title: [Amyotrophic lateral sclerosis, a total ethical challenge].
authors.affiliation: Department de Recherche en Ethique de l'université Paris-Sud XI et Espace Ethique, Paris. emmanuel.hirsch@sls.aphp.fr
authors.forename: Emmanuel
authors.initials: E
authors.lastname: Hirsch
mesh_terms: D000223:Adaptation, Psychological; D000690:Amyotrophic Lateral Sclerosis / Q000175:diagnosis* / Q000451:nursing / Q000523:psychology*; D001294:Attitude to Health; D018450:Disease Progression; D005086:Existentialism / Q000523:psychology; D006801:Humans; D008016:Life Change Events; D010344:Patient Advocacy / Q000941:ethics*; D026684:Personal Autonomy; D014342:Truth Disclosure / Q000941:ethics*