Attitudes of mothers towards their child with Down syndrome before and after the introduction of prenatal diagnosis.
In 1970, before the introduction of prenatal diagnosis of chromosome anomalies, an unpublished questionnaire study concerning the social and emotional situation of mothers of children with Down syndrome was conducted in southern Germany. To assess the psychosocial impact of the availability of prenatal diagnosis on parents of genetically handicapped children, we re-evaluated and repeated the 1970 study over 30 years later. Although mothers' feelings of guilt for having a child with disabilities remained on a low level, today's mothers have a stronger feeling of being involuntarily segregated in society. On the other hand, they more often experience support and respect from outside, particularly through self-support groups; moreover, tendencies of active withdrawal from social life have decreased.
Lenhard
Wolfgang
W
Institute of Special Education, Wuerzburg University, Wuerzburg, Germany.
Breitenbach
Erwin
E
Ebert
Harald
H
Schindelhauer-Deutscher
H Joachim
HJ
Zang
Klaus D
KD
Henn
Wolfram
W
D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D004314:Down Syndrome / Q000175:diagnosis*; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D009034:Mother-Child Relations; D009035:Mothers / Q000523:psychology*; D011247:Pregnancy; D011296:Prenatal Diagnosis; D011795:Surveys and Questionnaires; D013997:Time Factors