Social stigma for adults and children with epilepsy.
For many people with epilepsy, the continuing social reality of their condition is as a stigma. Epilepsy stigma has three different levels; internalized, interpersonal, and institutional. While there have been documented improvements in public attitudes towards epilepsy, the remnants of "old" ideas about epilepsy continue to inform popular concepts resulting in a difficult social environment for those affected. The social and quality of life problems arising from a diagnosis of epilepsy can represent greater challenges than are warranted by its clinical severity. The relationship between stigma and impaired quality of life is well documented. Tackling the problem of stigma effectively requires that all three of different levels at which it operates are systematically addressed.
Division of Public Health, University of Liverpool, Liverpool, United Kingdom. ajacoby@liv.ac.uk
Ann
A
Jacoby
Joan K
JK
Austin
D000328:Adult; D000367:Age Factors; D001294:Attitude to Health; D002648:Child; D017281:Cost of Illness; D004827:Epilepsy / Q000453:epidemiology / Q000523:psychology*; D006801:Humans; D007398:Interpersonal Relations; D011788:Quality of Life; D012917:Social Adjustment; D013240:Stereotyping