title: From inclusion to independence--training consumers to review research.
abstract: Health and medical research invariably impacts on the lives of everyday people. Organisations in the developed world are increasingly involving the public in health research projects, and research governance structures and processes. The form the involvement takes varies, as does the level of involvement, from individuals, to groups, to the wider community. Lay community members can be trained to independently review health and medical research, and wider societal involvement in funding decisions, can be effectively fostered. The theoretical foundation, design and development of a task based consumer-training program, including a number of enabling factors to support the success of such training are presented. This work is likely to be of value to those planning to train consumers in technical or complex areas.
authors.affiliation: School of Medicine and Public Health, The University of Newcastle, Wallsend, NSW, Australia. carlas@nswcc.org.au
authors.forename: Carla
authors.initials: C
authors.lastname: Saunders
authors.forename: Afaf
authors.initials: A
authors.lastname: Girgis
authors.forename: Phyllis
authors.initials: P
authors.lastname: Butow
authors.forename: Sally
authors.initials: S
authors.lastname: Crossing
authors.forename: Andrew
authors.initials: A
authors.lastname: Penman