title: [The Hospital Information System of the Brazilian National Unified Health System: a preliminary evaluation of performance in monitoring RhD hemolytic disease of the newborn].
abstract: This study aimed to evaluate the adequacy of the Hospital Information System of the National Unified Health System (SIH-SUS) in identifying cases of RhD hemolytic disease of the newborn (HDN) at the Fernandes Figueira Institute (IFF/FIOCRUZ) from 1998 to 2003. Neonatal records, data from the Medical Archives, and AIH (Hospital Admissions Authorization Form) data consolidated in the SIH-SUS were analyzed. Cases were identified according to the following fields: principal diagnosis, secondary diagnosis, and procedure performed. During the period studied, 194 cases of HDN were diagnosed. The Medical Archives registered 148 newborns with HDN, however only 147 AIHs were issued and 145 consolidated in the SIH-SUS. Among these 145 cases, 84 cited HDN as the principal diagnosis, while secondary diagnosis identified 38 additional cases and the procedures performed failed to identify any further cases. Thus, the SIH-SUS identified only 122 (62.9%) of the 194 cases of HDN treated at the IFF/FIOCRUZ. Although it is necessary to evaluate other units, the SIH-SUS does not appear to be reliable for monitoring HDN. Additional studies are essential for employing secondary administrative data in the context of epidemiological surveillance.
authors.affiliation: Departamento de Obstetrícia, Instituto Fernandes Figueira, Fundação Oswaldo Cruz, Rio de Janeiro, Brasil. lobato@centroin.com.br
authors.forename: Gustavo
authors.initials: G
authors.lastname: Lobato
authors.forename: Michael Eduardo
authors.initials: ME
authors.lastname: Reichenheim
authors.forename: Claudia Medina
authors.initials: CM
authors.lastname: Coeli
mesh_terms: D001938:Brazil / Q000453:epidemiology; D018563:Disease Notification / Q000592:standards* / Q000706:statistics & numerical data*; D004899:Erythroblastosis, Fetal / Q000175:diagnosis* / Q000453:epidemiology; D005260:Female; D006751:Hospital Information Systems / Q000592:standards* / Q000706:statistics & numerical data; D006801:Humans; D007231:Infant, Newborn; D012203:Rh Isoimmunization