title: Legacy activities as interventions approaching the end of life.
abstract: We examined the efficacy of an innovative family-based intervention designed to decrease caregiving stress and increase family communication among individuals with chronic, life-limiting illnesses and their family caregivers in a randomized, contact control group design. The intervention group received three home visits in which the interventionist actively worked with the family to construct a personal Legacy, usually a scrapbook with photographs or audiotaped stories. Control group families received three supportive telephone calls. Of the 42 families that entered the project, 31 families completed follow-up assessments within 9 to 10 weeks (14 control; 17 intervention; 72% African American) for a retention rate of 74%. Intervention caregivers showed reduced caregiving stress in comparison with control group caregivers, who showed increases in stress. Intervention patients reported decreased breathing difficulty and increased religious meaning. Caregivers and patients reported greater social interaction on the part of the patient. All participants in the intervention group initiated a Legacy activity and reported that Legacy improved family communication. Legacy interventions hold promise and are simple to implement.
authors.affiliation: Department of Psychology, The University of Alabama, Tuscaloosa, Alabama 35487-0315, USA. rsallen@bama.ua.edu
authors.forename: Rebecca S
authors.initials: RS
authors.lastname: Allen
authors.forename: Michelle M
authors.initials: MM
authors.lastname: Hilgeman
authors.forename: Margaret A
authors.initials: MA
authors.lastname: Ege
authors.forename: John L
authors.initials: JL
authors.lastname: Shuster
authors.forename: Louis D
authors.initials: LD
authors.lastname: Burgio
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D005190:Family / Q000523:psychology*; D005195:Family Relations; D005260:Female; D006801:Humans; D008297:Male; D008568:Memory; D008875:Middle Aged; D013315:Stress, Psychological / Q000517:prevention & control*; D013727:Terminal Care
references.citation: Support Care Cancer. 1998 Nov;6(6):539-41
references.pmid: 9833305
references.citation: J Psychiatr Res. 1975 Nov;12(3):189-98
references.pmid: 1202204
references.citation: Palliat Med. 2007 Mar;21(2):115-28
references.pmid: 17344260
references.citation: Gerontologist. 1997 Apr;37(2):218-32
references.pmid: 9127978
references.citation: J Palliat Care. 2004 Autumn;20(3):134-42
references.pmid: 15511031
references.citation: Issues Ment Health Nurs. 1998 Sep-Oct;19(5):481-94
references.pmid: 9782864
references.citation: Psychol Aging. 1991 Mar;6(1):100-8
references.pmid: 2029358
references.citation: J Am Psychoanal Assoc. 1956 Jan;4(1):56-121
references.pmid: 13286157
references.citation: J Gerontol B Psychol Sci Soc Sci. 2004 Jul;59(4):P185-90
references.pmid: 15294922
references.citation: J Gerontol B Psychol Sci Soc Sci. 2006 Jul;61(4):P202-12
references.pmid: 16855032
references.citation: Cancer. 2000 May 1;88(9):2164-71
references.pmid: 10813730
references.citation: Behav Res Ther. 2003 Oct;41(10):1137-48
references.pmid: 12971936
references.citation: J Gerontol B Psychol Sci Soc Sci. 1998 Sep;53(5):S267-77
references.pmid: 9750575
references.citation: J Exp Psychol Gen. 2003 Jun;132(2):310-24
references.pmid: 12825643
references.citation: J Gerontol. 1991 Jul;46(4):P181-9
references.pmid: 2071844
references.citation: J Palliat Med. 2005;8 Suppl 1:S132-9
references.pmid: 16499461
references.citation: Palliat Med. 2007 Sep;21(6):519-25
references.pmid: 17846092
references.citation: J Pers Soc Psychol. 1988 Jun;54(6):1063-70
references.pmid: 3397865
references.citation: J Aging Health. 2006 Aug;18(4):604-28
references.pmid: 16835392
references.citation: Cogn Behav Ther. 2005;34(2):115-23
references.pmid: 15986788
references.citation: Palliat Med. 2007 Apr;21(3):219-25
references.pmid: 17641075
references.citation: Gerontologist. 1969 Autumn;9(3):179-86
references.pmid: 5349366
references.citation: Gerontologist. 2001 Aug;41(4):449-60
references.pmid: 11490043
references.citation: Psychol Aging. 2007 Jun;22(2):361-71
references.pmid: 17563191
references.citation: Nebr Symp Motiv. 1992;40:209-54
references.pmid: 1340521
references.citation: J Clin Oncol. 2005 Aug 20;23(24):5520-5
references.pmid: 16110012
references.citation: Soc Sci Med. 1997 Oct;45(8):1207-21
references.pmid: 9381234
references.citation: J Pers. 1996 Dec;64(4):899-922
references.pmid: 8956517
references.citation: Psychol Aging. 2005 Dec;20(4):554-70
references.pmid: 16420131
references.citation: J Am Geriatr Soc. 1992 Sep;40(9):922-35
references.pmid: 1512391
references.citation: J Pain Symptom Manage. 2000 Mar;19(3):174-84
references.pmid: 10760622
references.citation: Psychol Aging. 2004 Jun;19(2):270-7
references.pmid: 15222820
references.citation: J Palliat Med. 2005;8 Suppl 1:S103-15
references.pmid: 16499458
references.citation: Cancer. 2006 Jan 1;106(1):214-22
references.pmid: 16329131
references.citation: Psychol Aging. 1989 Jun;4(2):195-201
references.pmid: 2789747