Is newborn screening for cystic fibrosis a basic human right?
Because it is clearly in the best interests of children with cystic fibrosis to be diagnosed early at <2 months, which can only be achieved routinely by newborn screening, it can be argued that this should be a human right. However, if more harm than good is likely, or if regional "readiness" does not exist, newborn screening should be deferred.
Farrell
Philip M
PM
The School of Medicine and Public Health, University of Wisconsin-Madison, 610 Walnut Street, 785 WARF, Madison, WI 53726-2397, USA. pmfarrell@wisc.edu <pmfarrell@wisc.edu>
D003550:Cystic Fibrosis / Q000175:diagnosis*; D026690:Ethics, Clinical; D006806:Human Rights; D006801:Humans; D007231:Infant, Newborn; D015997:Neonatal Screening / Q000941:ethics* / Q000592:standards