title: [Rare diseases- from research's to patient's view].
authors.forename: R
authors.initials: R
authors.lastname: von Kries
authors.forename: R
authors.initials: R
authors.lastname: Klar
mesh_terms: D035843:Biomedical Research / Q000639:trends*; D005858:Germany; D006801:Humans; D010358:Patient Participation / Q000639:trends*; D017060:Patient Satisfaction; D035583:Rare Diseases / Q000175:diagnosis* / Q000628:therapy*