Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit.
OBJECTIVE
To investigate parents' perspectives on the desirability, content, and conditions of a physician-parent conference after their child's death in the pediatric intensive care unit (PICU).


METHODS
Audio-recorded telephone interviews were conducted with 56 parents of 48 children. All children died in the PICU of one of six children's hospitals in the National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network (CPCCRN) 3 to 12 months before the study.


RESULTS
Only seven (13%) parents had a scheduled meeting with any physician to discuss their child's death; 33 (59%) wanted to meet with their child's intensive care physician. Of these, 27 (82%) were willing to return to the hospital to meet. Topics that parents wanted to discuss included the chronology of events leading to PICU admission and death, cause of death, treatment, autopsy, genetic risk, medical documents, withdrawal of life support, ways to help others, bereavement support, and what to tell family. Parents sought reassurance and the opportunity to voice complaints and express gratitude.


CONCLUSIONS
Many bereaved parents want to meet with the intensive care physician after their child's death. Parents seek to gain information and emotional support, and to give feedback about their PICU experience.
Meert
Kathleen L
KL
Children's Hospital of Michigan, Detroit, Michigan 48201, USA. kmeert@med.wayne.edu
Eggly
Susan
S
Pollack
Murray
M
Anand
K J S
KJ
Zimmerman
Jerry
J
Carcillo
Joseph
J
Newth
Christopher J L
CJ
Dean
J Michael
JM
Willson
Douglas F
DF
Nicholson
Carol
C
D000328:Adult; D001601:Bereavement; D003142:Communication; D003422:Critical Care; D003643:Death; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D015278:Intensive Care Units, Pediatric; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D010819:Physician's Role; D011795:Surveys and Questionnaires