Differences between patient and proxy reports in the assessment of disability after stroke.
OBJECTIVE
To determine whether the assessment of disability level including basic activities of daily living (ADL) and instrumental ADL varies between patients' and proxy respondents' reports, and to explore the factors influencing proxy agreement.


METHODS
Patient-proxy agreement study.


METHODS
Hospital settings.


METHODS
Fifty-two stroke patients with mild or without cognitive impairments and their primary caregivers voluntarily participated in this study.


METHODS
The self-administered versions of the Barthel Index and Frenchay Activities Index were completed by the patients and their proxy respondents concurrently, yet separately, to assess the level of disability.


RESULTS
The proxy agreement on total scores of the self-administered Barthel Index and self-administered Frenchay Activities Index demonstrated moderate to good agreement (self-administered Barthel Index: intraclass correlation coefficient (ICC) = 0.71; self-administered Frenchay Activities Index: ICC = 0.6). There were no significant differences between patient and proxy reports on self-administered Barthel Index and self-administered Frenchay Activities Index scores (paired t = -0.22, P = 0.83; paired t = 0.88, P = 0.39, respectively). However, limits of agreement of patient and proxy reports on the self-administered Barthel Index and self-administered Frenchay Activities Index were notable. Stepwise regression analysis found no significant variables associated with proxy agreement.


CONCLUSIONS
These results indicate that it is appropriate for research purposes, but not appropriate for clinical usage, to use proxy reports to measure disability levels in patients with stroke. Furthermore, the two methods should not be used interchangeably to monitor patients because of the wide limits of agreement between patient and proxy reports on the self-administered Barthel Index and self-administered Frenchay Activities Index.
Chen
Mei-Hsiang
MH
Chung-Shan Medical University, College of Medicine, National Taiwan University, Taiwan, ROC.
Hsieh
Ching-Lin
CL
Mao
Hui-Fen
HF
Huang
Sheau-Ling
SL
D000203:Activities of Daily Living; D017028:Caregivers; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D019727:Proxy; D012044:Regression Analysis; D012647:Self-Assessment; D000071939:Stroke Rehabilitation