title: Quality of life in children with epilepsy and cognitive impairment: a review and a pilot study.
abstract: Various methods have recently been proposed to assess the physical, psychological or social dimensions of quality of life (QoL) in children with epilepsy (CwE) and their families. Some methods are based exclusively on parental report and others emphasize the importance of an interview with the patient himself. In children with epilepsy and severe cognitive deficit only parental report is possible in practice; however, some parental based methods to evaluate QoL in CwE have excluded children with cognitive deficit. The present pilot study explores which items are suitable for a parental-based QoL evaluation in CwE and special educational needs, and the most frequently reported parental concerns in this special population of children.
authors.affiliation: Institut National de la Santé et de la Recherche Médicale INSERM, Unite 780, Villejuif, France. Soria@vjf.inserm.fr
authors.forename: Carmen
authors.initials: C
authors.lastname: Soria
authors.forename: Sandra
authors.initials: S
authors.lastname: El Sabbagh
authors.forename: Sylvie
authors.initials: S
authors.lastname: Escolano
authors.forename: René
authors.initials: R
authors.lastname: Bobet
authors.forename: Christine
authors.initials: C
authors.lastname: Bulteau
authors.forename: Georges
authors.initials: G
authors.lastname: Dellatolas
mesh_terms: D002648:Child; D002652:Child Behavior; D002657:Child Development; D002675:Child, Preschool; D003072:Cognition Disorders / Q000150:complications / Q000503:physiopathology / Q000523:psychology*; D004644:Emotions; D004827:Epilepsy / Q000150:complications / Q000503:physiopathology / Q000523:psychology*; D005192:Family Health; D005260:Female; D006801:Humans; D007360:Intelligence; D007858:Learning; D008297:Male; D010290:Parents; D026684:Personal Autonomy; D010549:Personal Satisfaction; D010865:Pilot Projects; D011788:Quality of Life; D012649:Self Concept; D012919:Social Behavior