Living with epilepsy: ordinary people coping with extraordinary situations.
This replicated study explores the ordinary people theory generated in the original research among American youth with cystic fibrosis through the experience of Israeli youth with epilepsy. The authors used the qualitative life history method in a sample of 14 adolescents and young adults with epilepsy. They employed the constant comparative method of analysis to analyze the data collected from the in-depth interviews. The results show that epilepsy was not central to the participants' everyday lives. Their perceptions of the disease followed developmental stages. The authors found that coping methods were adaptive and took into account social stigma and practical outcomes. This study provides a positive and normalcy perspective of exploring the lifestyle of people with chronic diseases and disabilities as opposed to deficit models. It adds to the trustworthiness of the model's cross-cultural applicability through its use in a different context among a population with a different diagnosis.
Admi
Hanna
H
Rambam Health Care Campus, Nursing Department, University of Haifa, Israel.
Shaham
Beatrice
B
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002908:Chronic Disease; D004827:Epilepsy / Q000523:psychology*; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D007557:Israel; D008297:Male; D011287:Prejudice; D000297:Psychology, Adolescent; D011594:Psychometrics; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology*; D012649:Self Concept; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires