International lower urinary tract function basic spinal cord injury data set.
OBJECTIVE
To create the International Lower Urinary Tract Function Basic Spinal Cord Injury (SCI) Data Set within the framework of the International SCI Data Sets.


METHODS
International working group.


METHODS
The draft of the Data Set was developed by a working group consisting of the members appointed by the International Continence Society, the European Association of Urology, the American Spinal Injury Association (ASIA), the International Spinal Cord Society (ISCoS) and a representative of the Executive Committee of the International SCI Standards and Data Sets. The final version of the Data Set was developed after review and comments by the members of the Executive Committee of the International SCI Standards and Data Sets, the ISCoS Scientific Committee, ASIA Board, relevant and interested (international) organizations and societies (around 40) and persons, and the ISCoS Council. Endorsement of the Data Set by relevant organizations and societies will be obtained. To make the Data Set uniform, each variable and each response category within each variable have been specifically defined in a way that is designed to promote the collection and reporting of comparable minimal data.


RESULTS
Variables included in the International Lower Urinary Tract Function Basic SCI Data Set are as follows: date of data collection, urinary tract impairment unrelated to spinal cord lesion, awareness of the need to empty the bladder, bladder emptying, average number of voluntary bladder emptyings per day during the last week, incontinence within the last 3 months, collecting appliances for urinary incontinence, any drugs for the urinary tract within the last year, surgical procedures on the urinary tract and any change in urinary symptoms within the last year. Complete instruction for data collection, data sheet and training cases available at the website of ISCoS (www.iscos.org.uk) and ASIA (www.asia-spinalinjury.org).
Clinic for Spinal Cord Injuries, NeuroScience Centre, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark. finbs@rh.dk
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Biering-Sørensen
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Craggs
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Kennelly
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Schick
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Wyndaele
D015897:Comorbidity; D003625:Data Collection / Q000592:standards; D003628:Database Management Systems; D016208:Databases, Factual; D004185:Disability Evaluation; D014943:Global Health; D006801:Humans; D016247:Information Storage and Retrieval; D007390:International Agencies; D007391:International Cooperation; D017063:Outcome Assessment, Health Care / Q000379:methods*; D011159:Population Surveillance; D020127:Recovery of Function; D012021:Reflex, Abnormal; D013119:Spinal Cord Injuries / Q000453:epidemiology*; D011795:Surveys and Questionnaires / Q000592:standards*; D001743:Urinary Bladder / Q000294:innervation / Q000503:physiopathology; D001750:Urinary Bladder, Neurogenic / Q000453:epidemiology* / Q000534:rehabilitation; D014546:Urinary Catheterization; D014549:Urinary Incontinence / Q000453:epidemiology / Q000534:rehabilitation