title: Adolescent dialysis patient transition to adult care: a cross-sectional survey.
abstract: Adolescent dialysis patients transitioning to adult care are particularly vulnerable, dependent on complex, demanding and life-sustaining treatment. There is little published information on transition practices for this group. Therefore, a survey was carried out to assess the current status. Results are presented for 58 paediatric dialysis centres in North America and Europe. The majority of centres (53%) did not have a fixed cut-off age for transfer. For those that did, it ranged from 17 to 22 years, with the median 20.5 years and mean [+/- standard deviation (SD)] of 19.9 (+/-1.5) years. Only one third of centres reported a transition programme. Less than 20% of young adult patients were perceived to function autonomously at transfer. The paediatric centres had minimal knowledge of resources at the adult receiving sites. For the majority of programs there was a system in place to assist with application for social and health benefits (83%), an adult dialysis unit linked to the paediatric programme (62%) and an opportunity for patients to choose (78%) and visit (83%) the adult unit prior to transfer. Seventy-four percent of centres without a transition programme believed there was a need for one. This is an area clearly in need of attention.
authors.affiliation: Paediatric Dialysis and Renal Transplant Programme, Montreal Children's Hospital, McGill University Health Centre, 2300 rue Tupper, #E222, Montréal, Québec, H3H 1P3, Canada. lorraine.bell@muhc.mcgill.ca
authors.forename: Lorraine
authors.initials: L
authors.lastname: Bell
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services / Q000706:statistics & numerical data; D000328:Adult; D000367:Age Factors; D003430:Cross-Sectional Studies; D005060:Europe; D006296:Health Services / Q000706:statistics & numerical data; D006801:Humans; D009656:North America; D010360:Patient Transfer; D010530:Peritoneal Dialysis / Q000706:statistics & numerical data*; D011795:Surveys and Questionnaires