title: Advancing personalized health care through health information technology: an update from the American Health Information Community's Personalized Health Care Workgroup.
abstract: The Personalized Health Care Workgroup of the American Health Information Community was formed to determine what is needed to promote standard reporting and incorporation of medical genetic/genomic tests and family health history data in electronic health records. The Workgroup has examined and clarified a range of issues related to this information, including interoperability standards and requirements for confidentiality, privacy, and security, in the course of developing recommendations to facilitate its capture, storage, transmission, and use in clinical decision support. The Workgroup is one of several appointed by the American Health Information Community to study high-priority issues related to the implementation of interoperable electronic health records in the United States. It is also a component of the U.S. Department of Health and Human Services' Personalized Health Care Initiative, which is designed to create a foundation upon which information technology that supports personalized, predictive, and pre-emptive health care can be built.
authors.affiliation: Partners HealthCare, 800 Boylston Street, Suite 1150, Boston, MA 02199, USA. jglaser@partners.org
authors.forename: John
authors.initials: J
authors.lastname: Glaser
authors.forename: Douglas E
authors.initials: DE
authors.lastname: Henley
authors.forename: Gregory
authors.initials: G
authors.lastname: Downing
authors.forename: Kristin M
authors.initials: KM
authors.lastname: Brinner
mesh_terms: D016494:Computer Security; D003219:Confidentiality; D054626:Consumer Health Information; D020000:Decision Support Systems, Clinical; D005192:Family Health; D005820:Genetic Testing; D006291:Health Policy; D006801:Humans; D016347:Medical Records Systems, Computerized / Q000592:standards*; D010548:Personal Health Services / Q000592:standards*; D014481:United States