title: Our social genome?
abstract: Apocalyptic views on the natural order, chimeras and genetic engineering should not detract from the fact that medical research, similar to the promotion of health, is a public good. Genomics crosses all species, thereby requiring a global approach that respects human rights and public health priorities. Public trust and public participation in research demand clear stewardship as well as transparent and accountable oversight. Characterizing fundamental genomic data as a public resource might counterbalance the current overemphasis on individual rights but this will not be simple. It is only through an attachment to justice and solidarity that the dignity and well-being of persons, both as humans and as citizens, can truly be fostered.
authors.affiliation: Centre de recherché en droit public, Universite de Montreal, C.P. 6128 succ. Centre-ville, Montreal, Quebec, H3T 1J7, Canada. bartha.maria.knoppers@umontreal.ca <bartha.maria.knoppers@umontreal.ca>
authors.forename: Bartha M
authors.initials: BM
authors.lastname: Knoppers
authors.forename: Yann
authors.initials: Y
authors.lastname: Joly
mesh_terms: D005828:Genetics, Population; D015894:Genome, Human / Q000941:ethics*; D023281:Genomics / Q000941:ethics* / Q000639:trends; D006801:Humans; D010686:Philosophy, Medical; D012945:Social Values; D012946:Social Welfare