title: Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis.
abstract: The Patient Perspective Workshop at OMERACT 8 considered evidence for the importance of fatigue to patients with rheumatoid arthritis (RA) and whether measurement of fatigue meets the requirements of the OMERACT filter. The workshop participants included 20 patients from 10 countries and 60 other OMERACT participants. Introductory papers and detailed notes for discussion group members set out the evidence from the literature and from recent analyses of clinical study data available to several participants. The workshop concluded that fatigue is a symptom that is important to patients, is commonly reported by patients, is often severe, can be measured by several current instruments that pass the OMERACT filter, is responsive to some interventions, and provides information additional to that commonly obtained from currently used outcomes. The final OMERACT plenary session endorsed by a very large majority (89%) the proposal that, in addition to the "core set" of outcome measures currently in widespread use, fatigue should be measured in future studies of RA whenever possible.
authors.affiliation: University of Bristol Academic Rheumatology Unit, and United Bristol Healthcare NHS Trust, Bristol, UK. John.Kirwan@Bristol.ac.uk
authors.forename: John R
authors.initials: JR
authors.lastname: Kirwan
authors.forename: Patricia
authors.initials: P
authors.lastname: Minnock
authors.forename: Ade
authors.initials: A
authors.lastname: Adebajo
authors.forename: Barry
authors.initials: B
authors.lastname: Bresnihan
authors.forename: Ernest
authors.initials: E
authors.lastname: Choy
authors.forename: Maarten
authors.initials: M
authors.lastname: de Wit
authors.forename: Mieke
authors.initials: M
authors.lastname: Hazes
authors.forename: Pam
authors.initials: P
authors.lastname: Richards
authors.forename: Kenneth
authors.initials: K
authors.lastname: Saag
authors.forename: Maria
authors.initials: M
authors.lastname: Suarez-Almazor
authors.forename: George
authors.initials: G
authors.lastname: Wells
authors.forename: Sarah
authors.initials: S
authors.lastname: Hewlett
mesh_terms: D001172:Arthritis, Rheumatoid / Q000150:complications* / Q000175:diagnosis / Q000628:therapy; D023381:Endpoint Determination; D005221:Fatigue / Q000175:diagnosis / Q000209:etiology* / Q000628:therapy; D006801:Humans; D007391:International Cooperation; D017063:Outcome Assessment, Health Care / Q000379:methods*; D017060:Patient Satisfaction; D015203:Reproducibility of Results; D012219:Rheumatology / Q000193:education / Q000379:methods; D016896:Treatment Outcome