title: Participation of next of kin in research following sudden, unexpected death of a child.
abstract: OBJECTIVE
  To assess parents' perceptions of their experience being interviewed after the sudden, unexpected death of their child.
  
  
  METHODS
  Case-control study in which cases were victims of unintentional drowning.
  
  
  METHODS
  Households of recent drowning victims in 6 states in the United States.
  
  
  METHODS
  Caregivers (primarily parents) of 87 cases and 491 matched controls were interviewed via telephone about their child.
  
  
  METHODS
  Recent death of a child by unintentional drowning.
  
  
  METHODS
  Degree of stress related to interview, perception of interview length, and participants' views about their willingness to participate in this type of interview again, given their experience with the current interview.
  
  
  RESULTS
  Although case participants were more likely than controls to perceive the interview as somewhat or very stressful (odds ratio, 3.64; 95% confidence interval, 1.67-7.96), most of the case participants (87.2%) and controls (96.1%) perceived the interview to be not at all or a little stressful. A greater percentage of controls (37.8%) found the interview to be too long, compared with case participants (20.9%). Among case participants, perceived stress during the interview and the perceived length of the interview were not associated with willingness to participate again. Both of these associations were significant (P<.001) for controls.
  
  
  CONCLUSIONS
  Caregivers who chose to participate in the study generally rated their experiences as not very stressful. Most of the caregivers indicated that they would be willing to participate again in a similar study.
authors.affiliation: Westat and Allied Technology Group, Inc, Rockville, MD 20850, USA.
authors.forename: Gitanjali S
authors.initials: GS
authors.lastname: Taneja
authors.forename: Ruth A
authors.initials: RA
authors.lastname: Brenner
authors.forename: Ron
authors.initials: R
authors.lastname: Klinger
authors.forename: Ann C
authors.initials: AC
authors.lastname: Trumble
authors.forename: Cong
authors.initials: C
authors.lastname: Qian
authors.forename: Mark
authors.initials: M
authors.lastname: Klebanoff
mesh_terms: D001290:Attitude; D001293:Attitude to Death; D001601:Bereavement; D017028:Caregivers / Q000523:psychology*; D016022:Case-Control Studies; D002648:Child; D003645:Death, Sudden; D004332:Drowning; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D010290:Parents / Q000523:psychology*; D018579:Patient Selection; D010465:Perception; D013315:Stress, Psychological / Q000209:etiology; D013997:Time Factors; D014481:United States