title: Paternalism and fairness in clinical research.
abstract: In this paper, we defend the ethics of clinical research against the charge of paternalism. We do so not by denying that the ethics of clinical research is paternalistic, but rather by defending the legitimacy of paternalism in this context. Our aim is not to defend any particular set of paternalistic restrictions, but rather to make a general case for the permissibility of paternalistic restrictions in this context. Specifically, we argue that there is no basic liberty-right to participate in clinical research and that considerations of distributive fairness justify some paternalistic protections of research subjects.
authors.affiliation: St. Vincent's Manhattan and New York Medical College, New York, NY 10011, USA. ljansen@svcmcny.org
authors.forename: Lynn A
authors.initials: LA
authors.lastname: Jansen
authors.forename: Steven
authors.initials: S
authors.lastname: Wall
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D006801:Humans; D026706:Paternalism / Q000941:ethics*; D035842:Research Subjects