title: What we know (and do not know) about raising children with complex continuing care needs.
authors.forename: Franco A
authors.initials: FA
authors.lastname: Carnevale
authors.forename: Roberta S
authors.initials: RS
authors.lastname: Rehm
authors.forename: Susan
authors.initials: S
authors.lastname: Kirk
authors.forename: Patricia
authors.initials: P
authors.lastname: McKeever
mesh_terms: D002648:Child; D002654:Child Care / Q000458:organization & administration; D017281:Cost of Illness; D019988:Children with Disabilities / Q000523:psychology / Q000534:rehabilitation; D006301:Health Services Needs and Demand / Q000458:organization & administration*; D054625:Healthcare Disparities; D006701:Home Nursing / Q000458:organization & administration*; D006801:Humans; D008020:Life Support Care / Q000458:organization & administration*; D008134:Long-Term Care / Q000458:organization & administration*; D010290:Parents / Q000193:education / Q000523:psychology; D010348:Patient Care Team / Q000458:organization & administration; D010371:Pediatric Nursing / Q000458:organization & administration; D012944:Social Support