Management of the child with weakness.
With increased life expectancy associated with improved respiratory care and research advances in pediatric neuromuscular diseases leading to clinical trials involving potential curative treatments, the goal in the care of the child with weakness is to optimize survival and quality of life. The care of the child with weakness includes management of motor dysfunction because of weakness, orthopedic complications of contractures and scoliosis, and comorbid complications specific to each neuromuscular disease. Optimal holistic integrative care of the multisystemic problems of such patients is best provided by the collaborative efforts of health care providers of an interdisciplinary team.
Wong
Brenda L
BL
Department of Pediatrics, Division of Pediatric Neurology, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH 45229, USA. brenda.wong@chmcc.org
D019468:Disease Management; D005221:Fatigue / Q000209:etiology*; D006801:Humans; D009468:Neuromuscular Diseases / Q000175:diagnosis / Q000628:therapy; D010372:Pediatrics; D011788:Quality of Life; D012944:Social Support