ACTIVLIM: a Rasch-built measure of activity limitations in children and adults with neuromuscular disorders.
A common measure of activity limitations for both children and adults with neuromuscular disorders was developed using the Rasch model. A self-reported questionnaire containing daily activities was submitted to 245 adult patients and to the parents of 124 affected children from the two major Belgian communities. They were asked to provide their perceived difficulty in performing daily activities on a three-level scale. The 22 items of the final scale define a unidimensional and linear measure of activity limitations and show a continuous progression in their difficulty. The item difficulty hierarchy is invariant with regard to the diagnosis, community, gender and age. The scale exhibits a good precision, since the 22 items are well targeted on our sample (r=0.96); furthermore, it is reproducible over time (ICC=0.93). The patients' measures are related to the Functional Independence Measure motor score (rho=0.85), to the Brooke (rho=-0.63) grade and to the Vignos (rho=-0.83) grade.
Vandervelde
Laure
L
Laboratory of Rehabilitation and Physical Medicine, Université catholique de Louvain, Unité de Réadapatation et de Médecine Physique (READ 5375), Tour Pasteur, 53, Av Mounier, Brussels 1200, Belgium.
Van den Bergh
Peter Y K
PY
Goemans
Nathalie
N
Thonnard
Jean-Louis
JL
D000203:Activities of Daily Living / Q000523:psychology; D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D002648:Child; D004185:Disability Evaluation; D005260:Female; D006306:Health Surveys; D006801:Humans; D008297:Male; D008875:Middle Aged; D015233:Models, Statistical; D009468:Neuromuscular Diseases / Q000150:complications* / Q000523:psychology; D011594:Psychometrics; D015203:Reproducibility of Results; D018434:Sickness Impact Profile