Share and share alike: deciding how to distribute the scientific and social benefits of genomic data.
Emerging technologies make genomic analyses more efficient and less expensive, enabling genome-wide association and gene-environment interaction studies. In anticipation of their results, funding agencies such as the US National Institutes of Health and the Wellcome Trust are formulating guidelines for sharing the large amounts of genomic data that are generated by the projects that they sponsor. Data-sharing policies can have varying implications for how disease susceptibility and drug-response research will be pursued by the scientific community, and for who will benefit from the resulting medical discoveries. We suggest that the complex interplay of stakeholders and their interests, rather than single-issue and single-stakeholder perspectives, should be considered when deciding genomic data-sharing policies.
Foster
Morris W
MW
Department of Anthropology, University of Oklahoma, Norman, Oklahoma 73019, USA. morris.w.foster-1@ou.edu
Sharp
Richard R
RR
D023281:Genomics / Q000706:statistics & numerical data / Q000639:trends; D006077:Government Agencies; D006801:Humans; D009316:National Institutes of Health (U.S.); D011640:Public Policy; D012922:Social Change; D006113:United Kingdom; D014481:United States