title: Validation of the Subjective and Objective Family Burden Interview (SOFBI/ECFOS) in primary caregivers to adults with intellectual disabilities living in the community.
abstract: BACKGROUND
  There is little information on the psychometric properties of instruments for assessing family care burden in adults with intellectual disabilities (ID). The aim of this study is therefore to analyse the usefulness of the 'Subjective and Objective Family Burden Interview' (SOFBI) in the assessment of principal caregivers in Spain.
  
  
  METHODS
  The SOFBI was administered to 166 principal caregivers of adults with ID in a vocational centre. The psychometric analysis included: internal consistency, inter-rater and test-retest reliability, construct validity, convergent validity with the World Health Organization's Disability Assessment Schedule II, and feasibility.
  
  
  RESULTS
  The Cronbach's alpha was 0.88 for the overall interview and always above 0.7 in the quantitative subdomains. The Kappa coefficients for test-retest were between 0.5 and 0.8, whereas inter-rater agreement was nearly perfect. Maximum-likelihood factor analysis showed four well-defined factors, which fitted the previously designed domains. Feasibility was also good.
  
  
  CONCLUSIONS
  The SOFBI is a multi-domain, modular instrument which is feasible, reliable and valid for measuring the burden of family caregivers to adults with ID living in the community.
authors.affiliation: Department of Psychiatry, Hospital Universitario de la Princesa, Universidad Autónoma de Madrid, Madrid, Spain. almudena.martorell@uam.es
authors.forename: A
authors.initials: A
authors.lastname: Martorell
authors.forename: A
authors.initials: A
authors.lastname: Pereda
authors.forename: L
authors.initials: L
authors.lastname: Salvador-Carulla
authors.forename: S
authors.initials: S
authors.lastname: Ochoa
authors.forename: J L
authors.initials: JL
authors.lastname: Ayuso-Mateos
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology* / Q000534:rehabilitation; D007360:Intelligence; D007406:Interview, Psychological; D008297:Male; D011594:Psychometrics / Q000706:statistics & numerical data; D012050:Rehabilitation, Vocational; D015203:Reproducibility of Results; D012959:Socioeconomic Factors; D013030:Spain; D011795:Surveys and Questionnaires