title: Parents' and children's perspectives of a children's hospice bereavement program.
abstract: The provision of some form of bereavement services is an integral part of any pediatric hospice program. The Canuck Place hospice program has offered bereavement services since it began in 1995. A mixed-method evaluation of the impact of the Canuck Place program on the families it served during its first two-and-a-half years of operation was conducted. The bereavement services reviewed included follow-up care for families, and bereavement support groups for children and their parents. Eight children were interviewed in the initial phase, and nine completed a survey questionnaire; 28 parents rated their level of satisfaction with various aspects of their experience with the parent support group. Findings indicated that the follow-up component of the program was well-received by family members. When assessing their group experiences, children and parents most appreciated the support and understanding they received, the freedom to express themselves, a diminished sense of isolation, and the normalization of their emotions. Practical considerations when offering bereavement support groups are discussed in this paper.
authors: Department of Family Health Care Nursing, University of California, San Francisco 94143-0606, USA.
authors: Betty
authors: B
authors: Davies
authors: John
authors: J
authors: Collins
authors: Rose
authors: R
authors: Steele
authors: Karen
authors: K
authors: Cook
authors: Vivian
authors: V
authors: Distler
authors: Amy
authors: A
authors: Brenner
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D001601:Bereavement; D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D002673:Child, Hospitalized / Q000523:psychology*; D005260:Female; D006301:Health Services Needs and Demand; D017051:Hospice Care / Q000458:organization & administration*; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D011368:Professional-Family Relations; D012944:Social Support