information materials from genetic centres.
  
  
  RESULTS
  Personalized risk letters and/or printed materials were received from 16 of 22 familial cancer centres in the UK. Personalized risk letters and printed materials currently provided to these counselees display inconsistencies and over-simplification that may lead to misunderstanding.
  
  
  CONCLUSIONS
  There is a need for collaboration among cancer genetics centres to design more helpful and consistent literature.
authors.affiliation: University of St Andrews, St Andrews, Scotland, UK. go10@st-andrews.ac.uk
authors.forename: Gozde
authors.initials: G
authors.lastname: Ozakinci
authors.forename: Gerry
authors.initials: G
authors.lastname: Humphris
authors.forename: Michael
authors.initials: M
authors.lastname: Steel
mesh_terms: D001943:Breast Neoplasms / Q000175:diagnosis* / Q000235:genetics; D003625:Data Collection; D005192:Family Health; D005260:Female; D005817:Genetic Counseling; D006801:Humans; D015995:Prevalence; D018570:Risk Assessment; D011795:Surveys and Questionnaires; D006113:United Kingdom