title: Imagining the alternatives to life prolonging treatments: elders' beliefs about the dying experience.
abstract: Deciding for or against a life-prolonging treatment represents a choice between prolonged life and death. When the death alternative is not described, individuals must supply their own assumptions. How do people imagine the experience of dying? We asked 40 elderly people open-ended questions about dying without 4 common life-prolonging treatments, eliciting beliefs about pain, length of time, loneliness, and palliative care. Beliefs were diverse, loneliness was commonly assumed, and palliation was rarely mentioned spontaneously. Results underscore needs for improved understanding of the dying process and palliative care and for fuller communication between patients and healthcare providers.
authors.affiliation: Center for Applied Research on Aging and Health, Thomas Jefferson University, Edison Building, Suite 500, 130 South 9th St., Philadelphia, PA 19107, USA. Laraine.Winter@Jefferson.edu
authors.forename: Laraine
authors.initials: L
authors.lastname: Winter
authors.forename: Barbara
authors.initials: B
authors.lastname: Parker
authors.forename: Melissa
authors.initials: M
authors.lastname: Schneider
mesh_terms: D000368:Aged / Q000523:psychology; D000369:Aged, 80 and over / Q000523:psychology; D001293:Attitude to Death; D004750:Enteral Nutrition; D005260:Female; D006801:Humans; D008020:Life Support Care / Q000523:psychology; D008132:Loneliness / Q000523:psychology; D008297:Male; D008875:Middle Aged / Q000523:psychology; D010166:Palliative Care; D012151:Resuscitation / Q000523:psychology; D014481:United States