[Experience of mothers of children with leukemia: feelings about home care].
This is a descriptive study carried out with six mothers of children suffering from leukemia admitted to a specialized hospital. The objective of the study was to find out who the children being treated in this service are and to identify how mothers perceive the experience of caring for their child at home and how they evaluate the orientation they receive for this type of care. The results revealed that, in spite of doubts, difficulties and conflicts within the family, mothers care for their children with selflessness and feel positive about doing so, resorting to religion to get strength to face the situation. It was also observed that mothers feel a need for further interaction with the nursing staff, but do not feel at ease to express their expectations and questions, even at times when they do not understand the orientations. This is an indication of serious gaps regardingthe nursing professional's function of providing assistance and educational support to the mother/caregiver within the family context.
Klassmann
Jaciane
J
Departamento de Enfermagem da Pontifícia Universidade Católica do Paraná-Campus Toledo, Londrina, PR, Brasil. jacianeklassmann@yahoo.com.br
Kochla
Kátia Renata Antunes
KR
Kochia
Kátia Renata Antunes
KR
Furukawa
Tatiane Sano
TS
Higarashi
Ieda Harumi
IH
Marcon
Sonia Silva
SS
D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D005192:Family Health; D005260:Female; D006701:Home Nursing; D006801:Humans; D007938:Leukemia / Q000628:therapy*; D008297:Male; D009035:Mothers