Adolescents' experiences of well-being when living with a long-term illness or disability.
Present-day society has produced changes in family living patterns and conditions and this has resulted in new stressors and health problems. Most children and adolescents with chronic diseases and disabilities, who were previously cared for at hospitals and institutions for long periods, are now integrated in society and they are expected to live a normal life in the conditions that currently prevail. The number of young people with long-term illnesses/disability has increased worldwide during the last decades. There is lack of studies relating to the way young people regard their daily lives and factors that are important for their well-being. The aim of this study was to describe the meaning of feeling good in daily life in adolescents living with a long-term illness or disability. Eight boys and seven girls, aged between 12 and 19 years, with different conditions of long-term illness or disability, participated in the study. Tape-recorded interviews were conducted between the years 2003-2004 and the data were analysed using content analysis. The results revealed that the adolescents with long-term illness generally experienced well-being like everybody else. Three themes were found to be important in order to feel good: 'a feeling of acceptance of illness/disability as a natural part of life', 'a feeling of support' and 'a feeling of personal growth'. This study concludes that adolescents with long-term illness or disabilities experience well-being when they are allowed to prepare for living a normal life integrated in society.
The Sahlgrenska Academy at Göteborg University, Institute of Health and Care Sciences, Göteborg, Sweden. leeni.berntsson@fhs.gu.se
Leeni
L
Berntsson
Marie
M
Berg
Marianne
M
Brydolf
Anna-Lena
AL
Hellström
D000223:Adaptation, Psychological; D000293:Adolescent; D041923:Adolescent Development; D001294:Attitude to Health; D002908:Chronic Disease / Q000523:psychology*; D006233:Persons with Disabilities / Q000523:psychology*; D005190:Family / Q000523:psychology; D005260:Female; D033062:Friends / Q000523:psychology; D006240:Happiness; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D015404:Nursing Methodology Research; D010549:Personal Satisfaction; D000297:Psychology, Adolescent; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D020377:Self Efficacy; D012803:Sick Role; D012944:Social Support; D011795:Surveys and Questionnaires; D013548:Sweden