Perceptions of outcomes of implant therapy in patients with ectodermal dysplasia syndromes.
OBJECTIVE
The purpose of this study was to evaluate patient-specific outcomes and satisfaction using dental implants in a population affected with ectodermal dysplasia.


METHODS
Patient-based data were collected using a self-reported survey instrument sent to patients belonging to a private patient foundation and/or treated previously at a government clinic. A standardized survey instrument was developed to evaluate patient satisfaction, outcomes, and potential complications using dental implants.


RESULTS
The survey instrument was mailed to 253 affected individuals self-reported to have various forms of ectodermal dysplasia and who were voluntarily participants in the National Foundation for Ectodermal Dysplasias and/or were participants in the US National Institute for Dental Craniofacial Research Intramural Ectodermal Dysplasia clinical research program. A total of 109 responses were obtained (43% response rate). The duration following completion of implant therapy ranged from to 1 to 23 years. Of the 109 participants, 50% reported either an implant or prosthetic complication with implant treatment, and 24% reported some form of failure with implant therapy. However, 91% of participants reported being either satisfied or very satisfied with dental implants, and 95% reported that the treatment was worth the time and cost.


CONCLUSIONS
Affected individuals receiving tooth replacement therapy with dental implants reported satisfaction with the outcome. A higher level of complications, including infection, mechanical problems, and implant loss, relative to the unaffected population was reported.
Stanford
Clark M
CM
N419 Dental Science Building North, University of Iowa, Iowa City, Iowa 52242, USA. clark-stanford@uiowa.edu
Guckes
Albert
A
Fete
Mary
M
Srun
Sopheak
S
Richter
Mary K
MK
D000293:Adolescent; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D002648:Child; D003729:Dental Care; D015921:Dental Implants / Q000009:adverse effects / Q000191:economics / Q000523:psychology*; D019232:Dental Restoration Failure; D003781:Denture Retention; D004476:Ectodermal Dysplasia / Q000150:complications*; D004955:Esthetics, Dental; D005260:Female; D006801:Humans; D007575:Jaw, Edentulous / Q000534:rehabilitation / Q000601:surgery; D007576:Jaw, Edentulous, Partially / Q000534:rehabilitation / Q000601:surgery; D008297:Male; D008409:Mastication / Q000502:physiology; D008875:Middle Aged; D010348:Patient Care Team; D017060:Patient Satisfaction; D011183:Postoperative Complications; D011788:Quality of Life; D013060:Speech / Q000502:physiology; D013997:Time Factors; D016896:Treatment Outcome
D015921:Dental Implants