title: Clinical and genetic registries in psoriatic disease.
abstract: Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.
authors.affiliation: University of Toronto, Toronto, Ontario, Canada. dafna.gladman@utoronto.ca
authors.forename: Dafna D
authors.initials: DD
authors.lastname: Gladman
authors.forename: Proton
authors.initials: P
authors.lastname: Rahman
authors.forename: Gerald G
authors.initials: GG
authors.lastname: Krueger
authors.forename: Philip J
authors.initials: PJ
authors.lastname: Mease
authors.forename: Abrar A
authors.initials: AA
authors.lastname: Qureshi
authors.forename: Jan P
authors.initials: JP
authors.lastname: Dutz
authors.forename: Ulla
authors.initials: U
authors.lastname: Lindqvist
authors.forename: Sueli
authors.initials: S
authors.lastname: Carneiro
authors.forename: Philip S
authors.initials: PS
authors.lastname: Helliwell
authors.forename: Ilona
authors.initials: I
authors.lastname: Ujfalussy
authors.forename: Alice B
authors.initials: AB
authors.lastname: Gottlieb
authors.forename: Frank
authors.initials: F
authors.lastname: Behrens
authors.forename: Mona
authors.initials: M
authors.lastname: Ståhle
mesh_terms: D002986:Clinical Trials as Topic; D020022:Genetic Predisposition to Disease; D006801:Humans; D011565:Psoriasis / Q000235:genetics*; D012042:Registries