Nursing issues in caring for children with moyamoya vasculopathy and their families.
Moyamoya vasculopathy is a rare, progressive neurovascular condition that may cause recurrent transient ischemic attacks, ischemic strokes, hemorrhagic strokes, or neurologic decline in children. Children with moyamoya disease have no clear contributing etiology, but children with moyamoya syndrome have contributory diagnoses such as Down syndrome or neurofibromatosis. The concerns and lived experiences of children affected by this disease and their families have not been well explored or addressed in the nursing literature. Nurses who understand this lived experience increase their own knowledge of the disease so they can manage the complex medical issues, educate families about the disease, and provide emotional support.
Hune
Selina Y C
SY
Sunnybrook Health Science Centre, Toronto, Ontario, Canada. selina.hune@sunnybrook.ca
deVeber
Gabrielle A
GA
MacGregor
Daune L
DL
Dirks
Peter B
PB
Yu
Herta Wai-Ham
HW
Soman
Teesta B
TB
Allen
Anita
A
Golomb
Meredith R
MR
D002648:Child; D004509:Education, Nursing, Continuing; D022143:Family Nursing / Q000379:methods*; D006801:Humans; D009072:Moyamoya Disease / Q000451:nursing* / Q000601:surgery / Q000628:therapy; D010371:Pediatric Nursing / Q000379:methods*