Generating an African palliative care evidence base: the context, need, challenges, and strategies.
The enormous burden of progressive, incurable disease in sub-Saharan Africa is reflected in the epidemiology of cancer and HIV. However, there has been little research activity and evidence generated to inform appropriate and effective responses. A collaborative of clinicians, academics and advocates have been active in the design, delivery and reporting of research activities in African palliative care. Here, they report the methodological, ethical, logistic and capacity-based challenges of conducting research in the sub-Saharan context from their experience. A number of strategies and responses are presented.
Harding
Richard
R
Department of Palliative Care, Policy & Rehabilitation, King's College London School of Medicine, London, United Kingdom. richard.harding@kcl.ac.uk
Powell
Richard A
RA
Downing
Julia
J
Connor
Stephen R
SR
Mwangi-Powell
Faith
F
Defilippi
Kath
K
Cameron
Sue
S
Garanganga
Eunice
E
Kikule
Ekiria
E
Alexander
Carla
C
D000349:Africa / Q000453:epidemiology; D035843:Biomedical Research / Q000706:statistics & numerical data*; D016208:Databases, Factual; D015340:Epidemiologic Research Design; D019317:Evidence-Based Medicine / Q000706:statistics & numerical data*; D006801:Humans; D010166:Palliative Care / Q000706:statistics & numerical data*