title: Community-partnered approaches to enhance chronic kidney disease awareness, prevention, and early intervention.
abstract: There is a need to increase community involvement in addressing the growing burden of chronic kidney disease (CKD). Community-partnered participatory research (CPPR) is a collaborative approach that equitably involves academic, community, and professional partners in research, and the development of shared goals and of interventional programs to attain these goals. We present a case study of the processes, strategies, and activities concerning the interface of World Kidney Day goals and community-academic partnerships using a CPPR model focused on CKD. We show that CPPR methods can be used to (1) bring together community and academic leaders around goal sharing and research agenda development, (2) convene a community/professional conference aimed at knowledge transfer and data collection among partners, and (3) develop workgroups from a diverse group of participants to collaborate in community partnered strategies to reduce the burden of CKD. Participants included health care professionals, patients, faith-based professionals, government employees and officials, academics, caregivers, and community members. Follow-up workgroups developed action plans to address shared concerns. Using CPPR practices and principles, we were able to incorporate World Kidney Day objectives with community-derived goals to develop a community-partnered infrastructure, shared objectives, and workgroups to reduce the burden of chronic kidney disease.
authors.affiliation: Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine at UCLA, Los Angeles, CA 90024, USA. RBVargas@mednet.ucla.edu
authors.forename: Roberto B
authors.initials: RB
authors.lastname: Vargas
authors.forename: Loretta
authors.initials: L
authors.lastname: Jones
authors.forename: Chrystene
authors.initials: C
authors.lastname: Terry
authors.forename: Suzanne B
authors.initials: SB
authors.lastname: Nicholas
authors.forename: Joel
authors.initials: J
authors.lastname: Kopple
authors.forename: Nell
authors.initials: N
authors.lastname: Forge
authors.forename: Anne
authors.initials: A
authors.lastname: Griffin
authors.forename: Margo
authors.initials: M
authors.lastname: Louis
authors.forename: Lilly
authors.initials: L
authors.lastname: Barba
authors.forename: Linda
authors.initials: L
authors.lastname: Small
authors.forename: Keith C
authors.initials: KC
authors.lastname: Norris
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003153:Community Health Services / Q000458:organization & administration*; D032921:Consensus; D003299:Cooperative Behavior; D004493:Education / Q000458:organization & administration; D005260:Female; D006266:Health Education / Q000458:organization & administration*; D006801:Humans; D015141:Los Angeles; D008297:Male; D008875:Middle Aged; D019982:Organizational Case Studies; D011634:Public Health; D051436:Renal Insufficiency, Chronic / Q000517:prevention & control* / Q000628:therapy*