title: How much should we expect? Family caregiving of AIDS patients in rural Uganda.
abstract: The aim of this study was to measure the burden of care for family caregivers of AIDS patients. A cross-sectional exploratory design was used to describe the care experiences of family caregivers of AIDS care recipients. A questionnaire was used to interview 120 family caregivers of AIDS patients from four rural areas in western Uganda. The questions asked were related to 12 domains of family caregiving. Care burden scores of caregivers were calculated. It was found that care burden scores were high in all domains except those regarding relationships within the families and substance abuse. Serious work overload and low health status were reported. The high burden of caregiving puts family caregivers at risk for decreased health status and increased social isolation and depression.
authors.affiliation: Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton, Canada.
authors.forename: Walter
authors.initials: W
authors.lastname: Kipp
authors.forename: Denis
authors.initials: D
authors.lastname: Tindyebwa
authors.forename: Edna
authors.initials: E
authors.lastname: Karamagi
authors.forename: Tom
authors.initials: T
authors.lastname: Rubaale
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000451:nursing*; D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology* / Q000706:statistics & numerical data; D002648:Child; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D003863:Depression / Q000453:epidemiology / Q000209:etiology; D005190:Family / Q000523:psychology*; D005260:Female; D006301:Health Services Needs and Demand; D006304:Health Status; D006701:Home Nursing / Q000523:psychology* / Q000706:statistics & numerical data; D006801:Humans; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D012424:Rural Population / Q000706:statistics & numerical data; D012944:Social Support; D012959:Socioeconomic Factors; D013315:Stress, Psychological / Q000453:epidemiology / Q000209:etiology; D011795:Surveys and Questionnaires; D014454:Uganda / Q000453:epidemiology; D016526:Workload