[Population bio-banks: a juridical analysis based on Icelandic and Estonian experience].
Large-scale collections of human biological samples and associated data are becoming increasingly common as a means of identifying, in a particular population, genetic predispositions to complex diseases that result from an interaction of environmental, lifestyle and genetic factors. This paper compares the recent experiences of Iceland and Estonia in the establishment of population biobanks as well as the specific law passed by both countries to deal with this matter. In the light of this comparative analysis, this paper summarizes the main ethical and policy dilemmas posed by large-scale biobanks and suggests some possible solutions to these new challenges.
Andorno
Roberto
R
Instituto de Etica Biomèdica de la Universidad de Zurich, Zurich, Suiza. andorno@ethik.unizh.ch
D000293:Adolescent; D000328:Adult; D026688:Bioethical Issues; D018070:Biological Specimen Banks / Q000941:ethics* / Q000331:legislation & jurisprudence*; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D004957:Estonia; D005260:Female; D020022:Genetic Predisposition to Disease; D030661:Genetic Privacy; D036281:Genetic Research; D006806:Human Rights; D006801:Humans; D007055:Iceland; D007258:Informed Consent; D008297:Male; D011640:Public Policy