How is shared decision-making defined among African-Americans with diabetes?
OBJECTIVE
This study investigates how shared decision-making (SDM) is defined by African-American patients with diabetes, and compares patients' conceptualization of SDM with the Charles model.


METHODS
We utilized race-concordant interviewers/moderators to conduct in-depth interviews and focus groups among a purposeful sample of African-American patients with diabetes. Each interview/focus group was audio-taped, transcribed verbatim and imported into Atlas.ti software. Coding was done using an iterative process and each transcription was independently coded by two members of the research team.


RESULTS
Although the conceptual domains were similar, patient definitions of what it means to "share" in the decision-making process differed significantly from the Charles model of SDM. Patients stressed the value of being able to "tell their story and be heard" by physicians, emphasized the importance of information sharing rather than decision-making sharing, and included an acceptable role for non-adherence as a mechanism to express control and act on treatment preferences.


CONCLUSIONS
Current instruments may not accurately measure decision-making preferences of African-American patients with diabetes.


CONCLUSIONS
Future research should develop instruments to effectively measure decision-making preferences within this population. Emphasizing information-sharing that validates patients' experiences may be particularly meaningful to African-Americans with diabetes.
Peek
Monica E
ME
Section of General Internal Medicine, Department of Medicine, The University of Chicago, Chicago, IL 60637, United States. mpeek@medicine.bsd.uchicago.edu
Quinn
Michael T
MT
Gorawara-Bhat
Rita
R
Odoms-Young
Angela
A
Wilson
Shannon C
SC
Chin
Marshall H
MH
D000293:Adolescent; D000328:Adult; D001741:Black or African American / Q000523:psychology; D000368:Aged; D003657:Decision Making; D003920:Diabetes Mellitus / Q000208:ethnology / Q000628:therapy*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D008875:Middle Aged; D010349:Patient Compliance / Q000208:ethnology / Q000523:psychology; D010358:Patient Participation; D017060:Patient Satisfaction / Q000208:ethnology*; D018802:Patient-Centered Care; D010817:Physician-Patient Relations; D014481:United States