title: Games of lives in surviving childhood brain tumors.
abstract: The purpose of this phenomenological study was to describe the commonality of the lived experience of adolescent and young adult survivors (AYAS) of brain tumors in Taiwan from a sociocultural perspective. Seven AYAS aged 13 to 22 years, who had survived 5 to 10 years from the time of diagnosis, participated in this study. In consideration of their emotional duress, each participant was interviewed only once. The data revealed an essential structure: the game of life. The essential structure included six themes as follows: (a) no longer playing well, (b) wandering on the outer edges of social life, (c) helplessly struggling with role obligations, (d) rationally regulating the meaning of surviving, (e) winning a new social face, and (f) mastering the game of life. The findings suggest how nurses might help AYAS to succeed in psychosocial adjustment.
authors: National Taiwan University, Graduate Institute of Nursing, Taiwan.
authors: Chin-Mi
authors: CM
authors: Chen
authors: Yueh-Chih
authors: YC
authors: Chen
authors: Joan E
authors: JE
authors: Haase
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health / Q000208:ethnology*; D001932:Brain Neoplasms / Q000208:ethnology* / Q000517:prevention & control; D002648:Child; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008016:Life Change Events; D008297:Male; D015404:Nursing Methodology Research; D010379:Peer Group; D011287:Prejudice; D000297:Psychology, Adolescent; D002666:Psychology, Child; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D012380:Role; D012649:Self Concept; D012919:Social Behavior; D012934:Social Isolation; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*; D013624:Taiwan