title: Cultural aspects of the Puerto Rican cancer experience: the mother as the main protagonist.
abstract: Pediatric cancer survivors are a growing group whose needs extend to multiple contexts and systems. Most studies dealing with the emotional sequelae of childhood cancer have neglected patients' and parents' perspectives. Few have dealt with issues faced by the treatment team. Our research constitutes the first attempt to gather a collective view of such experience in Puerto Rico. Using a phenomenological approach, in-depth interviews were conducted with acute lymphoblastic leukemia (ALL) patients, their mothers, and their oncology treatment team (18) at a children's hospital in Puerto Rico. Analysis followed the model proposed by Strauss and Corbin. In this article, findings directly associated with the cultural aspects of the Puerto Rican cancer experience are presented, including the mother's role--devotion and abandonment; the father's role--masculine vulnerability; and the family paradox. Mothers' protagonism was the central theme that emerged from these three categories.
authors.affiliation: Department of Psychology, Inter American University of Puerto Rico, San Juan, Puerto Rico. riverovalicin1@gmail.com
authors.forename: Alicia
authors.initials: A
authors.lastname: Rivero-Vergne
authors.forename: Reinaldo
authors.initials: R
authors.lastname: Berrios
authors.forename: Ivonne
authors.initials: I
authors.lastname: Romero
mesh_terms: D000293:Adolescent; D017028:Caregivers; D002648:Child; D003466:Cultural Characteristics; D005220:Fathers / Q000523:psychology; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D009035:Mothers / Q000523:psychology*; D010287:Parent-Child Relations / Q000208:ethnology*; D054198:Precursor Cell Lymphoblastic Leukemia-Lymphoma / Q000208:ethnology* / Q000523:psychology / Q000534:rehabilitation; D011647:Puerto Rico