title: Dignified death for severely impaired infants: beyond the best-interest standard.
abstract: The Baby Doe rules, a set of federal regulations on the treatment of extremely ill infants, went into effect in 1985. Some scholars have argued that these rules are inappropriate given that they fail to pay attention to the patient's suffering. Instead, researchers suggest that, when dealing with a severely impaired infant, the best-interest standard be used. Other ethicists have found the best-interest standard also insufficient, deeming it to be supported by weak arguments rooted on the beholder's beliefs. In this article, alternative viewpoints that might be used to complement the best-interest standard and help support the rights of severely impaired infants to a natural and dignified death are reviewed. The use of palliative instead of intensive care for severely impaired newborns is also considered.
authors.affiliation: Division of Pediatric Neurology, Duke University Medical Center, Durham, NC, USA. weislederp@childrensdayton.org
authors.forename: Pedro
authors.initials: P
authors.lastname: Weisleder
mesh_terms: D003643:Death; D028741:Ethics Committees, Clinical; D006801:Humans; D007223:Infant; D007224:Infant Care / Q000592:standards; D007231:Infant, Newborn; D008297:Male; D009359:Neonatology / Q000331:legislation & jurisprudence / Q000592:standards*; D028761:Withholding Treatment / Q000331:legislation & jurisprudence / Q000592:standards*