title: Care dependence: a struggle toward moments of respite.
abstract: The purpose of this study was to describe people's experiences of being dependent on others for care in their final stage of life, as well as what they felt made their experience of being dependent easier or more difficult. The phenomenological-hermeneutical method was chosen, where data collection consisted of open-ended interviews with nine people undergoing palliative care at a hospice unit or at home. The meaning of being care dependent is described via the following themes: changed relationship with oneself and with others, striving to adapt oneself to the situation, obstacles, and opportunities along the way while dependent. The result is described as an effort, a journey from independence to moments where it was possible to rest and recuperate while struggling with care dependency. Nursing staff require knowledge and understanding of experiences with care dependency to make life easier for people during increasing dependency in the final stage of life.
authors.affiliation: Kärnsjukhuset Skaraborg Hospital, Skövde, Sweden.
authors.forename: Monika
authors.initials: M
authors.lastname: Eriksson
authors.forename: Birgitta
authors.initials: B
authors.lastname: Andershed
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D000223:Adaptation, Psychological; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D001828:Body Image; D003858:Dependency, Psychological; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D008960:Models, Psychological; D009369:Neoplasms / Q000523:psychology; D015404:Nursing Methodology Research; D010166:Palliative Care / Q000379:methods / Q000523:psychology*; D011209:Power, Psychological; D011788:Quality of Life / Q000523:psychology; D012144:Respite Care / Q000523:psychology; D012649:Self Concept; D012944:Social Support; D011795:Surveys and Questionnaires; D013548:Sweden