title: Cancer registration in Pakistan: contemporary state of affairs.
abstract: An estimated 7.6 million mortalities were attributed to cancers in 2005 across the globe, and the figures keep mounting. The existing prevalence rate for all reportable cancers is at 25 million, projected to ascend to 30 million around year 2020. Some 70% of these will burden the health care services in under-resourced countries. However, reliable statistics on the incidence, prevalence, mortality and survival rates (five and ten year) are limited. A National Cancer Control Program (NCCP) in Pakistan has existed since 1994, but little is known to the public and negligible information has been made available to medical services providers. We have a poverty of local bio-medical literature related to the specialties like oncology and cancer epidemiology. Only 175 papers are indexed by Pakmedinet, seven being relevant to the cancer registration in Pakistan, an impetus for programmed documentation, and to serve as a foundation for approach to Cyber-medicine. Infrastructure and ample requisite manpower exists locally and a number of local institutions as well as outside sources are teaming up. However, there are still quite a few issues to be looked into, including the question of who will own the data arising from this pooling of assets? A community-based approach is mandatory to allay public concerns over confidentiality and possible use of the registry data. Already, there are hurdles in attaining public approval after the intentions to found a National Cancer Registry were ventilated by the Pakistan Medical Research Council.
authors.affiliation: Health Department Punjab, Corresponding Member of International Medical Informatics Association, Pakistan. akhtar.bajwa@gmail.com
authors.forename: Faheem
authors.initials: F
authors.lastname: Akhtar
mesh_terms: D003219:Confidentiality; D006801:Humans; D009369:Neoplasms / Q000453:epidemiology / Q000517:prevention & control*; D010154:Pakistan / Q000453:epidemiology; D011159:Population Surveillance; D012042:Registries