Health issues in young adults with cerebral palsy: towards a life-span perspective.
OBJECTIVE
To obtain better insight into the health issues of young adults with cerebral palsy.


METHODS
Cross-sectional.


METHODS
Two data sources were used: 54 adults with cerebral palsy (age range 25-36 years) and 48 physicians (members of the Netherlands Society of Physical and Rehabilitation Medicine).


METHODS
Adults with cerebral palsy participated in a physical examination and a semi-structured interview assessing several health issues and utilization of healthcare. Rehabilitation physicians completed a questionnaire on impairments they recognized as being related to cerebral palsy.


RESULTS
In the patient sample, pain (59%) and joint deformities (19-57%) were observed most frequently. Evidence of a decrease in the utilization of healthcare services at adult age emerged. Lower gross motor function and cognitive level appeared to be determinants of motor and speech impairments and of the utilization of 3 allied healthcare services. Rehabilitation physicians reported pain (88%), joint deformities (86%) and fatigue (76%) as being cerebral palsy-related health problems in adults.


CONCLUSIONS
Based on the high prevalence of pain and joint deformities and the decrease in the utilization of healthcare services, systematic follow-up in adults with cerebral palsy seems warranted. Cerebral palsy needs to be considered as a life-long condition, requiring a life-span perspective in order to better organize optimal care.
Hilberink
Sander R
SR
Erasmus MC, University Medical Centre Rotterdam, Department of Rehabilitation Medicine, Rotterdam, The Netherlands. S.R.Hilberink@hetnet.nl
Roebroeck
Marij E
ME
Nieuwstraten
Wilbert
W
Jalink
Loes
L
Verheijden
Johannes M A
JM
Stam
Henk J
HJ
D000328:Adult; D002547:Cerebral Palsy / Q000175:diagnosis / Q000503:physiopathology / Q000523:psychology / Q000534:rehabilitation; D003430:Cross-Sectional Studies; D004185:Disability Evaluation; D005260:Female; D005500:Follow-Up Studies; D006296:Health Services / Q000706:statistics & numerical data; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires