title: Photovoice as participatory action research tool for engaging people with intellectual disabilities in research and program development.
abstract: People with intellectual disabilities have few opportunities to actively participate in research affecting programs and policies. Employment of participatory action research has been recommended. Although use of this approach with people who have intellectual disabilities is growing, articles on specific participatory research methods are rare. Photovoice is a participatory method often used with underrepresented groups and is effective for engaging people with intellectual disabilities in research or program development. A literature review is presented for use with this population as is a description of Photovoice as a participatory research tool for engaging people with intellectual disabilities. An example of a participatory study among people with intellectual disabilities is provided. Benefits and challenges of employing Photovoice with this population are discussed.
authors.affiliation: Health Policy, Management, & Behavior, University at Albany, One University Place, Rensselaer, NY 12144, USA. jjurkowski@albany.edu
authors.forename: Janine M
authors.initials: JM
authors.lastname: Jurkowski
mesh_terms: D000328:Adult; D000368:Aged; D005006:Ethnicity; D005260:Female; D006801:Humans; D008607:Intellectual Disability; D008297:Male; D008875:Middle Aged; D018579:Patient Selection; D016730:Program Development; D012107:Research Design; D013663:Teaching / Q000379:methods