title: Operationalising a model framework for consumer and community participation in health and medical research.
abstract: The Consumers' Health Forum of Australia and the National Health and Medical Research Council has recently developed a Model Framework for Consumer and Community Participation in Health and Medical Research in order to better align health and medical research with community need, and improve the impact of research. Model frameworks may have little impact on what goes on in practice unless relevant organisations actively make use of them. Philanthropic and government bodies have reported involving consumers in more meaningful or collaborative ways of late. This paper describes how a large charity organisation, which funds a significant proportion of Australian cancer research, operationalised the model framework using a unique approach demonstrating that it is both possible and reasonable for research to be considerate of public values.
authors.affiliation: School of Medicine and Public Health, The University of Newcastle, Wallsend NSW, 2287, Australia. carlas@nswcc.org.au
authors.forename: Carla
authors.initials: C
authors.lastname: Saunders
authors.forename: Sally
authors.initials: S
authors.lastname: Crossing
authors.forename: Afaf
authors.initials: A
authors.lastname: Girgis
authors.forename: Phyllis
authors.initials: P
authors.lastname: Butow
authors.forename: Andrew
authors.initials: A
authors.lastname: Penman