title: Experiences with an interoperable data acquisition platform for multi-centric research networks based on HL7 CDA.
abstract: A remote data entry (RDE) module was successfully integrated within a Web-based telemedicine system in a German multi-centric research network for a rare disease called Epidermolysis Bullosa. The use of standards like XML and HL7 CDA (Clinical Document Architecture) for structured data storage, guarantees long-term accessibility and high level interoperability.
authors.affiliation: Department of Medical Informatics, University Erlangen-Nuremburg, Germany.
authors.forename: A
authors.initials: A
authors.lastname: Klein
authors.forename: T
authors.initials: T
authors.lastname: Ganslandt
authors.forename: L
authors.initials: L
authors.lastname: Brinkmann
authors.forename: M
authors.initials: M
authors.lastname: Spitzer
authors.forename: F
authors.initials: F
authors.lastname: Ueckert
authors.forename: H U
authors.initials: HU
authors.lastname: Prokosch
mesh_terms: D035843:Biomedical Research / Q000458:organization & administration*; D003195:Computer Communication Networks / Q000592:standards; D003625:Data Collection; D004820:Epidermolysis Bullosa; D006801:Humans; D020407:Internet; D008498:Medical Record Linkage / Q000592:standards; D035583:Rare Diseases; D018511:Systems Integration; D017216:Telemedicine