[The need for psychological help for haemophilic children and their families].
The aim of this paper is to present and discuss psychological care for children with haemophilia. The article identifies and indicates specific features of the psychosocial functioning of these patients, which need to be further investigated to gain a better understanding of the difficulties encountered by haemophiliacs and their families. Understanding these difficulties in the context of a child's experiences and those of its family is a vital element of professional psychological care and remains crucial in the process of treatment. Providing psychological care, as well as cooperation with a multidisciplinary group of specialists involved in the process of treatment, can enhance the quality of life for patients in Poland affected by haemophilia.
Katedra i Klinika Pediatrii, Hematologii i Onkologii AM w Warszawie.
Maria
M
Szaniawska-Thiel
Paweł
P
Laguna
D000223:Adaptation, Psychological; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D003376:Counseling / Q000379:methods*; D019988:Children with Disabilities / Q000523:psychology; D005260:Female; D006467:Hemophilia A / Q000523:psychology*; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D011369:Professional-Patient Relations; D011788:Quality of Life; D012720:Severity of Illness Index; D012944:Social Support