title: Family refusal to donate organs and tissue for transplantation.
abstract: This study aimed to discover how potential eligible donor families perceive the decision-making process to refuse organ and tissue donation for transplantation. A qualitative research was performed in order to understand the families' perception, based on the situated-phenomenon structure. Eight family members were interviewed, with four themes and fourteen subthemes emerging from the analysis of the statements. The propositions that emerged from the study indicated that the essence of the phenomenon was manifested as a shocking or despairing situation, experienced through the hospitalization of the family member; distrust regarding organ donation; denial of brain death; grief and weariness due to the loss of the loved one, family conflicts for making the decision and the multiple causes for refusing donation. Therefore, the knowledge of this phenomenon can provide information to guide professional action involving the families of potential donors.
authors.affiliation: Medical School Hospital das Clínicas, University of São Paulo Medical, Brazil. edvaldoleal@uol.com.br
authors.forename: Edvaldo Leal de
authors.initials: EL
authors.lastname: Moraes
authors.forename: Maria Cristina Komatsu Braga
authors.initials: MC
authors.lastname: Massarollo
mesh_terms: D005190:Family; D006801:Humans; D016377:Organ Transplantation; D045808:Refusal to Participate; D009927:Tissue and Organ Procurement