Whose business is your pancreas? Potential privacy problems in New York City's mandatory diabetes registry.
This article examines a recent New York City health regulation that mandates the compilation and storage of individual medical data from nearly all diabetics in a centralized registry. The authors distinguish this novel registry from prior health registries and scrutinize its potential to compromise individual privacy. In order to address privacy and other concerns, the authors offer suggestions for changes to the current statutory framework of the registry that will also be useful when considering the creation of similar public health registries in other cities.
Krent
Harold J
HJ
Chicago-Kent College of Law, USA.
Gingo
Nicholas
N
Kapp
Monica
M
Moran
Rachel
R
Neal
Mary
M
Paulas
Meghan
M
Sarna
Puneet
P
Suma
Sarah
S
D003920:Diabetes Mellitus; D006801:Humans; D019221:Mandatory Reporting; D009519:New York City; D018907:Privacy / Q000331:legislation & jurisprudence*; D012042:Registries / Q000941:ethics*