title: Family caregiving in the last years of life: positive experiences in the midst of suffering.
abstract: Rising awareness of the physical and emotional toll of caregiving for a loved one highlights the need for health and human service providers to be able to effectively address the needs of caregivers. Through the Caregiving Near Life's End national caregiver research and education project, caregivers shared their experiences, needs, and hopes as the basis for developing tools to help other caregivers. Their wisdom about the challenges and the meaningful opportunities that the last years of life bring can help each of us develop skills to serve families who are living with illness, change, and loss in a better way.
authors.affiliation: The Hospice Institute of the Florida Suncoast, Clearwater 33760, USA. kathyegan@thehospice.org
authors.forename: Kathleen A
authors.initials: KA
authors.lastname: Egan
authors.forename: Gay Lynn S
authors.initials: GL
authors.lastname: Horvath
mesh_terms: D000223:Adaptation, Psychological; D017028:Caregivers / Q000523:psychology; D005431:Florida; D017051:Hospice Care; D006801:Humans; D011368:Professional-Family Relations; D012944:Social Support