The international spinal cord injury pain basic data set.
OBJECTIVE
To develop a basic pain data set (International Spinal Cord Injury Basic Pain Data Set, ISCIPDS:B) within the framework of the International spinal cord injury (SCI) data sets that would facilitate consistent collection and reporting of pain in the SCI population.


METHODS
International.


METHODS
The ISCIPDS:B was developed by a working group consisting of individuals with published evidence of expertise in SCI-related pain regarding taxonomy, psychophysics, psychology, epidemiology and assessment, and one representative of the Executive Committee of the International SCI Standards and Data Sets. The members were appointed by four major organizations with an interest in SCI-related pain (International Spinal Cord Society, ISCoS; American Spinal Injury Association, ASIA; American Pain Society, APS and International Association for the Study of Pain, IASP). The initial ISCIPDS:B was revised based on suggestions from members of the Executive Committee of the International SCI Standards and Data Sets, the ISCoS Scientific Committee, ASIA and APS Boards, and the Neuropathic Pain Special Interest Group of the IASP, individual reviewers and societies and the ISCoS Council.


RESULTS
The final ISCIPDS:B contains core questions about clinically relevant information concerning SCI-related pain that can be collected by health-care professionals with expertise in SCI in various clinical settings. The questions concern pain severity, physical and emotional function and include a pain-intensity rating, a pain classification and questions related to the temporal pattern of pain for each specific pain problem. The impact of pain on physical, social and emotional function, and sleep is evaluated for each pain.
Widerström-Noga
E
E
VA Medical Center, Miami, FL, USA. ewiderstrom-noga@miami.edu
Biering-Sørensen
F
F
Bryce
T
T
Cardenas
D D
DD
Finnerup
N B
NB
Jensen
M P
MP
Richards
J S
JS
Siddall
P J
PJ
D000203:Activities of Daily Living / Q000523:psychology; D002908:Chronic Disease / Q000523:psychology; D017281:Cost of Illness; D019992:Databases as Topic / Q000592:standards* / Q000639:trends; D003866:Depressive Disorder / Q000175:diagnosis / Q000209:etiology / Q000523:psychology; D004185:Disability Evaluation; D006801:Humans; D038801:International Classification of Diseases / Q000592:standards* / Q000639:trends; D010146:Pain / Q000175:diagnosis* / Q000209:etiology* / Q000523:psychology; D010147:Pain Measurement / Q000379:methods*; D011594:Psychometrics / Q000379:methods; D011788:Quality of Life / Q000523:psychology; D012720:Severity of Illness Index; D012893:Sleep Wake Disorders / Q000175:diagnosis / Q000209:etiology; D013119:Spinal Cord Injuries / Q000150:complications*; D011795:Surveys and Questionnaires / Q000592:standards