title: Improving the representativeness of behavioral and clinical surveillance for persons with HIV in the United States: the rationale for developing a population-based approach.
abstract: The need for a new surveillance approach to understand the clinical outcomes and behaviors of people in care for HIV evolved from the new challenges for monitoring clinical outcomes in the HAART era, the impact of the epidemic on an increasing number of areas in the US, and the need for representative data to describe the epidemic and related resource utilization and needs. The Institute of Medicine recommended that the Centers for Disease Control and Prevention and the Heath Resources and Services Administration coordinate efforts to survey a random sample of HIV-infected persons in care, in order to more accurately measure the need for prevention and care services. The Medical Monitoring Project (MMP) was created to meet these needs. This manuscript describes the evolution and design of MMP, a new nationally representative clinical outcomes and behavioral surveillance system, and describes how MMP data will be used locally and nationally to identify care and treatment utilization needs, and to plan for prevention interventions and services.
authors.affiliation: Centers for Disease Control and Prevention, Atlanta, Georgia, United States of America. aom5@cdc.gov
authors.forename: A D
authors.initials: AD
authors.lastname: McNaghten
authors.forename: Mitchell I
authors.initials: MI
authors.lastname: Wolfe
authors.forename: Ida
authors.initials: I
authors.lastname: Onorato
authors.forename: Allyn K
authors.initials: AK
authors.lastname: Nakashima
authors.forename: Ronald O
authors.initials: RO
authors.lastname: Valdiserri
authors.forename: Eve
authors.initials: E
authors.lastname: Mokotoff
authors.forename: Raul A
authors.initials: RA
authors.lastname: Romaguera
authors.forename: Alice
authors.initials: A
authors.lastname: Kroliczak
authors.forename: Robert S
authors.initials: RS
authors.lastname: Janssen
authors.forename: Patrick S
authors.initials: PS
authors.lastname: Sullivan
mesh_terms: D006678:HIV / Q000472:pathogenicity*; D015658:HIV Infections / Q000453:epidemiology / Q000517:prevention & control* / Q000635:transmission; D015438:Health Behavior; D006801:Humans; D011159:Population Surveillance; D011314:Preventive Health Services / Q000706:statistics & numerical data*; D014481:United States / Q000453:epidemiology