title: Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination.
abstract: Most parents of children with cancer have dual primary goals: a primary cancer-directed goal of cure and a primary comfort-related goal of lessening suffering. Early introduction of palliative care principles and practices into their child's treatment is respectful and supportive of these goals. The Individualized Care Planning and Coordination Model is designed to integrate palliative care principles and practices into the ongoing care of children with cancer. Application of the model helps clinicians to generate a comprehensive individualized care plan that is implemented through Individualized Care Coordination processes as detailed here. Clinicians' strong desire to provide compassionate, competent, and sensitive care to the seriously ill child and the child's family can be effectively translated into clinical practice through these processes.
authors.affiliation: Department of Oncology, St Jude Children's Research Hospital, Memphis, TN 38105-2794, USA.
authors.forename: Justin N
authors.initials: JN
authors.lastname: Baker
authors.forename: Pamela S
authors.initials: PS
authors.lastname: Hinds
authors.forename: Sheri L
authors.initials: SL
authors.lastname: Spunt
authors.forename: Raymond C
authors.initials: RC
authors.lastname: Barfield
authors.forename: Caitlin
authors.initials: C
authors.lastname: Allen
authors.forename: Brent C
authors.initials: BC
authors.lastname: Powell
authors.forename: Lisa H
authors.initials: LH
authors.lastname: Anderson
authors.forename: Javier R
authors.initials: JR
authors.lastname: Kane
mesh_terms: D019033:Delivery of Health Care, Integrated / Q000941:ethics / Q000379:methods*; D017051:Hospice Care; D006801:Humans; D009369:Neoplasms / Q000628:therapy*; D010166:Palliative Care / Q000941:ethics; D010347:Patient Care Planning / Q000941:ethics; D011785:Quality Assurance, Health Care; D013727:Terminal Care