Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care.
BACKGROUND
This study describes the information needs of adult cancer survivors, identifies sociodemographic, health, and healthcare-related factors associated with information needs, and examines the relationship between information needs and survivors' perceived mental and physical health.


METHODS
One thousand forty survivors 2-5 years post-diagnosis who were identified via two cancer registries were included in the present analysis. Self-report questionnaires assessed six categories of information needs, sociodemographic, health, and healthcare-related variables, and perceived mental and physical health.


RESULTS
Information needs were prevalent and varied; most survivors need more information about tests and treatments, health promotion, side effects and symptoms, and interpersonal and emotional issues. Multivariate analyses suggested that survivors who were younger, who reported non-White race/ethnicity, who reported less than excellent quality of follow-up cancer care, and who had more comorbid health conditions had more information needs. After adjustment for sociodemographic and health-related variables, more information needs were associated with worse perceived mental and physical health.


CONCLUSIONS
Most cancer survivors needed more information about maintaining good health outcomes during survivorship. Health communication interventions, such as Survivorship Care Plans, have excellent potential to address survivors' information needs while improving quality of follow-up cancer care and health-related quality of life.
Beckjord
Ellen Burke
EB
RAND Corporation, Pittsburgh, PA 15213, USA. ebeckjor@rand.org
Arora
Neeraj K
NK
McLaughlin
Wendy
W
Oakley-Girvan
Ingrid
I
Hamilton
Ann S
AS
Hesse
Bradford W
BW
D000328:Adult; D000368:Aged; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009369:Neoplasms / Q000534:rehabilitation / Q000628:therapy*; D010353:Patient Education as Topic; D011787:Quality of Health Care; D011788:Quality of Life; D011795:Surveys and Questionnaires; D017741:Survivors
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