[CFQoL questionnaire as an assessment tool of quality of life in patients with cystic fibrosis].
The number of studies assessing quality of life, QOL, in patients with cystic fibrosis is quite small in world's and Polish literature, when compared with explosion of research concerning that topic in other disorders of the respiratory system. It is due to the fact that usage of general questionnaires or measures specific for other respiratory diseases turns out to be insufficient in the case of cystic fibrosis. Therefore, studies aimed at development and utilization of specific quality of life measures in cystic fibrosis are recommended. In this paper, quality of life measurement tools in cystic fibrosis and rules of their application are presented. Attention was paid to CFQoL, English questionnaire by Gee et al., which was validated as a quality of life measurement tool in cystic fibrosis (adults and adolescents). CFQoL, which Polish research proved to be a reliable tool as far as its psychometric parameters were concerned, was characterized here.
Debska
Grazyna
G
Instytut Pielegniarstwa w Nowym Targu, Podhalańska Państwowa Wyzsza Szkoła Zawodowa grace10@vp.pl
Mazurek
Henryk
H
D000293:Adolescent; D000328:Adult; D003550:Cystic Fibrosis / Q000523:psychology*; D006304:Health Status; D006801:Humans; D011594:Psychometrics / Q000295:instrumentation*; D011788:Quality of Life; D015203:Reproducibility of Results; D012141:Respiratory Tract Infections; D012680:Sensitivity and Specificity; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires