Perceptions of outcomes of implant therapy in patients with ectodermal dysplasia syndromes.
OBJECTIVE
The purpose of this study was to evaluate patient-specific outcomes and satisfaction using dental implants in a population affected with ectodermal dysplasia.


METHODS
Patient-based data were collected using a self-reported survey instrument sent to patients belonging to a private patient foundation and/or treated previously at a government clinic. A standardized survey instrument was developed to evaluate patient satisfaction, outcomes, and potential complications using dental implants.


RESULTS
The survey instrument was mailed to 253 affected individuals self-reported to have various forms of ectodermal dysplasia and who were voluntarily participants in the National Foundation for Ectodermal Dysplasias and/or were participants in the US National Institute for Dental Craniofacial Research Intramural Ectodermal Dysplasia clinical research program. A total of 109 responses were obtained (43% response rate). The duration following completion of implant therapy ranged from to 1 to 23 years. Of the 109 participants, 50% reported either an implant or prosthetic complication with implant treatment, and 24% reported some form of failure with implant therapy. However, 91% of participants reported being either satisfied or very satisfied with dental implants, and 95% reported that the treatment was worth the time and cost.


CONCLUSIONS
Affected individuals receiving tooth replacement therapy with dental implants reported satisfaction with the outcome. A higher level of complications, including infection, mechanical problems, and implant loss, relative to the unaffected population was reported.
N419 Dental Science Building North, University of Iowa, Iowa City, Iowa 52242, USA. clark-stanford@uiowa.edu
Clark M
CM
Stanford
Albert
A
Guckes
Mary
M
Fete
Sopheak
S
Srun
Mary K
MK
Richter
D000293:Adolescent; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D002648:Child; D003729:Dental Care; D015921:Dental Implants / Q000009:adverse effects / Q000191:economics / Q000523:psychology*; D019232:Dental Restoration Failure; D003781:Denture Retention; D004476:Ectodermal Dysplasia / Q000150:complications*; D004955:Esthetics, Dental; D005260:Female; D006801:Humans; D007575:Jaw, Edentulous / Q000534:rehabilitation / Q000601:surgery; D007576:Jaw, Edentulous, Partially / Q000534:rehabilitation / Q000601:surgery; D008297:Male; D008409:Mastication / Q000502:physiology; D008875:Middle Aged; D010348:Patient Care Team; D017060:Patient Satisfaction; D011183:Postoperative Complications; D011788:Quality of Life; D013060:Speech / Q000502:physiology; D013997:Time Factors; D016896:Treatment Outcome
D015921:Dental Implants