An 'overwhelming illness': women's experiences of learning to live with chronic fatigue syndrome/myalgic encephalomyelitis.
The processes through which people learn to live with CFS/ME are poorly understood and have not been rigorously explored within the literature. Semi-structured interviews were conducted with eight women and analysed using interpretative phenomenological analysis. Participants initially described being 'overwhelmed' by CFS/ME. Attempts at seeking help were unsatisfactory and participants described feeling let down and disbelieved. Participants reacted to this by identifying types of 'self-help' and assertively taking more responsibility for their illness and its treatment. Acquiring social support and greater knowledge were key mediating factors in the emergence of control and acceptance. The relevance of the themes to existing research and the implications for clinical practice are considered.
Edwards
Catherine R
CR
Barnsley Primary Care Trust, UK. catherine.edwards@barnsleypct.nhs.uk
Thompson
Andrew R
AR
Blair
Alan
A
D000328:Adult; D001294:Attitude to Health; D017281:Cost of Illness; D015673:Fatigue Syndrome, Chronic / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007407:Interviews as Topic; D008875:Middle Aged; D012648:Self Care / Q000523:psychology; D018434:Sickness Impact Profile; D012944:Social Support; D006113:United Kingdom