title: Developing a shared electronic health record for patients and clinicians.
abstract: Improving Shared Decision Making (SDM) and patient-provider communication, and providing all citizens with equal access to health information has become a high priority health policy goal. In this interdisciplinary, international research collaboration we develop and test CONNECT (Care Online: Novel Networks to Enhance Communication and Treatment), a patient portal that integrates a suite of context-sensitive patient communication and information tools into a patient-clinician shared electronic health record that patients can use seamlessly through heterogeneous networks from different locations (home, hospital, doctor's office). In this paper we present methods used to develop CONNECT; how to safeguard data security and confidentiality and adapt user interfaces to different users, devices and contexts of use; as well as ensure safe and efficient data transfer through heterogeneous networks; and critical success factors and challenges.
authors.affiliation: Center for Shared Decision Making and Nursing Research, Rikshospitalet Medical Center, Oslo, Norway.
authors.forename: Cornelia M
authors.initials: CM
authors.lastname: Ruland
authors.forename: Haakon
authors.initials: H
authors.lastname: Brynhi
authors.forename: Roar
authors.initials: R
authors.lastname: Andersen
authors.forename: Tore
authors.initials: T
authors.lastname: Bryhni
mesh_terms: D040421:Cell Phone; D016494:Computer Security; D003199:Computer Systems; D003219:Confidentiality; D003299:Cooperative Behavior; D006801:Humans; D020407:Internet; D016347:Medical Records Systems, Computerized; D009664:Norway; D033283:Patient Access to Records; D010358:Patient Participation; D010817:Physician-Patient Relations; D014584:User-Computer Interface