title: An exploratory case study of the impact of ambient biographical displays on identity in a patient with Alzheimer's disease.
abstract: One of the most troubling symptoms of Alzheimer's disease is the loss of the patient's sense of identity. This loss complicates relationships, increases apathy, and generally impedes quality of life for the patient. We describe a novel in-home ambient display called Biography Theatre that cycles through music, photographs, movies, and narratives drawn from the patient's past and current life. We conducted an exploratory case study with an 84-year-old male with moderate-stage Alzheimer's disease (Mr H). The study consisted of three phases: a baseline phase, a phase wherein autobiographical materials were collected and discussed, and a phase wherein the display was deployed in the home. The patient demonstrated improvement on standardised tests of apathy and positive self-identity, but did not improve on tests of autobiographical memory, anxiety, depression, and general cognition. We also report on caregiver reactions to the intervention and how the display helped them cope with and reinterpret their loved one's condition. This work suggests that interdisciplinary work involving "off the desktop" computing technologies may be a fruitful way to provide rehabilitative benefit for individuals with Alzheimer's disease.
authors.affiliation: Department of Computer Science, University of Toronto, Canada. mikem@dgp.toronto.edu
authors.forename: Michael
authors.initials: M
authors.lastname: Massimi
authors.forename: Emma
authors.initials: E
authors.lastname: Berry
authors.forename: Georgina
authors.initials: G
authors.lastname: Browne
authors.forename: Gavin
authors.initials: G
authors.lastname: Smyth
authors.forename: Peter
authors.initials: P
authors.lastname: Watson
authors.forename: Ronald M
authors.initials: RM
authors.lastname: Baecker
mesh_terms: D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000523:psychology* / Q000534:rehabilitation*; D001364:Awareness; D015928:Cognitive Behavioral Therapy / Q000379:methods*; D006801:Humans; D008297:Male; D011939:Mental Recall / Q000502:physiology; D012649:Self Concept; D011795:Surveys and Questionnaires