title: Longitudinal outcomes of a consumer-directed program supporting adults with developmental disabilities and their families.
abstract: Longitudinal impacts of a consumer-directed support program that provides families with an individualized budget were studied at three points in time over a 9-year period: Time 1 (1991), Time 2 (1995), and Time 3 (2000). At Time 3, families in the program were also compared with families on the waiting list. Over time, families in the program experienced decreased unmet service needs, higher service satisfaction, increased community participation of individuals with disabilities, and decreased caregiver burden. At Time 3 families in the program had fewer unmet needs and higher service satisfaction than did families on the waiting list; there were no differences in community participation and caregiver burden.
authors.affiliation: Rehabilitation Research and Training Center on Aging With Developmental Disabilities, Association of University Centers on Disabilities, University of Illinois at Chicago, 1640 W. Roosevelt Rd., Chicago, IL 60608, USA. jcaldw3@uic.edu
authors.forename: Joe
authors.initials: J
authors.lastname: Caldwell
authors.forename: Tamar
authors.initials: T
authors.lastname: Heller
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology; D002648:Child; D003258:Consumer Behavior; D003255:Consumer Organizations / Q000191:economics; D017281:Cost of Illness; D002658:Developmental Disabilities / Q000191:economics / Q000523:psychology / Q000534:rehabilitation*; D005260:Female; D005380:Financing, Government / Q000191:economics; D006301:Health Services Needs and Demand; D006306:Health Surveys; D006701:Home Nursing / Q000191:economics / Q000523:psychology; D006801:Humans; D007087:Illinois; D008607:Intellectual Disability / Q000191:economics / Q000523:psychology / Q000534:rehabilitation*; D008137:Longitudinal Studies; D008297:Male; D008484:Medicaid / Q000191:economics; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D012944:Social Support; D014481:United States