Epidermolysis bullosa: a case study in transport, treatment, and care.
There are skin rashes, lesions, and disorders in the neonatal period that require emergent assessment and consultation. A neonate presented with epidermolysis bullosa and provided an opportunity for learning about this condition and various dermatologic resources, primarily DermAtlas. The neonate with suspected epidermolysis bullosa that is delivered in a community setting usually requires transport to a neonatal intensive care unit with pediatric subspecialty care. A case study involving the transport of a neonate with this condition is reviewed, followed by a discussion of the etiology, incidence, pathogenesis, diagnosis, and nursing care before and during transport and parental considerations. The resources available in the neonatal community, primarily DermAtlas, for the identification of epidermolysis bullosa and other dermatological conditions is explored.
Price-Douglas
Webra
W
Maryland Regional Neonatal Transport Program, The Johns Hopkins Hospital, Baltimore MD 21287, USA. wpdougla@jhmi.edu
Diehl-Svrjcek
Beth
B
D004820:Epidermolysis Bullosa / Q000175:diagnosis / Q000451:nursing / Q000503:physiopathology / Q000628:therapy; D006801:Humans; D007231:Infant, Newborn; D007363:Intensive Care Units, Neonatal; D008297:Male; D014187:Transportation of Patients