title: Caring for adults with pediatric genetic diseases: a growing need.
authors.forename: Edward J
authors.initials: EJ
authors.lastname: Lose
authors.forename: Nathaniel H
authors.initials: NH
authors.lastname: Robin
mesh_terms: D000328:Adult; D003550:Cystic Fibrosis / Q000453:epidemiology / Q000628:therapy; D003695:Delivery of Health Care / Q000458:organization & administration*; D004314:Down Syndrome / Q000453:epidemiology / Q000628:therapy; D030342:Genetic Diseases, Inborn / Q000628:therapy*; D006301:Health Services Needs and Demand / Q000639:trends; D006801:Humans; D008017:Life Expectancy; D010348:Patient Care Team; D017741:Survivors; D014481:United States