Population genomics and research ethics with socially identifable groups.
In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups.
McGregor
Joan L
JL
Bioethics, Policy, and Law Program at the School of Life Sciences and Philosophy, Arizona State University, USA.
D026686:Beneficence; D030661:Genetic Privacy / Q000941:ethics; D036281:Genetic Research / Q000941:ethics*; D005828:Genetics, Population / Q000941:ethics*; D023281:Genomics / Q000941:ethics*; D017408:Guidelines as Topic; D006806:Human Rights; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D044382:Population Groups / Q000235:genetics; D035862:Vulnerable Populations