title: Psychosocial adjustment in males with Duchenne muscular dystrophy: psychometric properties and clinical utility of a parent-report questionnaire.
abstract: OBJECTIVE
  The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD).
  
  
  METHODS
  The parents of 287 male patients with DMD aged 5-18 years completed the PARS-III and Revised Rutter Scale.
  
  
  RESULTS
  The alpha coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported.
  
  
  CONCLUSIONS
  The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
authors.affiliation: Kempenhaeghe Epilepsy Centre, Department of Behavioral Sciences, Heeze, The Netherlands. hendriksenj@kempenhaeghe.nl
authors.forename: Jos G M
authors.initials: JG
authors.lastname: Hendriksen
authors.forename: James T
authors.initials: JT
authors.lastname: Poysky
authors.forename: Debby G M
authors.initials: DG
authors.lastname: Schrans
authors.forename: Eric G W
authors.initials: EG
authors.lastname: Schouten
authors.forename: Albert P
authors.initials: AP
authors.lastname: Aldenkamp
authors.forename: Johan S H
authors.initials: JS
authors.lastname: Vles
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D000223:Adaptation, Psychological; D000293:Adolescent; D000305:Adrenal Cortex Hormones / Q000009:adverse effects / Q000627:therapeutic use; D000367:Age Factors; D001007:Anxiety / Q000175:diagnosis / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D003863:Depression / Q000175:diagnosis / Q000523:psychology; D006801:Humans; D008297:Male; D008403:Mass Screening; D020388:Muscular Dystrophy, Duchenne / Q000188:drug therapy / Q000523:psychology*; D010379:Peer Group; D010552:Personality Assessment / Q000706:statistics & numerical data*; D011594:Psychometrics / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D012803:Sick Role; D012917:Social Adjustment; D013223:Statistics as Topic; D011795:Surveys and Questionnaires
chemical_list: D000305:Adrenal Cortex Hormones