title: Change in what matters to palliative patients: eliciting information about adaptation with SEIQoL-DW.
abstract: This study was carried out to investigate the usefulness of the SEIQoL-DW to elicit information about response shifts in palliative patients. The instrument measures individual quality of life and allows respondents to choose, rate and weight important areas of life (cues). We explored patients' reconceptualizations (ie, change in cues) and their value change (ie, change of cues weights). Results of 21 patients showed what mattered to these patients and how they had adjusted to deteriorating health. There is a risk that repeated measurements do not provide all the information that is potentially present and relevant to explore response shifts. But clear instructions to interviewers, such as careful listening, probing self-evident cues such as health and family, and accurate recording of cues on the forms may overcome this risk. Future research is recommended to explore the possibilities of regular assessments to facilitate better adjustment of patients.
authors.affiliation: Department of Public and Occupational Health, EMGO Institute, VU University Medical Centre, Amsterdam, The Netherlands. MJ.Westerman@vumc.nl
authors.forename: Marjan J
authors.initials: MJ
authors.lastname: Westerman
authors.forename: Tony
authors.initials: T
authors.lastname: Hak
authors.forename: Anne-Mei
authors.initials: AM
authors.lastname: The
authors.forename: Michael A
authors.initials: MA
authors.lastname: Echteld
authors.forename: Harry J M
authors.initials: HJ
authors.lastname: Groen
authors.forename: Gerrit
authors.initials: G
authors.lastname: van der Wal
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D018288:Carcinoma, Small Cell / Q000523:psychology*; D003463:Cues; D003695:Delivery of Health Care / Q000379:methods; D005260:Female; D006801:Humans; D008175:Lung Neoplasms / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010166:Palliative Care / Q000523:psychology*; D017060:Patient Satisfaction; D011788:Quality of Life; D019452:Terminally Ill / Q000523:psychology*