title: The Events in Care Screening Questionnaire (ECSQ): a new tool to identify needs and concerns of people with HIV/AIDS.
abstract: The purpose of this paper is to present validation data on the Events in Care Screening Questionnaire (ECSQ), which was designed to identify the needs and concerns of people living with HIV/AIDS (PLWHA) in nine specific domains: adherence to medical instructions; medical problems; specialty and inpatient hospital care; preventive health care and screening and behavioral health; sexual risk behavior; family planning; psychological symptoms; substance use; and life circumstances and demands. The ECSQ is the anchor for a more comprehensive measure called "The Dynamics of Care," and was administered in the context of a longitudinal study to evaluate New York State's HIV Special Needs Plan (HIV SNP), a Medicaid managed care model for PLWHA. Participants in the study, which began in March 2003 and closed recruitment in January 2007, were NYC PLWHA who were enrolled in either a Medicaid HIV SNP or Fee-For-Service plan. Participants were recruited through HIV SNP enrollment lists, direct on-site recruitment, and fliers. The specific event domains covered in the ECSQ were selected based on the purpose of the HIV SNP and the literature describing the needs and challenges that PLWHA face. Analyses are based on data from 628 study respondents over two times points. Results suggest that the concerns identified by PLWHA were largely consistent with their health care situation, heath status, risk behavior, and personal characteristics. Findings presented here lend support for the construct validity of the ECSQ and demonstrate its value as a starting point for inquiring more fully about the experiences of patients and improving the care they receive.
authors: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, New York, New York 10022, USA. patels12@mskcc.org
authors: Shilpa
authors: S
authors: Patel
authors: Elisa
authors: E
authors: Weiss
authors: Rosy
authors: R
authors: Chhabra
authors: Laura
authors: L
authors: Ryniker
authors: Roberto
authors: R
authors: Adsuar
authors: Jason
authors: J
authors: Carness
authors: Wendy
authors: W
authors: Kahalas
authors: Carol
authors: C
authors: Delamarter
authors: Ira S
authors: IS
authors: Feldman
authors: Judy P
authors: JP
authors: Delorenzo
authors: Ellen
authors: E
authors: Tanner
authors: Bruce
authors: B
authors: Rapkin
mesh_terms: D000328:Adult; D018588:Fee-for-Service Plans; D005260:Female; D015658:HIV Infections / Q000523:psychology / Q000628:therapy*; D015438:Health Behavior; D006296:Health Services / Q000706:statistics & numerical data; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006304:Health Status; D006801:Humans; D007407:Interviews as Topic; D008137:Longitudinal Studies; D008297:Male; D008484:Medicaid; D006278:Medicare; D008875:Middle Aged; D009518:New York; D010043:Outcome and Process Assessment, Health Care; D010349:Patient Compliance; D013221:State Health Plans; D011795:Surveys and Questionnaires; D014481:United States