title: Calling the question of "possible dying" among nursing home residents: triggers, barriers, and facilitators.
abstract: Glaser and Strauss reported decades ago that in order for a person to be treated as dying, he/she must be defined as dying. Defining nursing home residents as "dying" can be complicated because most residents are in advanced old age with multiple chronic conditions. Using a social construction theoretical framework, this study looks at the step before the declaration of dying, that is, the consideration of the possibility of dying. This qualitative study is a secondary analysis of prospective data collected during 16 months of fieldwork on behalf of 45 nursing home residents whose health was considered declining. The purpose of this paper is to build understanding about the social construction of "possible dying" by reporting triggers that can call the question of possible dying and stimulate a discussion about the nursing home resident's status, prognosis, care options, and preferences. These triggers include: Health status decline; noncompliance with diet or medications; available medical interventions not being well suited for the residents; and family consideration of an out-of-town trip. The paper also reports barriers (family, staff, and disease process) and facilitators to calling the question of possible dying, including families having a sense of treatments they would like to avoid and having the opportunity to talk through options. Findings are discussed in light of basic assumptions of social construction. Implications for social workers include helping residents, families, and staff anticipate and address the possibility of dying, and to reflect these discussion in care plans, as well as the need to be available to help residents and family members with psychosocial issues related to living and dying in the nursing home setting, including the profound issues that can be provoked or exacerbated by resident health status decline and possible dying.
authors: The School of Social Work, 354 North Hall, Aging Studies Program, The University of Iowa, Iowa City, IA 52242, USA. mercedes-bern-klug@uiowa.edu
authors: Mercedes
authors: M
authors: Bern-Klug
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003643:Death; D005260:Female; D006304:Health Status; D006707:Homes for the Aged / Q000458:organization & administration*; D006801:Humans; D008297:Male; D009735:Nursing Homes / Q000458:organization & administration*; D013727:Terminal Care / Q000458:organization & administration*; D009626:Terminology as Topic; D016312:Treatment Refusal