title: Representation or reason: consulting the public on the ethics of health policy.
abstract: Consulting the public about the ethical approaches underlying health policies can seem an appealing means of addressing concerns about limited public participation in development of health policy. However ambiguity surrounds questions of whether, or how consultation can really contribute to more defensible decisions about ethical aspects of policy. This paper clarifies the role and limits of public consultation on ethics, beginning by separating different senses of defensibility in decisions on ethics. Defensibility of ethical decisions could be understood either in the sense of legitimacy in virtue of reflecting the opinions of the public whose interests are affected, or in the sense of being able to withstand and respond to challenges presented in ethical debate. The question then is whether there are forms of consultation which have the potential to realise more defensible decisions in either of these senses. Problems of adequately accounting for the views of those affected by policy decisions casts doubt on the plausibility of using consultation as a means of determining the opinions of the public. Consultation can have a role by bringing new ideas and challenges to debate, although it is uncertain whether this will increase the defensibility of any decision on ethics.
authors.affiliation: Centre for the Study of Global Ethics, University of Birmingham, Birmingham, UK. c.a.mullen@bham.ac.uk
authors.forename: Caroline
authors.initials: C
authors.lastname: Mullen
mesh_terms: D003256:Community Participation; D003709:Democracy; D004992:Ethics, Medical; D006291:Health Policy; D006801:Humans; D009014:Morals; D011050:Policy Making; D011639:Public Opinion