title: WRAPIN: a tool for patient empowerment within EHR.
abstract: Legal and technologic trends are making medical records progressively more patient-accessible. In the near future, information technology may make it even easier to provide patients a chance to review their records. One may wonder, however, about the practical use of this technology by patients. Understanding his/her own health record will certainly be one of the main concerns of patients. WRAPIN has been designed to provide patients and citizens with trusted health information. It will help to determine the reliability of documents by checking the ideas contained against established benchmarks, and enable users to determine the relevance of a given document from a page of search results. First, we present what is, in our opinion, the most original and important patient-centred WRAPIN characteristics and functionalities. Then, we compare these characteristics with those of representatives of two main trends in information retrieval: systems based on the popularity of web sites, and on the clustering of web sites. This comparison shows that, even though patients are tempted to use popular search engines, these are not sufficiently specialized in the medical domain to help them understand their own HER.. Finally, we discuss the complexity of medical readings over the Internet and the efforts that are still required in this domain.
authors.affiliation: LERTIM, Faculté de Médecine, Université de la Méditerranée, Marseille, France. mjoubert@ap-hm.fr
authors.forename: Michel
authors.initials: M
authors.lastname: Joubert
authors.forename: Arnaud
authors.initials: A
authors.lastname: Gaudinat
authors.forename: Célia
authors.initials: C
authors.lastname: Boyer
authors.forename: Antoine
authors.initials: A
authors.lastname: Geissbuhler
authors.forename: Marius
authors.initials: M
authors.lastname: Fieschi
authors.lastname: Hon Foundation Council Members
mesh_terms: D000043:Abstracting and Indexing; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D020407:Internet; D016347:Medical Records Systems, Computerized; D046650:Medical Subject Headings; D033283:Patient Access to Records; D014584:User-Computer Interface