Potential threats to the effective communication of genetic risk information: the case of cystic fibrosis.
The dramatic increase in genetic knowledge engendered by the mapping of the human genome brings with it a need for greater understanding of how to effectively communicate genetic risk information. Using a combination of observational and self-report data, this study examined potential threats to effective risk communication in 17 families whose infant received a positive newborn screening test for cystic fibrosis. Five specific problems are identified: (a) copresence of interactants (or the lack thereof), (b) disruptions in the communication environment, (c) variations in parents' initial knowledge, (d) rigidity in counselors' behavioral scripts, and (e) emotional interference with information acquisition. We advance 3 proposals for research aimed at improving our understanding of these potential threats.
Department of Communication Arts & Sciences, Pennsylvania State University, University Park, PA 16801, USA. jpd16@psu.edu
James Price
JP
Dillard
Lijiang
L
Shen
Anita
A
Laxova
Phillip
P
Farrell
D000293:Adolescent; D000328:Adult; D003144:Communication Barriers; D003550:Cystic Fibrosis / Q000175:diagnosis / Q000235:genetics*; D005817:Genetic Counseling; D005820:Genetic Testing; D006801:Humans; D007231:Infant, Newborn; D010290:Parents; D014743:Videotape Recording; D014922:Wisconsin