Parents' concerns about issues related to their children's genetic conditions.
OBJECTIVE
The purpose of this analysis was to examine parents' (N = 142) concerns about issues (i.e., privacy of information, insurance, healthcare costs, employment, school) related to their children's genetic conditions.


METHODS
Using a series of matrices, thematic analysis was conducted focusing on parents' concerns.


RESULTS
Parents were less concerned with privacy and more concerned with insurance, healthcare costs, employment, and school issues.


CONCLUSIONS
Nurses and other healthcare professionals need to give parents the opportunity to discuss their concerns and to assist parents with strategies and resources to meet the needs of their children and families.
Gallo
Agatha M
AM
Department of Maternal Child Nursing, College of Nursing, University of Illinois at Chicago, Chicago, IL, USA. agallo@uic.edu
Hadley
Emily K
EK
Angst
Denise B
DB
Knafl
Kathleen A
KA
Smith
Carrol A M
CA
D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D004493:Education; D004651:Employment; D005260:Female; D005382:Financing, Personal; D030342:Genetic Diseases, Inborn; D030661:Genetic Privacy; D006801:Humans; D019458:Insurance Coverage; D007348:Insurance, Health; D008297:Male; D008875:Middle Aged; D010290:Parents; D014481:United States