title: Lived experiences of mothers caring for children with thalassemia major in Thailand.
abstract: OBJECTIVE
  Thalassemic patients must be given continuous treatment throughout their lives due to the physical and psychological effects of their disorder; their families also are impacted. This qualitative study explored the lived experiences of 15 mothers of children with thalassemia major by conducting semistructured interviews; the data were analyzed utilizing content analysis.
  
  
  CONCLUSIONS
  Six themes were identified: lack of knowledge about thalassemia, psychosocial problems, concerns for the future, social support systems, financial difficulty, and the effectiveness of healthcare services.
  
  
  CONCLUSIONS
  These findings suggest that a holistic, culturally sensitive nursing approach should be considered when caring for children with thalassemia.
authors.affiliation: Community Health Department, Siam University, Thailand. suksiri_pr@hotmail.com
authors.forename: Suksiri
authors.initials: S
authors.lastname: Prasomsuk
authors.forename: Arunee
authors.initials: A
authors.lastname: Jetsrisuparp
authors.forename: Thawalwong
authors.initials: T
authors.lastname: Ratanasiri
authors.forename: Amornrat
authors.initials: A
authors.lastname: Ratanasiri
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D002675:Child, Preschool; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D012944:Social Support; D013785:Thailand; D017086:beta-Thalassemia / Q000451:nursing*