Psychosocial adjustment in males with Duchenne muscular dystrophy: psychometric properties and clinical utility of a parent-report questionnaire.
OBJECTIVE
The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD).


METHODS
The parents of 287 male patients with DMD aged 5-18 years completed the PARS-III and Revised Rutter Scale.


RESULTS
The alpha coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported.


CONCLUSIONS
The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
Hendriksen
Jos G M
JG
Kempenhaeghe Epilepsy Centre, Department of Behavioral Sciences, Heeze, The Netherlands. hendriksenj@kempenhaeghe.nl
Poysky
James T
JT
Schrans
Debby G M
DG
Schouten
Eric G W
EG
Aldenkamp
Albert P
AP
Vles
Johan S H
JS
D000203:Activities of Daily Living / Q000523:psychology; D000223:Adaptation, Psychological; D000293:Adolescent; D000305:Adrenal Cortex Hormones / Q000009:adverse effects / Q000627:therapeutic use; D000367:Age Factors; D001007:Anxiety / Q000175:diagnosis / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D003863:Depression / Q000175:diagnosis / Q000523:psychology; D006801:Humans; D008297:Male; D008403:Mass Screening; D020388:Muscular Dystrophy, Duchenne / Q000188:drug therapy / Q000523:psychology*; D010379:Peer Group; D010552:Personality Assessment / Q000706:statistics & numerical data*; D011594:Psychometrics / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D012803:Sick Role; D012917:Social Adjustment; D013223:Statistics as Topic; D011795:Surveys and Questionnaires
D000305:Adrenal Cortex Hormones