title: The impact of HETF for adults with neurological conditions.
abstract: The number of patients receiving home enteral tube feeding (HETF) in the UK is growing, despite little evidence that it improves survival or quality of life in many cases. There is also little work that has been done to explore the emotional impact of this invasive procedure on patients or carers. This article draws on a literature review to highlight some of the issues that may arise with patients receiving HETF, focusing particularly on the largest group of these patients: those with neurological conditions. The literature shows that emotional adjustments are required for both patient and carers following the placement of a percutaneous endoscopic gastrostomy. Therefore consideration of the likely emotional and psychological consequences of home enteral tube feeding has implications for clinical practice during the decision-making process for appropriate patient selection. There is a need for community nurses to consider these issues and ensure appropriate support is provided for patients and their carers.
authors.affiliation: School of Nursing, University of Central Lancashire, Preston. ambrotherton@uclan.ac.uk
authors.forename: Ailsa
authors.initials: A
authors.lastname: Brotherton
authors.forename: Christina
authors.initials: C
authors.lastname: Lyons
mesh_terms: D000223:Adaptation, Psychological; D017028:Caregivers / Q000523:psychology; D003152:Community Health Nursing / Q000458:organization & administration*; D004750:Enteral Nutrition / Q000009:adverse effects / Q000379:methods* / Q000451:nursing* / Q000523:psychology; D019317:Evidence-Based Medicine; D005190:Family / Q000523:psychology; D005773:Gastroscopy; D005774:Gastrostomy; D006301:Health Services Needs and Demand; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D009422:Nervous System Diseases / Q000401:mortality / Q000523:psychology / Q000628:therapy*; D024802:Nurse's Role; D009730:Nursing Assessment; D017063:Outcome Assessment, Health Care; D018579:Patient Selection; D011788:Quality of Life; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control; D015996:Survival Rate; D006113:United Kingdom / Q000453:epidemiology