title: What real outcomes matter to caregivers?
abstract: Two surveys of caregivers of people with dementia were conducted in the U.K. and Poland. Among 64 U.K. carers, cognition, early diagnosis and general practitioner support were of particular concern to those caring for people with early dementia, while former carers were more concerned with pain, comfort and palliative issues. There was very strong support for better workforce training. In Poland, restoration of health and more time off from caring were the most desired outcomes.
authors.affiliation: Quality Research in Dementia, The Alzheimer's Society, London, UK. research@alzheimers.org.uk
authors.forename: Shirley
authors.initials: S
authors.lastname: Nurock
authors.forename: Mirka
authors.initials: M
authors.lastname: Wojciechowska
mesh_terms: D000368:Aged; D000544:Alzheimer Disease / Q000523:psychology / Q000628:therapy*; D017028:Caregivers / Q000523:psychology*; D003258:Consumer Behavior; D003255:Consumer Organizations; D017281:Cost of Illness; D003431:Cross-Cultural Comparison; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006306:Health Surveys; D006801:Humans; D010166:Palliative Care; D011044:Poland; D006113:United Kingdom