title: Are there racial differences in attitudes toward hospice care? A study of hospice-eligible patients at the Visiting Nurse Service of New York.
abstract: Research on African American and white attitudes, perceptions, and knowledge of hospice care has focused predominantly on patients and providers in institutions and community-based care settings. Little is known about patients receiving home health services, despite growing trends toward noninstitutional care in the United States. This study of home health clients who are eligible for hospice, but not currently receiving it, found few differences between racial groups with regard to attitudes about end-of-life care. An alarming proportion of African American and white home health clients held erroneous ideas about hospice care and had not discussed this option with their providers. These findings suggest that increased referrals to home-based hospice care among home health clients depend on the availability and professional dissemination of accurate, spiritually sensitive information.
authors.affiliation: Center for Home Care Policy & Research, Visiting Nurse Service of New York, New York, NY 10001, USA. peri.rosenfeld@vnsny.org
authors.forename: Peri
authors.initials: P
authors.lastname: Rosenfeld
authors.forename: Jeanne
authors.initials: J
authors.lastname: Dennis
authors.forename: Suzanne
authors.initials: S
authors.lastname: Hanen
authors.forename: Ernesto
authors.initials: E
authors.lastname: Henriquez
authors.forename: Theresa M
authors.initials: TM
authors.lastname: Schwartz
authors.forename: Lyla
authors.initials: L
authors.lastname: Correoso
authors.forename: Christopher M
authors.initials: CM
authors.lastname: Murtaugh
authors.forename: Alan
authors.initials: A
authors.lastname: Fleishman
mesh_terms: D001741:Black or African American / Q000193:education / Q000208:ethnology*; D000368:Aged; D001291:Attitude of Health Personnel; D001294:Attitude to Health / Q000208:ethnology*; D002755:Choice Behavior; D003142:Communication; D003152:Community Health Nursing / Q000458:organization & administration; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006630:Hispanic or Latino / Q000193:education / Q000208:ethnology*; D006699:Home Care Services / Q000458:organization & administration*; D017051:Hospice Care / Q000458:organization & administration / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D009518:New York; D009723:Nurse-Patient Relations; D015404:Nursing Methodology Research; D017063:Outcome Assessment, Health Care; D012069:Religion and Psychology; D044465:White People / Q000193:education / Q000208:ethnology*