title: The use of Continuous Subcutaneous Insulin Infusion (CSII): parental and professional perceptions of self-care mastery and autonomy in children and adolescents.
abstract: OBJECTIVE
  To describe parent-perceived mastery of Continuous Subcutaneous Insulin Infusion (CSII) specific skills and level of autonomy for these tasks among youth with type 1 diabetes.
  
  
  METHODS
  One hundred and sixty-three parents of youth using CSII and 142 diabetes clinicians participated. Parents reported their child's mastery and autonomy of CSII-specific skills. Clinicians indicated the age at which 50% of their patients mastered these skills.
  
  
  RESULTS
  Parents report CSII skill mastery between 10.9 and 12.8 years. Very few achieved skill mastery on all CSII-related tasks. Parent- and clinician-expectations for age of skill acquisition were consistent with one another. Parents shared CSII task responsibility with their children even after their children have attained skill mastery.
  
  
  CONCLUSIONS
  The recent emphasis on maintaining parental involvement in diabetes care seems to have been translated into clinical practice. Parents remain involved in their child's CSII care even after they believe their child has mastered these skills.
authors.affiliation: Childrens's Memorial Hospital, Department of Child and Adolescent Psychiatry, Feinberg School of Medcicine, Northwestern University, 2300 Children's Plaza, Box 10, Chicago, Illinois 60614, USA. jwbenchell@childrensmemorial.org
authors.forename: Jill
authors.initials: J
authors.lastname: Weissberg-Benchell
authors.forename: Shirley S
authors.initials: SS
authors.lastname: Goodman
authors.forename: Jeanne
authors.initials: J
authors.lastname: Antisdel Lomaglio
authors.forename: Kathy
authors.initials: K
authors.lastname: Zebracki
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D000704:Analysis of Variance; D002648:Child; D002675:Child, Preschool; D003922:Diabetes Mellitus, Type 1 / Q000188:drug therapy*; D005163:Factor Analysis, Statistical; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007332:Insulin Infusion Systems; D008297:Male; D008875:Middle Aged; D015146:Midwestern United States; D010290:Parents; D010353:Patient Education as Topic; D026684:Personal Autonomy; D012648:Self Care; D011795:Surveys and Questionnaires