title: Testing the Theory of Self-care Management for sickle cell disease.
abstract: Factors predicting health outcomes in persons with sickle cell disease (SCD) were investigated within the framework of the theory of self-care management for SCD, which proposes that vulnerability factors negatively affect health care outcomes and self-care management resources and positively mediate the relationship between vulnerability factors and health care outcomes. A cross-sectional descriptive design was used to test the model with a sample of 232 African American adults with SCD. Results supported the negative effect of vulnerability factors on health outcomes. The overall model was supported, however, self-care management resources did not mediate the relationship between vulnerability and health care outcomes. The findings provide support for interventions to increase self-care management resources to improve health care outcomes.
authors.affiliation: School of Nursing, University of North Carolina at Chapel Hill, Carrington Hall, Campus Box 7460, Chapel Hill, NC 27599-7460, USA.
authors.forename: Coretta M
authors.initials: CM
authors.lastname: Jenerette
authors.forename: Carolyn
authors.initials: C
authors.lastname: Murdaugh
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001741:Black or African American / Q000193:education / Q000208:ethnology*; D000704:Analysis of Variance; D000755:Anemia, Sickle Cell / Q000208:ethnology* / Q000235:genetics / Q000517:prevention & control; D001242:Assertiveness; D001294:Attitude to Health / Q000208:ethnology*; D003430:Cross-Sectional Studies; D005163:Factor Analysis, Statistical; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D017063:Outcome Assessment, Health Care; D011582:Psychological Theory; D011788:Quality of Life / Q000523:psychology; D012307:Risk Factors; D012648:Self Care / Q000379:methods / Q000523:psychology*; D020377:Self Efficacy; D012944:Social Support; D012959:Socioeconomic Factors; D015144:Southeastern United States; D035862:Vulnerable Populations / Q000523:psychology