[The unification of hematopoietic stem cell transplantation registry in Japan and establishment of the TRUMP system].
There are four registries of hematopoietic cell transplant in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Pediatric Hematology, Japan Marrow Donor Program and Japan Cord Blood Bank Network, each playing an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of difficulties with analyzing data in overlapping registries and multiple databases at centers affiliated with each of the four registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplant registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations performed in Japan. JSHCT played a central role in developing the "Transplant Registry Unified Management Program (TRUMP)" to enable transplant institutes to manage patient information with emphasis on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplant registries around the world to contribute to the development of registries throughout Asia.
Atsuta
Yoshiko
Y
Department of HSCT Data Management, Nagoya University, School of Medicine.
Suzuki
Ritsuro
R
Yoshimi
Ayami
A
Gondo
Hisashi
H
Tanaka
Junji
J
Hiraoka
Akira
A
Kato
Koji
K
Tabuchi
Ken
K
Tsuchida
Masahiro
M
Morishima
Yasuo
Y
Mitamura
Makoto
M
Kawa
Keisei
K
Kato
Shunichi
S
Nagamura
Tokiko
T
Takanashi
Minoko
M
Kodera
Yoshihisa
Y
D001330:Electronic Data Processing; D018380:Hematopoietic Stem Cell Transplantation; D006801:Humans; D007564:Japan; D012042:Registries