title: Stigmatization, culture and counseling a commentary on growing up and living with NF1: a UK-Bangladeshi case study - by Santi Rozario.
abstract: Rozario's presentation of the cultural manifestations of stigma experienced by a British Bangladeshi woman with Neurofibromatosis 1 (NF1) is unusual in its detail of one woman's account of others' interactions with her and the impact on her life. It raises issues that are readily recognisable to genetic counselors and are familiar themes in the literature on the psychology of appearance. We draw on the genetics literature and on a body of expertise in research on the psychology of visible difference to consider the role of the genetic counselor in response to expressions of stigmatization or poor self-esteem by those with a visible difference caused by a genetic condition.
authors.affiliation: Institute of Medical Genetics, Cardiff University, Heath Park, Cardiff CF14 4XN, Wales, UK. gaffc@cardiff.ac.uk
authors.forename: Clara L
authors.initials: CL
authors.lastname: Gaff
authors.forename: Angus
authors.initials: A
authors.lastname: Clarke
mesh_terms: D001459:Bangladesh / Q000208:ethnology; D003466:Cultural Characteristics; D005260:Female; D005817:Genetic Counseling; D006801:Humans; D009456:Neurofibromatosis 1 / Q000523:psychology*; D024382:Professional Role; D012649:Self Concept; D013240:Stereotyping; D006113:United Kingdom