Summary of workgroup meeting on use of family history information in pediatric primary care and public health.
A workgroup meeting on the use of family history information in pediatric primary care and public health sponsored by the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention was held February 24 to 25, 2006. The workgroup participants met to discuss how to improve the use of family history information in pediatric settings. Topics addressed at the meeting included current practices, needs, and barriers for use of family history information in pediatric primary care and public health. Other considerations included how available family history tools might be applicable to pediatric settings and which areas require additional research. Specific model conditions were presented that illustrated issues involved in the use of family history information in pediatric settings, including cystic fibrosis, fragile X syndrome, polycystic kidney disease, hyperlipidemia and coronary artery disease, and birth defects. Ethical, economic, and technologic concerns involved in integration of family history information into pediatric settings were discussed also.
Green
Ridgely Fisk
RF
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Rd, Mail Stop E-86, Atlanta, GA 30333, USA. grf1@cdc.gov
D000328:Adult; D002318:Cardiovascular Diseases / Q000145:classification / Q000235:genetics / Q000517:prevention & control; D002487:Centers for Disease Control and Prevention, U.S.; D002648:Child; D000013:Congenital Abnormalities / Q000145:classification / Q000235:genetics / Q000517:prevention & control; D005192:Family Health; D030342:Genetic Diseases, Inborn / Q000145:classification / Q000235:genetics / Q000517:prevention & control*; D006801:Humans; D007231:Infant, Newborn; D007256:Information Systems; D008487:Medical History Taking; D010372:Pediatrics / Q000379:methods* / Q000458:organization & administration; D011320:Primary Health Care / Q000379:methods* / Q000458:organization & administration; D011634:Public Health / Q000379:methods*; D015203:Reproducibility of Results; D018570:Risk Assessment / Q000941:ethics / Q000379:methods*; D012984:Software; D014481:United States; D014584:User-Computer Interface