title: An extensive long term follow-up of a cohort of patients with hypoplasia of the left heart.
abstract: We report the results of follow-up of the complete cohort of Norwegian children born in the period from 1987 through 1998 in whom there was the intention to treat surgically hypoplasia of the left heart using the Norwood sequence of operations. Of the 54 children, 21 are alive. Of these, 15 have been extensively studied, while the medical state of all the remaining survivors is known from reports from other hospitals. Of the survivors, the majority have reasonably acceptable cardiac and haemodynamic function, but significant neurological and neuropsychological morbidity is identified within the group as a whole, which requires special attention from qualified personnel of various kinds.
authors.affiliation: Department of Pediatric Cardiology, Section for Neurology, Rikshospitalet, Oslo, Norway. petter.hagemo@rikshospitalet.no
authors.forename: Petter S
authors.initials: PS
authors.lastname: Hagemo
authors.forename: Anne-Britt
authors.initials: AB
authors.lastname: Skarbø
authors.forename: Magnhild
authors.initials: M
authors.lastname: Rasmussen
authors.forename: Per Morten
authors.initials: PM
authors.lastname: Fredriksen
authors.forename: Stein
authors.initials: S
authors.lastname: Schage
mesh_terms: D002648:Child; D002675:Child, Preschool; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D018636:Hypoplastic Left Heart Syndrome / Q000401:mortality / Q000601:surgery*; D007407:Interviews as Topic; D008297:Male; D009664:Norway / Q000453:epidemiology; D016896:Treatment Outcome