Assistive technology use among adolescents and young adults with spina bifida.
OBJECTIVE
We sought to determine the use of assistive technology among a population of individuals with spina bifida.


METHODS
We performed a descriptive analysis of individuals aged 13 to 27 years diagnosed with myelomeningocele (n=348) using data obtained from an existing database at Children's Hospital and Regional Medical Center, Seattle, Washington. We summarized disease characteristics, utilization of assistive technology, community and self-care independence, and other variables.


RESULTS
Eighty-four percent of the respondents lived with at least 1 of their natural parents. Fifty-seven percent used wheelchairs, 35% used braces, and 23% used walking aids. Independent self-care was a common skill, but 72% reported limited participation in structured activities. Half were aged 18 years or older; of those, only 50% had completed high school and 71% were unemployed. Those aged younger than 18 years were all still in school (100%).


CONCLUSIONS
Adolescents and young adults with spina bifida rely on assistive technology and specialized care routines to maintain their health. Assistive technology use for mobility is common; little is known about secondary complications associated with use of these technologies or the use of assistive technology to address learning disabilities and other societal barriers. Underutilization of assistive technology could delay successful transitions to independent living and community participation.
Johnson
Kurt L
KL
School of Medicine, University of Washington, Seattle, WA 98195, USA. kjohnson@u.washington.edu
Dudgeon
Brian
B
Kuehn
Carrie
C
Walker
William
W
D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D001107:Architectural Accessibility; D012090:Cumulative Trauma Disorders / Q000209:etiology; D051341:Dependent Ambulation; D004779:Environment Design; D005260:Female; D006776:Hospitals, Pediatric; D006801:Humans; D008297:Male; D008591:Meningomyelocele / Q000503:physiopathology / Q000523:psychology / Q000534:rehabilitation*; D051346:Mobility Limitation; D010548:Personal Health Services; D012648:Self Care; D012656:Self-Help Devices / Q000009:adverse effects / Q000145:classification / Q000706:statistics & numerical data*; D012934:Social Isolation; D012944:Social Support; D016135:Spinal Dysraphism / Q000503:physiopathology / Q000523:psychology / Q000534:rehabilitation*; D034941:Upper Extremity / Q000503:physiopathology; D014861:Washington