Internet-based knowledge management database for children and adults with epilepsy: a possible model project for evidence-based medicine in the future.
With an incidence of nearly 1%, epilepsy represents one of the most frequent diseases in the population. Nevertheless substantial information gaps exist as to the exact incidence, prevalence, therapy and particularly to associated therapeutic success. Adequate studies are not performed on many of these issues which are primarily beyond the current interests of the pharmaceutical industry. An Internet-based knowledge management database is presented to illustrate initial results of the online system with a focus on medication and side effects (http://www.ligaepilepsie.org/KnowledgeDB/index.htm). Further, it is worth noting that this database was designed as a potential model for similar projects in other medical fields.
Koenig
Stephan A
SA
University Children's Hospital Mannheim, Neuropediatric Unit, Theodor-Kutzer-Ufer 1-3, 69167 Mannheim, Germany. drstkoenig@aol.com
Dobson
Peter
P
Longin
Elke
E
Michalec
Dagmera
D
Gerstner
Thorsten
T
Taylor
James
J
D004827:Epilepsy / Q000453:epidemiology* / Q000628:therapy*; D019317:Evidence-Based Medicine; D005260:Female; D006801:Humans; D019451:Information Management; D016247:Information Storage and Retrieval; D020407:Internet / Q000706:statistics & numerical data / Q000639:trends*; D008297:Male; D016347:Medical Records Systems, Computerized / Q000706:statistics & numerical data / Q000639:trends*; D008954:Models, Biological