Parents' experiences of home-based applied behavior analysis programs for young children with autism.
Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.
Bangor University, Gwynedd, UK. c.grindle@bangor.ac.uk
Corinna F
CF
Grindle
Hanna
H
Kovshoff
Richard P
RP
Hastings
Bob
B
Remington
D000553:Ambulatory Care; D001321:Autistic Disorder / Q000523:psychology / Q000628:therapy*; D001521:Behavior Therapy / Q000193:education / Q000379:methods*; D002648:Child; D002675:Child, Preschool; D003258:Consumer Behavior; D017281:Cost of Illness; D018479:Early Intervention, Educational; D004493:Education; D005195:Family Relations; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007805:Language Development Disorders / Q000523:psychology / Q000628:therapy; D008297:Male; D016487:Parenting / Q000523:psychology; D012951:Socialization