title: A UK literature review of progressive long-term neurological conditions.
abstract: Progressive long-term neurological conditions are relatively rare, and policy attention has only recently been directed at community services for people with these conditions. This literature review draws together findings from 16 UK studies relating to the provision of care in the community for people with progressive long-term neurological conditions. The purpose is to identify elements of best practice which could be promoted at a national level to improve services. The findings point to the uneven coverage of services and their lack of flexibility. Multidisciplinary care delivery was considered essential and patients and carers highly valued the use of key workers. The studies also highlighted the potential for self-managed care. This evidence can be used to inform service developments for the delivery of community care for people with progressive long-term neurological conditions.
authors.affiliation: School of Nursing, University of Nottingham. eleanor.wilson@nottingham.ac.uk
authors.forename: Eleanor
authors.initials: E
authors.lastname: Wilson
authors.forename: Ruth
authors.initials: R
authors.lastname: Elkan
authors.forename: Jane
authors.initials: J
authors.lastname: Seymour
authors.forename: Kathryn
authors.initials: K
authors.lastname: Almack
mesh_terms: D002908:Chronic Disease; D003153:Community Health Services / Q000458:organization & administration*; D006801:Humans; D009422:Nervous System Diseases / Q000628:therapy*; D006113:United Kingdom