Perceptions of financial payment for research participation among African-American drug users in HIV studies.
BACKGROUND
Financial compensation for participating in research is controversial, especially when participants are recruited from economically disadvantaged and/or marginalized populations such as drug users. Little is known about these participants' own views regarding payment for research participation.


OBJECTIVE
The objective of the study was to elicit underserved minority drug users' views about monetary payments for participating in research.


METHODS
Semi-structured in-depth interview study of motivations for and perceptions of participation in research was used.


METHODS
Thirty-seven adult, economically disadvantaged African-American crack cocaine smokers were the participants of the study.


METHODS
Participants were recruited from among those taking part in three HIV prevention studies. Interviews were conducted at one of 2 research field offices located in underserved minority neighborhoods in Houston, Texas. Interviews lasting 30-45 min were recorded, transcribed, coded, and analyzed for categories and themes using both conventional and directed qualitative content analysis. This report addresses themes under the broad category of financial motivations for participating in research.


RESULTS
Participants viewed monetary payment for research as essential to attract participation and desirable to provide optional income. Payment for research participation was perceived as one potential income source among others. Participants considered self-determination a prerogative for themselves and others. They rejected the notion of payment for participation as encouraging drug use or as inducing risk taking.


CONCLUSIONS
Research regulators should consider participants' views of their desires and capacity for autonomous decisions about financial compensation for research rather than assume participants' diminished capacity due to poverty and/or drug use. Payment for research participation appears to be part of the "informal economy" that has been observed in underserved communities.
Slomka
Jacquelyn
J
Division of Health Promotion and Behavioral Sciences, School of Public Health, University of Texas Health Science Center at Houston, 7000 Fannin, Houston, TX 77030, USA. Jacquelyn.Slomka@uth.tmc.edu
McCurdy
Sheryl
S
Ratliff
Eric A
EA
Timpson
Sandra
S
Williams
Mark L
ML
D016915:AIDS Vaccines / Q000008:administration & dosage*; D000328:Adult; D001741:Black or African American; D001294:Attitude to Health; D035843:Biomedical Research / Q000191:economics* / Q000941:ethics*; D015897:Comorbidity; D005260:Female; D005378:Financial Support / Q000941:ethics*; D015658:HIV Infections / Q000208:ethnology* / Q000517:prevention & control*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009042:Motivation; D011203:Poverty; D035842:Research Subjects; D012307:Risk Factors; D019966:Substance-Related Disorders / Q000208:ethnology*; D011795:Surveys and Questionnaires; D036302:Therapeutic Human Experimentation; D014481:United States
D016915:AIDS Vaccines