title: Family presence and environmental factors at the time of a patient's death in an ICU.
abstract: BACKGROUND
  In an intensive care unit (ICU), privacy and proximity are reported to be important needs of dying patients and their family members. It is assumed that good communication between the ICU team and families about end-of-life decisions improves the possibilities of meeting families' needs, thus guaranteeing a dignified and peaceful death in accordance with end-of-life care guidelines. The aim of this study was to explore the circumstances under which patients die in Swedish ICUs by reporting on the presence of family and whether patients die in private or shared rooms. An additional aim was to investigate the frequency of end-of-life decisions and whether nurses and family members were informed about such decisions.
  
  
  METHODS
  A questionnaire based on the research questions was completed when a patient died in the 10 ICUs included in the study. Data were collected on 192 deaths.
  
  
  RESULTS
  Forty per cent of the patients died without a next of kin at the bedside and 46% of deaths occurred in a shared room. This number decreased to 37% if a family member was present. Patients without a family member at their bedside received less analgesics and sedatives. There was a significant relationship between family presence, expected death and end-of-life decisions.
  
  
  CONCLUSIONS
  The results indicate the necessity of improving the ICU environment to promote the need for proximity and privacy for dying patients and their families. The study also highlights the risk of underestimating the needs of patients without a next of kin at their bedside at the time of death.
authors: The Sahlgrenska Academy at Göteborg University Institute of Health and Care Sciences, Göteborg, Sweden. isabell.fridh@fhs.gu.se
authors: I
authors: I
authors: Fridh
authors: A
authors: A
authors: Forsberg
authors: I
authors: I
authors: Bergbom
mesh_terms: D000293:Adolescent; D000328:Adult; D032722:Advance Care Planning / Q000706:statistics & numerical data; D000368:Aged; D000369:Aged, 80 and over; D001293:Attitude to Death; D016638:Critical Illness; D003657:Decision Making; D005190:Family / Q000523:psychology*; D005195:Family Relations; D005260:Female; D006272:Health Facility Environment; D006801:Humans; D007362:Intensive Care Units / Q000706:statistics & numerical data*; D007902:Length of Stay / Q000706:statistics & numerical data; D008297:Male; D008875:Middle Aged; D010362:Patients' Rooms / Q000145:classification*; D018907:Privacy / Q000523:psychology*; D011368:Professional-Family Relations; D011795:Surveys and Questionnaires; D013548:Sweden; D013727:Terminal Care / Q000379:methods / Q000523:psychology*; D014789:Visitors to Patients / Q000523:psychology*