Prevalence of cervical dystonia and spasmodic torticollis in the United States general population.
OBJECTIVE
To examine the prevalence of cervical dystonia (CD) in the US population.


METHODS
A survey consisting of relevant demographic and CD-related questions was e-mailed to 2 million people selected from the Shopper's Voice database.


RESULTS
Across a census-weighted sample, 0.280% of 60,062 respondents (79% female, 92% Caucasian) reported a diagnosis of CD and 0.170% reported a diagnosis of ST, indicating possible prevalence of 0.390% of either/both diagnoses. Less than half (42.7%) of those who reported either diagnosis were receiving treatment.


CONCLUSIONS
CD is potentially under-diagnosed and under-treated; approaches to increase awareness of CD and its treatments are needed.
Jankovic
J
J
Parkinson's Disease Center and Movement Disorders Clinic, Department of Neurology, Baylor College of Medicine, Houston, TX 77030, USA. josephj@bcm.tmc.edu
Tsui
J
J
Bergeron
C
C
D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D011159:Population Surveillance; D012189:Retrospective Studies; D014103:Torticollis / Q000453:epidemiology*; D014481:United States / Q000453:epidemiology