Empowerment of patients: lessons from the rare diseases community.
Aymé
Ségolène
S
INSERM, Orphanet, Paris, France. ayme@orpha.net
Kole
Anna
A
Groft
Stephen
S
D005060:Europe; D006801:Humans; D009938:Organizations / Q000458:organization & administration* / Q000706:statistics & numerical data; D035583:Rare Diseases; D014481:United States