The burden of normality: a framework for rehabilitation after epilepsy surgery.
This paper describes a conceptual framework that generates a modus operandi for rehabilitation after epilepsy surgery derived from regular longitudinal and prospective follow-up of patients and families. The framework focuses on patient experiences of undergoing surgery placed within the context of the family and broader community. It adopts a holistic view of patient care to understand the complex interactions between neurobiological and psychosocial factors that determine surgical outcome in the eyes of the patient, family, and clinical team. It emphasises the importance of anticipating postoperative adjustment issues using a preventive treatment approach.
Comprehensive Epilepsy Program, Epilepsy Research Centre, Austin Hospital, Melbourne, Australia. sarahw@unimelb.edu.au
Sarah J
SJ
Wilson
Peter F
PF
Bladin
Michael M
MM
Saling
D000223:Adaptation, Psychological; D002908:Chronic Disease; D017281:Cost of Illness; D004827:Epilepsy / Q000523:psychology / Q000534:rehabilitation* / Q000601:surgery*; D006304:Health Status; D006694:Holistic Health; D006801:Humans; D011182:Postoperative Care / Q000379:methods*; D011788:Quality of Life; D012917:Social Adjustment; D016896:Treatment Outcome