title: [Health care needs of children and adolescents with a traumatic brain injury].
abstract: Traumatic brain injury is a leading cause of acquired disability in childhood. Within a project to improve out-patient rehabilitation and aftercare advice, centres for families affected by traumatic brain injuries were implemented in four German cities. The results of two sub-studies are described which aimed on the one hand at a process analysis of the network operation and on the other hand at a prospective analysis of the network interaction. The process analysis was based on a database which was developed for this study. Within a prospective longitudinal study, 103 families could be included. At four project sites, families were questioned with an interview and questionnaire at three different time points. Health-related quality of life, utilisation and health care satisfaction were assessed. In addition, a neuropsychological assessment was conducted with a portion of the sample. Overall, quality of life of the children and adolescents can be described as good. Health care services were scarcely utilised. A childcentred health care was predictive for the health care satisfaction of the parents. The short assessment proved to be a feasible method for identifying children and adolescents with special health care needs.
authors.affiliation: Universitätsklinikum Hamburg-Eppendorf, BRD. copeters@uke.uni-hamburg.de
authors.forename: Corinna
authors.initials: C
authors.lastname: Petersen
authors.forename: A
authors.initials: A
authors.lastname: Scherwath
authors.forename: J
authors.initials: J
authors.lastname: Fink
authors.forename: U
authors.initials: U
authors.lastname: Koch
mesh_terms: D000293:Adolescent; D000359:Aftercare / Q000523:psychology / Q000706:statistics & numerical data; D020208:Brain Injury, Chronic / Q000453:epidemiology / Q000523:psychology / Q000534:rehabilitation*; D002648:Child; D002675:Child, Preschool; D003258:Consumer Behavior; D004185:Disability Evaluation; D005260:Female; D005858:Germany; D006301:Health Services Needs and Demand / Q000639:trends*; D006801:Humans; D007223:Infant; D008137:Longitudinal Studies; D008297:Male; D009483:Neuropsychological Tests; D010348:Patient Care Team; D011446:Prospective Studies; D011788:Quality of Life / Q000523:psychology; D014600:Utilization Review / Q000706:statistics & numerical data