title: A patient and carer survey in a community clinical nurse specialist service.
abstract: The community clinical nurse specialist (CNS) team provides specialist palliative care to clients with cancer and non-malignant, life-limiting diseases in clients' homes, community hospitals, and residential and nursing homes. CNSs are based in health centres, community hospitals (geographically spread around the county) or at the local hospice. There has been no systematic review of patient and carer levels of satisfaction since the conception of the CNS service in 1984. Accredited as a nursing development unit (Flint and Wright, 2001) by Leeds University, the team has been encouraged to obtain service users' views. National guidelines in the UK (National Institute for Health and Clinical Excellence (NICE), 2004) also recommend that systems be put in place to enable clients to make their voices heard in a variety of ways. The principle aim was to identify the level of patient and carer satisfaction and to highlight aspects of care that warranted alteration or improvement. The CNS team were also keen to identify the aspects of their role most helpful to patients and carers, enabling CNSs to spend their time in a way that is most beneficial to clients.
authors.affiliation: CNS Office, LOROS, Groby Road, Leicester, UK. deborahann.lewis@virgin.net
authors.forename: Deborah
authors.initials: D
authors.lastname: Lewis
authors.forename: Denis
authors.initials: D
authors.lastname: Anthony
mesh_terms: D000368:Aged; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D003142:Communication; D003152:Community Health Nursing / Q000458:organization & administration*; D003430:Cross-Sectional Studies; D003697:Delphi Technique; D004739:England; D005190:Family / Q000523:psychology*; D005260:Female; D006302:Health Services Research; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009720:Nurse Clinicians / Q000458:organization & administration*; D024802:Nurse's Role; D009731:Nursing Audit; D015403:Nursing Evaluation Research; D015404:Nursing Methodology Research; D010166:Palliative Care / Q000458:organization & administration* / Q000523:psychology; D017410:Practice Guidelines as Topic; D036301:Qualitative Research; D012017:Referral and Consultation / Q000458:organization & administration; D011795:Surveys and Questionnaires