title: Participation in medical decision-making: attitudes of Italians with multiple sclerosis.
abstract: BACKGROUND
  Patient involvement in decisions regarding their care has been advocated, but preferences have not been adequately canvassed, particularly in people with multiple sclerosis (MS).
  
  
  OBJECTIVE
  To cross-culturally adapt and validate the Italian version of the Control Preference Scale (CPS) subsequently used to assess preferences of people with MS.
  
  
  METHODS
  Translation-adaptation into Italian of CPS from the original Canadian English followed by administration in 140 people with MS from five Italian centers (with re-administration in 35) and semi-structured interview.
  
  
  RESULTS
  Cross-cultural adaptation of CPS was successful. The 140 people with MS, who varied in clinical and general characteristics, considered the CPS clear and acceptable. Test-retest reliability was moderate (weighted Kappa 0.65; p<0.001). A collaborative role was preferred (61%), followed by passive (33%) and active (6%) roles. Education (odds ratio [OR] 2.43, 95% confidence limits [CI] 1.05-5.66) and length of follow-up at referral center (OR 0.36, 95% CI 0.14-0.92) were associated with choice of an active/collaborative role in the logistic model.
  
  
  CONCLUSIONS
  The Italian CPS was well accepted by our MS population. Our data indicate that a high proportion of Italians with MS prefer a more passive role and this should be considered during the clinical encounter.
authors.affiliation: Neuroepidemiology Unit, Foundation IRCCS Neurological Institute C. Besta, Via Celoria 11, 20133 Milan, Italy.
authors.forename: Andrea
authors.initials: A
authors.lastname: Giordano
authors.forename: Katia
authors.initials: K
authors.lastname: Mattarozzi
authors.forename: Eugenio
authors.initials: E
authors.lastname: Pucci
authors.forename: Maurizio
authors.initials: M
authors.lastname: Leone
authors.forename: Federica
authors.initials: F
authors.lastname: Casini
authors.forename: Laura
authors.initials: L
authors.lastname: Collimedaglia
authors.forename: Alessandra
authors.initials: A
authors.lastname: Solari
mesh_terms: D000328:Adult; D000368:Aged; D001290:Attitude; D003431:Cross-Cultural Comparison; D003657:Decision Making; D005260:Female; D006801:Humans; D007558:Italy / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D009103:Multiple Sclerosis / Q000523:psychology*; D010358:Patient Participation / Q000523:psychology*; D011594:Psychometrics / Q000379:methods*; D015203:Reproducibility of Results; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D014175:Translating; D055815:Young Adult