Life support for patients without a surrogate decision maker: who decides?
BACKGROUND
Physicians in intensive care units have withdrawn life support in incapacitated patients who lack surrogate decision makers and advance directives, yet little is known about how often this occurs or under what circumstances.


OBJECTIVE
To determine the proportion of deaths in intensive care units that occur in patients who lack decision-making capacity and a surrogate and the process that physicians use to make these decisions.


METHODS
Multicenter, prospective cohort study.


METHODS
Intensive care units of 7 medical centers in 2004 to 2005.


METHODS
3011 consecutive critically ill adults.


METHODS
Attending physicians completed a questionnaire about the decision-making process for each incapacitated patient without a surrogate or advance directive for whom they considered limiting life support.


RESULTS
Overall, 5.5% (25 of 451 patients) of deaths in intensive care units occurred in incapacitated patients who lacked a surrogate decision maker and an advance directive. This percentage ranged from 0% to 27% across the 7 centers. Physicians considered limiting life support in 37 such patients or would have considered it if a surrogate had been available. In 6 patients, there was prospective hospital review of the decision, and in 1 patient, there was court review. In the remaining 30 patients, the decision was made by the intensive care unit team alone or by the intensive care unit team plus another attending physician. The authors found wide variability in hospital policies, professional society guidelines, and state laws regarding who should make life-support decisions for this patient population. Thirty-six of 37 life-support decisions were made in a manner inconsistent with American College of Physicians guidelines for judicial review.


CONCLUSIONS
The results are based on physicians' self-reported practices and may not match actual practices. The number of incapacitated patients without surrogates in the study is small.


CONCLUSIONS
Incapacitated patients without surrogates accounted for approximately 1 in 20 deaths in intensive care units. Most life-support decisions were made by physicians without institutional or judicial review.
White
Douglas B
DB
University of California, San Francisco, and San Francisco General Hospital, San Francisco, California 94143-0903, USA. dwhite@medicine.ucsf.edu
Curtis
J Randall
JR
Wolf
Leslie E
LE
Prendergast
Thomas J
TJ
Taichman
Darren B
DB
Kuniyoshi
Gary
G
Acerra
Frank
F
Lo
Bernard
B
Luce
John M
JM
D000328:Adult; D016223:Advance Directives; D003657:Decision Making; D006739:Hospital Administration; D006801:Humans; D007362:Intensive Care Units / Q000941:ethics; D008020:Life Support Care / Q000941:ethics* / Q000331:legislation & jurisprudence; D016134:Organizational Policy; D010819:Physician's Role; D017410:Practice Guidelines as Topic; D011446:Prospective Studies; D012017:Referral and Consultation; D014481:United States; D028761:Withholding Treatment / Q000941:ethics*