title: Methodological issues in interviews involving people with communication impairments after acquired brain damage.
abstract: Qualitative research has made a significant contribution to the body of knowledge related to how people experience living with various chronic diseases and disabilities; however, the voices of certain vulnerable populations, particularly those with impairments that affect their ability to communicate, are commonly absent. In recent years, a few researchers have attempted to explore the most effective ways to ensure that the voices of people with communication impairments from acquired brain damages can be captured in qualitative research interviews; yet several methodological issues related to including this population in qualitative research remained unexamined. In this article, the authors draw on insights derived from their research on the experiences of adult survivors of stroke and traumatic brain injury to describe methodological issues related to sampling, informed consent, and fatigue in participant and researcher while also making some recommendations for conducting qualitative interviews with these populations.
authors.affiliation: Orebro University.
authors.forename: Eva
authors.initials: E
authors.lastname: Carlsson
authors.forename: Barbara L
authors.initials: BL
authors.lastname: Paterson
authors.forename: Shannon
authors.initials: S
authors.lastname: Scott-Findlay
authors.forename: Margareta
authors.initials: M
authors.lastname: Ehnfors
authors.forename: Anna
authors.initials: A
authors.lastname: Ehrenberg
mesh_terms: D001925:Brain Damage, Chronic / Q000150:complications* / Q000523:psychology; D003147:Communication Disorders / Q000523:psychology*; D005221:Fatigue; D006801:Humans; D007258:Informed Consent / Q000592:standards; D007407:Interviews as Topic / Q000379:methods*; D036301:Qualitative Research; D035844:Researcher-Subject Relations / Q000523:psychology; D018434:Sickness Impact Profile