title: A proposed legal framework for addressing privacy for patient controlled health records in pediatrics.
abstract: Patient controlled health records(PCHRs) provide widespread and flexible access to integrated medical information. Unique legal challenges arise where the patient is a minor. Variations in laws and statutes concerning minor's rights to privacy and confidentiality, and institutions' local interpretations of them, need to be integrated in the principles governing PCHRs. We propose a legal framework to guide the development of access policies for PCHRs to ensure appropriate privacy and confidentiality protection surrounding minors.
authors.affiliation: Children's Hospital, Boston, Harvard Medical School, Boston, Massachusetts, USA.
authors.forename: Fabienne
authors.initials: F
authors.lastname: Bourgeois
authors.forename: Patrick
authors.initials: P
authors.lastname: Taylor
authors.forename: Kenneth
authors.initials: K
authors.lastname: Mandl
mesh_terms: D002648:Child; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D006801:Humans; D016347:Medical Records Systems, Computerized / Q000331:legislation & jurisprudence*; D010372:Pediatrics / Q000331:legislation & jurisprudence; D018907:Privacy / Q000331:legislation & jurisprudence; D014481:United States