title: How should we report neonatal outcomes?
abstract: The aim of neonatal care is to achieve long-term survival free of handicap. There is a need for standardised datasets linking perinatal care to outcome at 2 years corrected age for all babies who have gone through neonatal intensive care. Realistically this can only happen if all the data are collected by the units caring for the babies. This has not been possible previously using routinely collected data because of the poor quality of such information. Recent improvements in neonatal data collection along with the development of standardised neonatal and follow-up datasets make it possible that this could now be achieved from routine data collected as part of everyday clinical care. It is important that further links with maternity and child health systems are developed. The National Neonatal Audit Project, funded by the Department of Health, will hopefully develop the infrastructure to allow the storage, analysis and rapid reporting of pooled neonatal and follow-up data.
authors.affiliation: Simpson Centre for Reproductive Health, Royal Infirmary of Edinburgh, Little France, Edinburgh EH16 4SA, Scotland, UK. andrew.lyon@luht.scot.nhs.uk
authors.forename: Andrew
authors.initials: A
authors.lastname: Lyon
mesh_terms: D002675:Child, Preschool; D000013:Congenital Abnormalities / Q000628:therapy; D016208:Databases, Factual; D005500:Follow-Up Studies; D006306:Health Surveys; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007234:Infant, Premature; D019102:Infant, Very Low Birth Weight; D015931:Intensive Care, Neonatal / Q000706:statistics & numerical data*; D009359:Neonatology / Q000592:standards / Q000706:statistics & numerical data; D017063:Outcome Assessment, Health Care / Q000458:organization & administration / Q000706:statistics & numerical data; D016032:Randomized Controlled Trials as Topic; D012042:Registries; D006113:United Kingdom