Perceived adherence to prescribed treatment in juvenile idiopathic arthritis over a one-year period.
OBJECTIVE
To document perceived adherence to treatment (taking medications and performing exercises) in patients with juvenile idiopathic arthritis (JIA) over a 1-year period and to identify related factors.


METHODS
We surveyed parents of patients with JIA at the Montreal Children's Hospital and British Columbia's Children's Hospital in Vancouver. Parents were asked to respond to a series of questionnaires every 3 months over a 12-month period. Perceived adherence was evaluated on a 100-mm visual analog scale (VAS) in the Parent Adherence Report Questionnaire (PARQ). Parental coping, distress, child function, disease severity and duration, perceived helpfulness of treatment, problems encountered, and sociodemographic data were also assessed.


RESULTS
The mean age of our sample of 175 children was 10.2 years; mean age at diagnosis was 6.1 years and mean disease duration was 4.1 years. Perceived adherence to medications was consistently high, with average adherence at baseline, 3, 6, 9, and 12 months being 86.1, 91.7, 90.4, 92.0, and 88.8, respectively, on the PARQ VAS. Perceived adherence to exercise was lower but remained steady, with corresponding means of 54.5, 64.1, 61.2, 63.0, and 54.3, respectively. Using generalized estimating equation analysis, factors associated with higher perceived adherence to medications included perceived helpfulness of medications and lower disease severity; those associated with higher perceived adherence to exercise were younger age of the child, child involvement in responsibility for treatment, and higher perceived helpfulness of the treatment.


CONCLUSIONS
Belief in helpfulness of treatment is associated with higher parental perceived adherence to treatment.
Feldman
Debbie Ehrmann
DE
Université de Montréal, Montreal Children's Hospital, McGill University Health Centre, McGill University, Montreal, Quebec, Canada. debbie.feldman@umontreal.ca
de Civita
Mirella
M
Dobkin
Patricia L
PL
Malleson
Pete
P
Meshefedjian
Garbis
G
Duffy
Ciarán M
CM
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D018501:Antirheumatic Agents / Q000627:therapeutic use*; D001171:Arthritis, Juvenile / Q000188:drug therapy*; D002648:Child; D002675:Child, Preschool; D015444:Exercise; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D010349:Patient Compliance; D010465:Perception; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires
D018501:Antirheumatic Agents