A proposed legal framework for addressing privacy for patient controlled health records in pediatrics.
Patient controlled health records(PCHRs) provide widespread and flexible access to integrated medical information. Unique legal challenges arise where the patient is a minor. Variations in laws and statutes concerning minor's rights to privacy and confidentiality, and institutions' local interpretations of them, need to be integrated in the principles governing PCHRs. We propose a legal framework to guide the development of access policies for PCHRs to ensure appropriate privacy and confidentiality protection surrounding minors.
Bourgeois
Fabienne
F
Children's Hospital, Boston, Harvard Medical School, Boston, Massachusetts, USA.
Taylor
Patrick
P
Mandl
Kenneth
K
D002648:Child; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D006801:Humans; D016347:Medical Records Systems, Computerized / Q000331:legislation & jurisprudence*; D010372:Pediatrics / Q000331:legislation & jurisprudence; D018907:Privacy / Q000331:legislation & jurisprudence; D014481:United States