title: Critical evaluation of the use of research tools in evaluating quality of life for people with schizophrenia.
abstract: Schizophrenia may lead to impairments in many aspects of life, including physical, cognitive, and role functioning. The subjective quality of life of people with schizophrenia has been shown to be lower than in the general population and appropriate patient-assessed health outcome measures are necessary to capture the distress and disability experienced by people living with a serious mental illness. Although psychiatry has been slow to become involved in quality of life measurement, the use of quality of life instruments has now been recognized as a means of evaluating the outcome of care interventions, in terms of symptoms and functioning. This paper evaluates the effectiveness of two widely used instruments: The Medical Outcomes Study Short Form Health Survey (SF-36) and The Lancashire Quality of Life Profile (LQoLP) in terms of reliability and validity in measuring the quality of life of people with schizophrenia. The LQoLP appeared to be best suited for evaluation of care programmes, whereas the SF-36 was more appropriate for medical trials, comparisons between patient groups, and assessment of the direct consequences of treatment on health and function. Subjective quality of life should, however, be considered to be distinct from clinical status and quality of life assessment should include the broadest range of indicators, to reflect the holistic ethos of mental health nursing.
authors.affiliation: Centre for Mental Health Studies, School of Health Science, University of Wales Swansea, Swansea, South Wales, UK. j.l.hewitt@swan.ac.uk
authors.forename: Jeanette
authors.initials: J
authors.lastname: Hewitt
mesh_terms: D000203:Activities of Daily Living; D003625:Data Collection / Q000379:methods / Q000592:standards; D006304:Health Status; D006306:Health Surveys; D006694:Holistic Health; D006801:Humans; D007406:Interview, Psychological / Q000379:methods / Q000592:standards; D008603:Mental Health; D009730:Nursing Assessment / Q000379:methods / Q000592:standards; D017063:Outcome Assessment, Health Care / Q000379:methods / Q000592:standards; D015397:Program Evaluation / Q000379:methods / Q000592:standards; D011568:Psychiatric Nursing / Q000379:methods / Q000592:standards; D011570:Psychiatry / Q000379:methods* / Q000592:standards; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D012106:Research / Q000592:standards; D012107:Research Design; D012559:Schizophrenia / Q000175:diagnosis / Q000628:therapy; D012565:Schizophrenic Psychology; D011795:Surveys and Questionnaires / Q000592:standards