Development and validation of the collaborative parent involvement scale for youths with type 1 diabetes.
OBJECTIVE
To develop and test a youth-report measure of collaborative parent involvement in type 1 diabetes management.


METHODS
Initial item development and testing were conducted with 81 youths; scale refinement and validation were conducted with 122 youths from four geographic regions. Descriptive statistics, Cronbach's alpha, and factor analyses were conducted to select items comprising the scale. Correlations with parenting style and parent diabetes responsibility were examined. Multiple regression analyses examining associations with quality of life, adherence, and glycemic control were conducted to assess concurrent validity.


RESULTS
The measure demonstrated strong internal consistency. It was modestly associated with parenting style, but not with parent responsibility for diabetes management. A consistent pattern of associations with quality of life and adherence provide support for the measure's concurrent validity.


CONCLUSIONS
This brief youth-report measure of parent collaborative involvement assesses a unique dimension of parent involvement in diabetes management associated with important youth outcomes.
Division of Epidemiology, Statistics and Prevention Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, NIH, Bethesda, MD 20892-7510, USA. nanselt@mail.nih.gov
Tonja R
TR
Nansel
Alisha J
AJ
Rovner
Denise
D
Haynie
Ronald J
RJ
Iannotti
Bruce
B
Simons-Morton
Timothy
T
Wysocki
Barbara
B
Anderson
Jill
J
Weissberg-Benchell
Lori
L
Laffel
D000293:Adolescent; D001294:Attitude to Health; D002648:Child; D003299:Cooperative Behavior; D003922:Diabetes Mellitus, Type 1 / Q000097:blood / Q000523:psychology* / Q000628:therapy; D005260:Female; D006442:Glycated Hemoglobin / Q000032:analysis; D006801:Humans; D008297:Male; D016487:Parenting / Q000523:psychology*; D010349:Patient Compliance / Q000523:psychology; D011594:Psychometrics / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D012648:Self Care / Q000523:psychology; D011795:Surveys and Questionnaires; D016896:Treatment Outcome
D006442:Glycated Hemoglobin; C517652:hemoglobin A1c protein, human