Experiences with an interoperable data acquisition platform for multi-centric research networks based on HL7 CDA.
A remote data entry (RDE) module was successfully integrated within a Web-based telemedicine system in a German multi-centric research network for a rare disease called Epidermolysis Bullosa. The use of standards like XML and HL7 CDA (Clinical Document Architecture) for structured data storage, guarantees long-term accessibility and high level interoperability.
Klein
A
A
Department of Medical Informatics, University Erlangen-Nuremburg, Germany.
Ganslandt
T
T
Brinkmann
L
L
Spitzer
M
M
Ueckert
F
F
Prokosch
H U
HU
D035843:Biomedical Research / Q000458:organization & administration*; D003195:Computer Communication Networks / Q000592:standards; D003625:Data Collection; D004820:Epidermolysis Bullosa; D006801:Humans; D020407:Internet; D008498:Medical Record Linkage / Q000592:standards; D035583:Rare Diseases; D018511:Systems Integration; D017216:Telemedicine