[Follow-up of adult women with Turner's syndrome in a cohort study in Utrecht].
OBJECTIVE
To evaluate the follow-up of adult women with Turner's syndrome.


METHODS
Cross-sectional study using questionnaires.


METHODS
In August 2005 questionnaires were sent to 5 adult women with Turner's syndrome who were known to the Wilhelmina Children's Hospital in Utrecht, The Netherlands. The questions concerned morbidity, follow-up and levels of satisfaction with care and the provision of information about Turner's syndrome. Case notes were also examined.


RESULTS
38 questionnaires were returned, 19 from women aged 17-25 and 19 from women aged 26-42. 7 women had been without medical care for some time and 4 women were not receiving any medical care at the time of the study. The remaining women were being monitored by a general practitioner or one or more medical specialists. 6 of the 38 women were under the care of a cardiologist. 5 women had hypertension. 8 women had a renal malformation and, 5 of them were not having any renal follow-up. 8 women had undergone bone mineral density measurements in the preceding 5 years. The women between 17-25 years of age were more satisfied with the transfer of medical care from childhood to adulthood than those between 26-42 years of age. Most women felt they were well informed about Turner's syndrome.


CONCLUSIONS
Medical care for adult women with Turner's syndrome in our study group was less than optimal. Cardiovascular risks in particular needed more attention. We advocate a multidisciplinary approach for the follow-up of women with Turner's syndrome.
Broekhuijsen-van Henten
D M
DM
Universitair Medisch Centrum Utrecht, locatie Wilhelmina Kinderziekenhuis, huispost KE 04-133.1, Postbus 85.090, 3508 AB Utrecht. dbroekh2@umcutrecht.nl
de Vroede
M
M
D000328:Adult; D015331:Cohort Studies; D003430:Cross-Sectional Studies; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D009017:Morbidity; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011787:Quality of Health Care; D012307:Risk Factors; D011795:Surveys and Questionnaires; D014424:Turner Syndrome / Q000150:complications / Q000523:psychology* / Q000628:therapy*