title: AboutKidsHealth online resource centres: innovation in family health education.
abstract: We conducted initial proof-of-concept and needs assessment research with families and clinicians concerning the online information needs of families of children with complex conditions. Subsequently, we used wireframes to assess the proposed information architecture and content of resource centres with families and clinicians. In collaboration with clinical programs, we developed resource centres for Brain Tumour, Diabetes, and Heart Conditions. We describe the initial research and development of the centres, and usability testing conducted after launch.
authors.affiliation: AboutKidsHealth, The Hospital for Sick Children,University of Toronto, Toronto, Canada.
authors.forename: Ross
authors.initials: R
authors.lastname: Hetherington
authors.forename: Andrew
authors.initials: A
authors.lastname: James
authors.forename: Eric
authors.initials: E
authors.lastname: Bouffet
authors.forename: Denis
authors.initials: D
authors.lastname: Daneman
authors.forename: Joel
authors.initials: J
authors.lastname: Kirsh
mesh_terms: D002648:Child; D054626:Consumer Health Information; D005190:Family; D006266:Health Education; D006801:Humans; D007255:Information Services; D007407:Interviews as Topic; D020380:Needs Assessment; D009862:Online Systems