title: Differences between patient and proxy reports in the assessment of disability after stroke.
abstract: OBJECTIVE
  To determine whether the assessment of disability level including basic activities of daily living (ADL) and instrumental ADL varies between patients' and proxy respondents' reports, and to explore the factors influencing proxy agreement.
  
  
  METHODS
  Patient-proxy agreement study.
  
  
  METHODS
  Hospital settings.
  
  
  METHODS
  Fifty-two stroke patients with mild or without cognitive impairments and their primary caregivers voluntarily participated in this study.
  
  
  METHODS
  The self-administered versions of the Barthel Index and Frenchay Activities Index were completed by the patients and their proxy respondents concurrently, yet separately, to assess the level of disability.
  
  
  RESULTS
  The proxy agreement on total scores of the self-administered Barthel Index and self-administered Frenchay Activities Index demonstrated moderate to good agreement (self-administered Barthel Index: intraclass correlation coefficient (ICC) = 0.71; self-administered Frenchay Activities Index: ICC = 0.6). There were no significant differences between patient and proxy reports on self-administered Barthel Index and self-administered Frenchay Activities Index scores (paired t = -0.22, P = 0.83; paired t = 0.88, P = 0.39, respectively). However, limits of agreement of patient and proxy reports on the self-administered Barthel Index and self-administered Frenchay Activities Index were notable. Stepwise regression analysis found no significant variables associated with proxy agreement.
  
  
  CONCLUSIONS
  These results indicate that it is appropriate for research purposes, but not appropriate for clinical usage, to use proxy reports to measure disability levels in patients with stroke. Furthermore, the two methods should not be used interchangeably to monitor patients because of the wide limits of agreement between patient and proxy reports on the self-administered Barthel Index and self-administered Frenchay Activities Index.
authors.affiliation: Chung-Shan Medical University, College of Medicine, National Taiwan University, Taiwan, ROC.
authors.forename: Mei-Hsiang
authors.initials: MH
authors.lastname: Chen
authors.forename: Ching-Lin
authors.initials: CL
authors.lastname: Hsieh
authors.forename: Hui-Fen
authors.initials: HF
authors.lastname: Mao
authors.forename: Sheau-Ling
authors.initials: SL
authors.lastname: Huang
mesh_terms: D000203:Activities of Daily Living; D017028:Caregivers; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D019727:Proxy; D012044:Regression Analysis; D012647:Self-Assessment; D000071939:Stroke Rehabilitation