title: On the importance of intellectual property rights for e-science and the integrated health record.
abstract: An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.
authors.forename: Giuseppina
authors.initials: G
authors.lastname: D'Agostino
authors.forename: Chris
authors.initials: C
authors.lastname: Hinds
authors.forename: Marina
authors.initials: M
authors.lastname: Jirotka
authors.forename: Charles
authors.initials: C
authors.lastname: Meyer
authors.forename: Tina
authors.initials: T
authors.lastname: Piper
authors.forename: Mustafizur
authors.initials: M
authors.lastname: Rahman
authors.forename: David
authors.initials: D
authors.lastname: Vaver
mesh_terms: D003195:Computer Communication Networks / Q000331:legislation & jurisprudence; D003309:Copyright / Q000331:legislation & jurisprudence; D006801:Humans; D018973:Intellectual Property; D016347:Medical Records Systems, Computerized / Q000331:legislation & jurisprudence; D010067:Ownership / Q000331:legislation & jurisprudence; D018511:Systems Integration