Self- and caregiver-reported experiences of young adults with developmental disabilities.
The purpose of this study was to describe the experiences of young adults with developmental disabilities (DD) who were living in community settings with the aid of government-supported services. Six male and 10 female volunteer subjects (mean age = 24 years) were interviewed and the narrative data were analyzed revealing themes in six categories: (1) Home Life, (2) Relationships, (3) Health and Health Care, (4) Personal Growth and Accomplishments, (5) Occupation, and (6) Transportation. Subjects' most positive experiences were associated with integrated, comprehensive and timely services delivered by knowledgeable and sensitive service providers. Strong parental advocacy facilitated these features. Additionally, experiences were most positive when daily activities occurred within the sphere of either family or the disability community, as opposed to the broader community. Research is suggested to further understand the dynamics of integration in the broader community and to devise strategies to successfully facilitate this integration.
Roush
Susan E
SE
College of Human Science & Services, Physical Therapy Department, University of Rhode Island, Kingston, RI 02881, USA. roush@uri.edu
Fresher-Samways
Kathleen
K
Stolgitis
Jill
J
Rabbitt
Jody
J
Cardinal
Ed
E
D000124:Achievement; D000203:Activities of Daily Living; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002658:Developmental Disabilities / Q000523:psychology*; D006233:Persons with Disabilities / Q000523:psychology*; D004651:Employment; D005260:Female; D033062:Friends; D006304:Health Status; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology; D012944:Social Support; D014186:Transportation