Strategies and stakeholders: minority recruitment in cancer genetics research.
The Cancer Genetics Network (CGN) is one of a growing number of large-scale registries designed to facilitate investigation of genetic and environmental contributions to health and disease. Despite compelling scientific and social justice arguments that recommend diverse participation in biomedical research, members of ethnic minority groups continue to be chronically underrepresented in such projects. The CGN studies reported in this issue used strategies well documented to increase minority participation in research activities, including use of community-targeted materials, addressing community trust concerns, and the adoption of personalized and flexible research protocols. Here, we review the outcome of these efforts to increase minority recruitment to the CGN, and ask what lessons the findings suggest for future minority recruitment initiatives.
James
Rosalina D
RD
Department of Medical History and Ethics and Genome Sciences, School of Public Health, Boston University, Boston, Mass., USA. rdjames@u.washington.edu
Yu
Joon-Ho
JH
Henrikson
Nora B
NB
Bowen
Deborah J
DJ
Fullerton
Stephanie M
SM
D036281:Genetic Research; D006801:Humans; D008495:Medical Oncology; D008913:Minority Groups; D009369:Neoplasms / Q000453:epidemiology / Q000235:genetics*; D018579:Patient Selection