title: Population-based controlled study of social support, self-perceived stress, activity and work issues, and access to health care in inflammatory bowel disease.
abstract: BACKGROUND
  The Manitoba IBD Cohort Study is a longitudinal, population-based study of multiple determinants of health outcomes in persons with inflammatory bowel disease (IBD) diagnosed within 7 years at enrollment. In this cross-sectional substudy we compared IBD participants' levels of social support, self-perceived stress, disability, and access to healthcare with those of a matched community sample.
  
  
  METHODS
  IBD participants (n = 388) were interviewed using the Canadian Community Health Surveys (CCHS) 1.1 and 1.2 to assess psychosocial variables. The national CCHS data were accessed to extract a community comparison group, matched on age, sex, and geographic residence.
  
  
  RESULTS
  Compared to the community sample, IBD participants received more tangible, affective, or emotional support in the past year and were more likely to have experienced a positive social interaction. Those with IBD were as likely to be employed as those in the community sample, although they reported greater rates of reduced activity and days missed. Work was not identified as a significant source of stress, but physical health was more likely to be identified as a main stressor by those with active IBD compared to the non-IBD sample. Individuals with IBD were twice as likely to report unmet healthcare needs than the community sample; however, there was agreement across both groups regarding common barriers, including long waits and availability.
  
  
  CONCLUSIONS
  While the disease may contribute to greater interference with work quality and daily activities, IBD patients have similar levels of stress and appear to have enhanced social supports relative to those in the community without IBD.
authors.affiliation: University of Manitoba IBD Clinical & Research Centre, University of Manitoba, Winnipeg, Manitoba, Canada.
authors.forename: Linda
authors.initials: L
authors.lastname: Rogala
authors.forename: Norine
authors.initials: N
authors.lastname: Miller
authors.forename: Lesley A
authors.initials: LA
authors.lastname: Graff
authors.forename: Patricia
authors.initials: P
authors.lastname: Rawsthorne
authors.forename: Ian
authors.initials: I
authors.lastname: Clara
authors.forename: John R
authors.initials: JR
authors.lastname: Walker
authors.forename: Lisa
authors.initials: L
authors.lastname: Lix
authors.forename: Jason P
authors.initials: JP
authors.lastname: Ediger
authors.forename: Cory
authors.initials: C
authors.lastname: McPhail
authors.forename: Charles N
authors.initials: CN
authors.lastname: Bernstein
mesh_terms: D000328:Adult; D015331:Cohort Studies; D003625:Data Collection; D004651:Employment; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000523:psychology*; D008297:Male; D008350:Manitoba; D011788:Quality of Life; D012944:Social Support; D013315:Stress, Psychological