title: Unification of hematopoietic stem cell transplantation registries in Japan and establishment of the TRUMP System.
abstract: There are 4 registries of hematopoietic cell transplantation in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Pediatric Hematology, Japan Marrow Donor Program, and Japan Cord Blood Bank Network; each play an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of issues with the difficulty of analyzing data in overlapping registries and multiple databases at centers affiliated with each of the 4 registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplantation registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations being performed in Japan. JSHCT played a central role in developing the "Transplant Registry Unified Management Program (TRUMP)" to enable transplantation institutes to manage patient information with emphases on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplantation registries around the world to contribute to the development of registries throughout Asia.
authors.affiliation: Department of HSCT Data Management, Nagoya University, School of Medicine, Nagoya, Japan.
authors.forename: Yoshiko
authors.initials: Y
authors.lastname: Atsuta
authors.forename: Ritsuro
authors.initials: R
authors.lastname: Suzuki
authors.forename: Ayami
authors.initials: A
authors.lastname: Yoshimi
authors.forename: Hisashi
authors.initials: H
authors.lastname: Gondo
authors.forename: Junji
authors.initials: J
authors.lastname: Tanaka
authors.forename: Akira
authors.initials: A
authors.lastname: Hiraoka
authors.forename: Koji
authors.initials: K
authors.lastname: Kato
authors.forename: Ken
authors.initials: K
authors.lastname: Tabuchi
authors.forename: Masahiro
authors.initials: M
authors.lastname: Tsuchida
authors.forename: Yasuo
authors.initials: Y
authors.lastname: Morishima
authors.forename: Makoto
authors.initials: M
authors.lastname: Mitamura
authors.forename: Keisei
authors.initials: K
authors.lastname: Kawa
authors.forename: Shunichi
authors.initials: S
authors.lastname: Kato
authors.forename: Tokiko
authors.initials: T
authors.lastname: Nagamura
authors.forename: Minoko
authors.initials: M
authors.lastname: Takanashi
authors.forename: Yoshihisa
authors.initials: Y
authors.lastname: Kodera
mesh_terms: D016208:Databases, Factual / Q000592:standards; D018380:Hematopoietic Stem Cell Transplantation; D006801:Humans; D007564:Japan; D009313:National Health Programs / Q000592:standards; D012042:Registries / Q000592:standards; D012955:Societies, Medical / Q000592:standards