A comparison between self-reported and observed activity limitations in adults with neuromuscular disorders.
OBJECTIVE
To investigate the agreement between the self-reported and examiner-reported difficulties of patients with neuromuscular disorders (NMDs) in performing daily activities at home.


METHODS
A comparison between 2 methods of administering a measurement instrument.


METHODS
Neuromuscular reference center in a university hospital.


METHODS
Adult patients (N=57) with diagnosed NMDs living at home.


METHODS
Not applicable.


METHODS
The ACTIVLIM questionnaire.


RESULTS
The intraclass correlation coefficient, model 2,1 (ICC(2,1)), between the measures was very good (ICC(2,1)=.87), indicating a good agreement between self-perceived and observed measures.


CONCLUSIONS
The use of ACTIVLIM as a self-reporting questionnaire is a valid method for assessing activity limitations in patients with NMD.
Vandervelde
Laure
L
Rehabilitation and Physical Medicine Unit, Université catholique de Louvain, Brussels, Belgium.
Dispa
Delphine
D
Van den Bergh
Peter Y
PY
Thonnard
Jean-Louis
JL