[Risk communication through genetic counselling: requirements and problems].
Genetic counselling is the single most important instrument for the individual communication of genetic risks. Beyond medical and psychosocial purposes in terms of preparing diagnostic measures and coping with results, genetic counselling also serves as a means to ensure the clients' decision autonomy through adequately informed consent. Accordingly, indispensable preconditions of the counselling process are voluntariness, individuality, non-directiveness, and respect of the right not to know. However, the requirement that any genetic diagnosis should be embedded into genet ic counselling is all too often neglected in today's reality of medicine. Consequently, there is urgent need of legislation ensuring mandatory counselling at least before prenatal and predictive genetic testing. Additionally, clear standards must be established and enforced for the quality of the counselling process as well as for the qualification of counsellors, and sufficient personal and institutional resources must be provided.
Henn
Wolfram
W
Institut für Humangenetik, Universität des Saarlandes, Homburg/Saar, BRD. wolfram.henn@uniklinikum-saarland.de
Schindelhauer-Deutscher
H J
HJ
D003142:Communication; D005817:Genetic Counseling / Q000331:legislation & jurisprudence / Q000379:methods*; D030342:Genetic Diseases, Inborn / Q000235:genetics* / Q000517:prevention & control; D020022:Genetic Predisposition to Disease / Q000235:genetics / Q000517:prevention & control / Q000523:psychology; D005820:Genetic Testing / Q000331:legislation & jurisprudence / Q000379:methods; D005858:Germany; D006801:Humans; D007258:Informed Consent / Q000331:legislation & jurisprudence; D011785:Quality Assurance, Health Care / Q000331:legislation & jurisprudence