Transforming genetic research practices with marginalized communities: a case for responsive justice.
Genetics researchers often work with distinct communities. To take moral account of how their research affects these communities, they need a richer conception of justice and they need to make those communities equal participants in decision-making about how the research is conducted and what is produced and published out of it.
Goering
Sara
S
Holland
Suzanne
S
Fryer-Edwards
Kelly
K
D003159:Community-Institutional Relations; D032984:Ethics, Research; D036281:Genetic Research / Q000941:ethics*; D006801:Humans; D028681:Moral Obligations; D010358:Patient Participation; D012935:Social Justice; D012941:Social Responsibility; D035862:Vulnerable Populations