title: Parents' perspectives on the impact of the early diagnosis of childhood hearing loss.
abstract: Newborn hearing screening has been widely implemented to improve outcomes for children with permanent hearing loss. This study examined benefits beyond those typically measured clinically, by exploring parents' perceptions of the effects of early/late identification of hearing loss. The parents of 17 children in Ontario, Canada, participated in the study. Seven children were identified through systematic screening and ten through traditional referral practices. All children were in oral rehabilitation programs. The study adopted a qualitative approach, examining parent's views through individual interviews. Purposive sampling was used to select a diverse group of parents to allow a broad range of perspectives to emerge. Benefits of early identification included improved communication development and early access to hearing. Negative aspects of late identification included regret for the family and family stress around the child's language gap. Although, screening programs may offer a seamless transition to audiology services, the transition to intervention services appeared less fluid for some families. Overall, parents strongly support infant hearing screening and identify benefits that are not easily quantifiable through traditional clinical measures.
authors: University of Ottawa, Canada. efitzpatrick@cheo.on.ca
authors: Elizabeth
authors: E
authors: Fitzpatrick
authors: Ian D
authors: ID
authors: Graham
authors: Andrée
authors: A
authors: Durieux-Smith
authors: Doug
authors: D
authors: Angus
authors: Doug
authors: D
authors: Coyle
mesh_terms: D001294:Attitude to Health; D002675:Child, Preschool; D042241:Early Diagnosis; D006312:Hearing Loss, Bilateral / Q000175:diagnosis* / Q000453:epidemiology; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007407:Interviews as Topic; D015997:Neonatal Screening; D010290:Parents; D011795:Surveys and Questionnaires