Issues related to providing quality pediatric palliative care in the community.
The medical practitioner in the community is in a unique position to assist children and their families from the time of diagnosis with a life-threatening condition through to the end of life. The purpose of this article is to inform medical practitioners who care for children with complex, chronic, and life-limiting conditions about pediatric palliative care in the community. It is intended as a guide to improve understanding about (1) the misconceptions and barriers surrounding the provision of care in the community for children with chronic, complex, and life-limiting conditions; (2) the availability of services for care in the community; (3) challenges concerning out-of hospital do-not-attempt-resuscitation orders for children; and (4) reimbursement issues that impact the provision of care.
Carroll
Jean M
JM
The Pediatric Advanced Care Team, The Children's Hospital of Philadelphia, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104, USA. carrollJ@email.chop.edu
Torkildson
Christy
C
Winsness
Jeannine S
JS
D002648:Child; D003153:Community Health Services / Q000592:standards*; D006699:Home Care Services / Q000592:standards; D017051:Hospice Care / Q000592:standards; D006801:Humans; D007349:Insurance, Health, Reimbursement; D010166:Palliative Care / Q000592:standards*; D010372:Pediatrics; D011787:Quality of Health Care / Q000592:standards*