title: [Quality of life in systemic lupus erythematosus patients, with a particular description of methodology].
abstract: The notion of quality of life (QoL) gained prominence in the second part of the twentieth century, and there has been a dynamic development of research connected with the medical aspects of QoL in recent years. Most papers are about QoL in a chronic and incurable diseases, such as cancer and "civilizational" diseases, but also in some skin diseases. Systemic lupus erythematosus (SLE) is a model autoimmune disease whose etiopathogenesis is still unknown. SLE is a systemic connective tissue disease and occurs especially in young women. The possibility of its different localization makes SLE an object of interest for many specialists. Patient age, the most common symptoms, difficulties with pregnancy, the necessity of using sun blockers, and the kinds of treatment are all responsible for decreased patient comfort. Up to now there have been few publications about the quality of life of patients with systemic lupus erythematosus. In this paper some general rules of measuring quality of life are presented. Some questionnaires used to measure quality of life in SLE patients are also described.
authors.affiliation: Klinika Dermatologii i Wenerologii Uniwersytetu Medycznego w Łodzi, Łodz, Poland.
authors.forename: Lilianna
authors.initials: L
authors.lastname: Kulczycka
authors.forename: Anna
authors.initials: A
authors.lastname: Sysa-Jedrzejowska
authors.forename: Ewa
authors.initials: E
authors.lastname: Robak
mesh_terms: D000203:Activities of Daily Living; D000222:Adaptation, Physiological; D000223:Adaptation, Psychological; D018450:Disease Progression; D006304:Health Status; D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000523:psychology* / Q000628:therapy; D011788:Quality of Life; D012720:Severity of Illness Index