title: Breast cancer survivors: information and support after treatment.
abstract: Women living with and beyond breast cancer have special health care needs. Persistent physical and psychological symptoms such as fatigue, pain, sleep disturbances, and fear of recurrence as well as quality-of-life outcomes have been described in women during and after breast cancer. Much less information exists on the experience of women completing treatment. This study describes the information and support needs of women following breast cancer treatment. A semistructured interview guide designed by the research team was used to gather data. Major findings indicate that women continue to experience a variety of physical and psychological symptoms and have concrete information and support needs following therapy, including the need for information on persistent treatment effects, emotional distress, and lifestyle changes. Findings illustrate that there is need to provide comprehensive information and support to help women transition from breast cancer therapy. Additional research is needed to optimize approaches to providing posttreatment care.
authors.affiliation: Yale Cancer Center, New Haven, Connecticut, USA.
authors.forename: Michelle
authors.initials: M
authors.lastname: Cappiello
authors.forename: Regina S
authors.initials: RS
authors.lastname: Cunningham
authors.forename: M Tish
authors.initials: MT
authors.lastname: Knobf
authors.forename: Diane
authors.initials: D
authors.lastname: Erdos
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000359:Aftercare / Q000379:methods / Q000523:psychology; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D001943:Breast Neoplasms / Q000150:complications / Q000523:psychology* / Q000628:therapy; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008019:Life Style; D008875:Middle Aged; D020380:Needs Assessment; D009511:New England; D015404:Nursing Methodology Research; D010353:Patient Education as Topic; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*