title: Views on psychosocial functioning: responses from children with imperforate anus and their parents.
abstract: BACKGROUND
  High and intermediate imperforate anus (IA) is a congenital malformation that may entail psychosocial consequences. The objective was to examine disagreement on psychosocial functioning in reports between children with high and intermediate IA and their mothers.
  
  
  METHODS
  Twenty-five children with IA and their mothers participated, including two groups for comparison. The responses on 15 psychosocial variables were compared on pair-level, between the mothers and their child, within each group.
  
  
  RESULTS
  Statistically significant differences were found on the psychological variables in all groups, for example, feelings of sadness. For responses related to the social variables, few statistical discrepancies were found, except for the items "bullied" and "teased." Two specific discrepancies emerged in responses from children with IA and their mothers, the child's self-confidence and the mothers' thinking about their child's disability.
  
  
  CONCLUSIONS
  It is vital to gather information from both the child and the parents in order to obtain a complete assessment of the child. The course of disagreement can give valuable information for future care, including where to exert extra effort.
authors.affiliation: Department of Woman and Child Health, Karolinska Institutet, Astrid Lindgren Children's Hospital, Stockholm, Red Cross University College, Stockholm, Sweden. margret.nisell@ki.se
authors.forename: Margret
authors.initials: M
authors.lastname: Nisell
authors.forename: Maria
authors.initials: M
authors.lastname: Ojmyr-Joelsson
authors.forename: Björn
authors.initials: B
authors.lastname: Frenckner
authors.forename: Per-Anders
authors.initials: PA
authors.lastname: Rydelius
authors.forename: Kyllike
authors.initials: K
authors.lastname: Christensson
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D001006:Anus, Imperforate / Q000451:nursing / Q000523:psychology*; D002648:Child; D003625:Data Collection / Q000379:methods*; D005260:Female; D006801:Humans; D008297:Male; D009035:Mothers; D009730:Nursing Assessment; D015588:Observer Variation; D010287:Parent-Child Relations