The reported views and experiences of cancer service users from minority ethnic groups: a critical review of the literature.
There is growing evidence of inequalities in access to high-quality cancer services between minority and majority ethnic groups. However, little research has been carried out from the perspective of users from minority ethnic groups themselves. This paper reports a review of the British literature exploring the views and experiences of cancer service users from minority ethnic groups. We reviewed 25 qualitative studies that reported the experiences of people from minority ethnic groups. The studies highlighted significant issues and challenges, including comprehension and communication barriers, a lack of awareness of the existence of services and a perceived failure by providers to accommodate religious and cultural diversity. This paper critically discusses some of the explanations commonly invoked for ethnic inequalities in access to high-quality care, such as the belief that the lack of use of services reflects a lack of need. Despite positive initiatives to respond better to the needs of minority groups, we suggest the impact of these remains highly variable. Institutional racism within services is still much in evidence.
Elkan
R
R
School of Nursing, Postgraduate Division, Medical School, University of Nottingham, Nottingham, UK. ruth.elkan@nottingham.ac.uk
Avis
M
M
Cox
K
K
Wilson
E
E
Patel
S
S
Miller
S
S
Deepak
N
N
Edwards
C
C
Staniszewska
S
S
Kai
J
J
D001294:Attitude to Health; D002173:Cancer Care Facilities / Q000706:statistics & numerical data / Q000600:supply & distribution; D003144:Communication Barriers; D018864:Cultural Diversity; D003695:Delivery of Health Care / Q000592:standards*; D005260:Female; D006297:Health Services Accessibility / Q000592:standards*; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008913:Minority Groups; D009369:Neoplasms / Q000208:ethnology / Q000628:therapy*; D009859:Oncology Nursing / Q000458:organization & administration / Q000592:standards