Collection and transfer of data: the AIEOP model.
Advanced Multicenter Research (AMR) is a Web-based information technology infrastructure, fully integrated to manage every single part of a clinical trial, but with 'independent' and 'customizable' components to wholly meet each team's requirements. The AIEOP group utilizes AMR for the management and analyses of the majority of the expected nationwide oncology cases and the most common primary immunodeficiencies, and for all the AIEOP protocols, studies and registries centralized at the AIEOP Operation Office. Standard for data quality control is applied to each AIEOP database according to the AMR standard procedures. The AMR AIEOP network represents a model of Information Based Medicine, a crucial tool for well-informed pediatricians, essential to guarantee better childcare in a setting of patients such as children with cancer.
Clinica Pediatrica, Università di Bologna, Policlinico Sant' Orsola-Malpighi, Bologna, Italy. andrea.pession@unibo.it
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D016026:Bone Marrow Transplantation; D002648:Child; D003628:Database Management Systems; D006402:Hematologic Diseases / Q000628:therapy; D006801:Humans; D020407:Internet; D007558:Italy; D015337:Multicenter Studies as Topic / Q000379:methods; D012042:Registries