Maternal experiences making a decision about heart surgery for their young children with congenital heart disease.
OBJECTIVE
The aim of this study was to investigate the essence of the experience of mothers during the decision-making process when facing their less than three-year-old child undergoing heart surgery due to congenital heart disease (CHD).


METHODS
In this phenomenological study in Taiwan nine mothers were interviewed in their homes. They were invited to share their experience of family interactions and relationships while facing a decision about their child's heart surgery. The interviews were recorded and transcribed for further analysis according to Colaizzi's phenomenological methodology.


RESULTS
The essence of the maternal experience themes during the decision-making process included (i) understanding the surgery step by step, (ii) role pressure, (iii) constructing care-taking ability, (iv) endeavouring to maintain family functioning while preparing for surgery and (v) deliberate consideration to make the correct decision.


CONCLUSIONS
When parents face their child having CHD and plan heart surgery, the whole family is living through a stressful decision-making process. According to the results of this study, it is obvious that the caregivers and their whole families experience psychological distress, role reorganization and remodelling of family functioning.


CONCLUSIONS
The results of this study provide evidence-based essential knowledge that will assist the management of such decision-making processes and help to prepare the child and the family to have confidence in the heart surgery.
Lan
Shu-Fan
SF
TzuHui Institute of Technology, Shan-Ming District, Kaohsiung City, Taiwan.
Mu
Pei-Fan
PF
Hsieh
Kai-Sheng
KS
D000223:Adaptation, Psychological; D000328:Adult; D001294:Attitude to Health; D006348:Cardiac Surgical Procedures / Q000523:psychology*; D002675:Child, Preschool; D003657:Decision Making; D005190:Family / Q000523:psychology; D005192:Family Health; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006330:Heart Defects, Congenital / Q000601:surgery*; D006379:Helping Behavior; D006801:Humans; D007223:Infant; D008297:Male; D009035:Mothers / Q000193:education / Q000523:psychology* / Q000706:statistics & numerical data; D024802:Nurse's Role / Q000523:psychology; D015404:Nursing Methodology Research; D011300:Preoperative Care / Q000379:methods / Q000523:psychology; D011368:Professional-Family Relations; D012380:Role; D013315:Stress, Psychological / Q000523:psychology; D011795:Surveys and Questionnaires; D013624:Taiwan